Day 2 on Entocort, not sure it's worth it.

[spelunky]

I am trying Entocort for the 2nd time. The first was eeehhhhh, couldn't really tell if it was working. I still had "D" and all the other goodies that come with it...but maybe not as bad. That wasn't good enough for the doc, so we tried Prednisone with it. I HATE prednisone, so we stopped both.

So at a loss, I am trying Entocort again to see if it might work, but day 2 and it seems worse.

Any hope from those who have had success???

....off subject, what about Pepto? Has anyone here had long term success taking this? Seems ridiculous, but I think I read it somewhere.

 

[CrohnsChicago]

My last flare I wanted to avoid prednisone if I could at all. So my GI let me try Entocort. I also had a hard time telling if Entocort wasn't working, or if it was actually making my symptoms worse....my bloating and bleeding increased during my nearly two weeks of taking it before I was put back on prednisone. The gassiness from Entocort was so painful and constant I couldn't stand to be on the medication anymore.

You must be having major/significant symptoms if your doctor is placing you on steroids Pepto Bismol probably won't do much for you.

I see you are fairly new to the forum....what exactly is your diagnosis and what are your flare symptoms? Have you done any other treatment for your Crohn's and how long have you been diagnosed.

 

[spelunky]

Hi CrohnsChicago, yes I'm new to this. If had D for 2 years with no breaks in between. I finally told my GI & we did a colonoscopy 4 months ago. Diagnosis-microscopic colitis... With inflammation in upper intestine ??? And serology/ blood markers for crohns. So we go over this at every apt.

I have tried methotrexate for something else and before the diagnosis, (didn't help & pretty sure made it worse), prednisone (hated), Lialda (headaches) and Entocort....(still unsure)

I have eaten gluten free, dairy free and meat free...nothing works. But if I eat differently I pay dearly the next day or even hour.

So that's about it.

 

[spelunky]

My last flare I wanted to avoid prednisone if I could at all. So my GI let me try Entocort. I also had a hard time telling if Entocort wasn't working, or if it was actually making my symptoms worse....my bloating and bleeding increased during my nearly two weeks of taking it before I was put back on prednisone. The gassiness from Entocort was so painful and constant I couldn't stand to be on the medication anymore.

You must be having major/significant symptoms if your doctor is placing you on steroids Pepto Bismol probably won't do much for you.

I see you are fairly new to the forum....what exactly is your diagnosis and what are your flare symptoms? Have you done any other treatment for your Crohn's and how long have you been diagnosed.

I just can't understand why a medication to treat these symptoms would cause painful gas and bloating! This whole illness doesn't make sense to me! The word itself makes NO sense...Microscopic my ass! There is nothing microscopic about it...it makes a HUGE change in your life and if not careful, can really ruin everything. And Crohns along with it, well whatever, at this point they can call it the Gorilla in my gut...it just sucks!

My only bright side here is that some of you have found remission for at least a year of two...I would like that Looking forward to the bright side

 

[valleysangel92]

I had entocort for a while. I was taking prednisolone when i started the entocort and then slowly changed to just the entocort. I didnt feel much different after i switched so assumed the entocort was working. I have been told that it can take a few weeks for you to start feeling the benefits of it though so keep with it if you can.

I dont remember having any real side effects with the entocort but i had quite a few from the prednisolone. I know steroids are horrible and they should be just a short term thing. Hopefully your doctor will come up with something more permenant soon