- Joined
- Feb 23, 2015
- Messages
- 9
28 year old male
Symptoms for 2 years now
Dx'd January 2015: Crohn's, terminal ileitis (with complication)
Steroid dependant: Budesonide 1 year & counting
Thiopurine Refractory: Aza, 6MP (they don't work)
Doc says I have an aggressive phenotype of Crohn's
Minimal 'D', never bled, no nausea, lots of pain & cramping, 2nd barium CT is next week to determine disease progress, I guess.
I've been referred to an IBD specialist and he wants to continue 6MP for an additional 1 to 2 years while starting new treatment. I get to pick what I'm going to get. Still no talk of trying Pred, probably because the Budesonide works, to an extent.
My fear is that the next med will not work like everything else, and also that I'll run out of options. I know I have to start somewhere though. Being a young male I'm also afraid of lymphoma. Doc says with 6MP, even stopping will leave a permanent higher risk factor for the L. Make sense? Why continue the 6MP if it's not really working though? Is this for preventing antibodies? I'll take the combo if I have to, I just won't like it.
So, which drug makes sense? Which would you pick?
-Remicade
-Humira
-Entyvio
-New Antibiotic - forgot the name, clinical trial I think-must prove ulcers are present
-Other trial drugs could be an option too
-Any others to consider?
I have access to my blood work if that would help at all. Thanks for any help.
Symptoms for 2 years now
Dx'd January 2015: Crohn's, terminal ileitis (with complication)
Steroid dependant: Budesonide 1 year & counting
Thiopurine Refractory: Aza, 6MP (they don't work)
Doc says I have an aggressive phenotype of Crohn's
Minimal 'D', never bled, no nausea, lots of pain & cramping, 2nd barium CT is next week to determine disease progress, I guess.
I've been referred to an IBD specialist and he wants to continue 6MP for an additional 1 to 2 years while starting new treatment. I get to pick what I'm going to get. Still no talk of trying Pred, probably because the Budesonide works, to an extent.
My fear is that the next med will not work like everything else, and also that I'll run out of options. I know I have to start somewhere though. Being a young male I'm also afraid of lymphoma. Doc says with 6MP, even stopping will leave a permanent higher risk factor for the L. Make sense? Why continue the 6MP if it's not really working though? Is this for preventing antibodies? I'll take the combo if I have to, I just won't like it.
So, which drug makes sense? Which would you pick?
-Remicade
-Humira
-Entyvio
-New Antibiotic - forgot the name, clinical trial I think-must prove ulcers are present
-Other trial drugs could be an option too
-Any others to consider?
I have access to my blood work if that would help at all. Thanks for any help.