- Joined
- Sep 24, 2010
- Messages
- 137
Hi guys, well I haven't been active on this forum this year. Mostly cause I thought things were going along ok, and I was getting a bit obsessed with it (most of my sentences started with "well, on my crohn's forum...!).
I went to see a different GI as my GP told me he was doing research on crohn's and appendix removal. Turns out he had it all wrong - it was colitis and appendix removal. Anyway, this new GI (who is head of the Aust Gut Foundation and one of the top in his field) recommended a MR Enterography. This is basically an MRI of the small bowel. During my colonoscopy, they couldn't get past the terminal ileum as it was scarred/inflamed. So I did that test on monday and got the results yesterday. Not good.
There are about 8 areas of 'concern' listed on the results. These show inflammation/hypermotility/hypomotility/ function obstruction etc etc etc. After I looked all the words up, I found out that the results weren't very...good.
Since reading them, I've been pretty depressed. I've been on meds (Imuran and 6MP mostly, with a few doses of pred for good measure) for over a year. And I still have many issues.
How am I supposed to cope with this? For the last 2 months I've had strictures and obstructions and have basically just felt like f*** crap. Just when I thought when I was on top of this disease, it gets on top of me again. I'm seriously considering professional (ie psychological) help, as I just don't know how to climb out from this AGAIN.
Any suggestions? I'm obviously feeling depressed and sorry for myself atm, but I really want to know how you all keep picking yourselves up each and every time there is a setback.
I went to see a different GI as my GP told me he was doing research on crohn's and appendix removal. Turns out he had it all wrong - it was colitis and appendix removal. Anyway, this new GI (who is head of the Aust Gut Foundation and one of the top in his field) recommended a MR Enterography. This is basically an MRI of the small bowel. During my colonoscopy, they couldn't get past the terminal ileum as it was scarred/inflamed. So I did that test on monday and got the results yesterday. Not good.
There are about 8 areas of 'concern' listed on the results. These show inflammation/hypermotility/hypomotility/ function obstruction etc etc etc. After I looked all the words up, I found out that the results weren't very...good.
Since reading them, I've been pretty depressed. I've been on meds (Imuran and 6MP mostly, with a few doses of pred for good measure) for over a year. And I still have many issues.
How am I supposed to cope with this? For the last 2 months I've had strictures and obstructions and have basically just felt like f*** crap. Just when I thought when I was on top of this disease, it gets on top of me again. I'm seriously considering professional (ie psychological) help, as I just don't know how to climb out from this AGAIN.
Any suggestions? I'm obviously feeling depressed and sorry for myself atm, but I really want to know how you all keep picking yourselves up each and every time there is a setback.