Doctors

[suec]

doctors

i am sat reading some of the threads and it reminded me about a young registrar when i was in hospital before i was diagnosed that said something to me that frightened the life out of me .i was in a lot of pain and vomiting and this so called doctor came to my bedside smiling and said i think i know what is wrong with you.i remember saying to him is it bad,his reply was do you believe in god because if you do you must pray to him and i will pray to my god for you.
there are some very bad doctors about.any one had similar experience's

sue

 

[kiny]

Not like that no.

Although my trust in doctors has fallen dramatically when I found out that many doctors are "testing" medicine on their patients in function of the billion dollar Crohn's disease medication industry.

The money being made on Crohn's just scares me, how can we keep trusting people if there is so much money beingmade, including doctors? I trust my doctor, but when I see how many different medications and how many different ways hospitals deal with Crohn's ..sometimes..I wonder..if the medical industry doesn't influence their decision making process.

 

[StarGirrrrl]

My current GI has decided to ignore and change clinical findings to suit his theory. Seriously.

 

[hannah-rose]

My colorectal surgeon was an arsehole. Which is quite apt really. So today I sacked him I left the most satisfying message with his secretary. 'Please tell Mr. ***** that I would like to cancel my appointment for tomorrow afternoon. If you could also pass this message onto him too: I will NOT be seeing him again, EVER.'

Every time I've mentioned his name to medical staff that know him people pull a face. Today one of the treatment nurses at my GPs described him as a know it all who never got on with the ward staff - she used to work with him.

If anyone is attending Bedford Hospital and wants the name of a CRS to avoid message me! Like StarGirrrrl this CRS was convinced of his own theory and was interpreting my medical evidence to suit his theory, rather than using the evidence to form a diagnosis (or in my case, a lack thereof).

That scares me about doctors testing medicines - what about common medicines that many people take for crohn's, or do you mean new clinical trials?

 

[clearwell]

Good for you hannah.x

 

[clearwell]

I don't hate the nhs cause I wonder how we would cope without it but it is the people who are in it for the money and not the love of the job and I think years ago you went into the nhs for that dedication.That has all changed now.When I had my resection the consultant who did the op lovely man.The aftercare from the nurses I can only describe as barbaric and because of the most arrogant anaethatist of all time I ended up on a life support in intensive care.That was all because he did'nt listen when I told him I had a problem with being intubated.He scares me to death and at that time I thought I was going to die.You can imagine of how scared I am now of further op's.Having said that not everybody is as bad as that so don't give up on the nhs there are some good people in it.

 

[shamrock15]

I would disagree that they are ALL bad. My first GI and my current one are really very good, and the surgeon that I have had for my 6 surgeries was outstanding. The middle I, supposedly a Crohn's expert, was so bad that I consulted a lawyer with the intent of suing him for malpractice. Cost got in the way... Like one person above, I fired him because he thought he knew it all. The two years of anemia that I had, and his lack of trying to find it said otherwise. I did file a complaint with the hospital board though!

 

[ThanksP]

Wow, I suppose I am blessed. Not only do I love my GI but also my Primary doc. Sounds like I'm lucky to have such great doctors that actually care about me and my health.

 

[Becky]

The first GI I saw to get my diagnosis wasnt the best. I am blessed the have a great GI now. My GP is a little clueless but I never see him anyway.

 

[hannah-rose]

Aw Heidi that's awful How are you doing now, do you have a proper diagnosis and treatment?

I'm generally very grateful for the nhs - I once spent 9 hours waiting at a hospital in Africa just to get some antibiotics for a stomach infection, nothing made me appreciate the nhs more! The fact everyone in the country has access to a (usually) good standard of free health care is amazing. It's just those individuals that you have to watch out for, unfortunately the medical profession is not the place for screw ups and we need our medical staff to be faultless because their actions are the difference between life and death.

Shamrock, what happened with your doctor/surgeon? What did he do that made you want to sue him? I'm really lucky I have private healthcare through work and was able to see an amazing consultant really quickly, but I know if I'd stayed on the nhs I'd be waiting weeks, although my consultant does practise on the nhs too.

I guess it just shows how important it is to take charge of our health, and to demand the best care and reject care that falls below acceptable standards. I just worry about those who aren't so confident to confront inadequate medical practitioners and those who aren't so clued up about their health, and who believe everything and take everything prescribed by their doctor without question. If I had done that, I'd be on prednisolone right now, and it'd probably be making me very ill, and it would have been entirely unecessary.

 

[shamrock15]

My previous doc was a real piece of work. Literally two years of bleeding in the bowels, and he would not even schedule regular blood work for me to check my levels to try and figure out what was causing it. Over 60 units of blood in 3 years. While he did get me into a Remicade program, he refused to do anything about anal pain that I had for the 6 months that it took for me to get Remicade - nothing for pain, nothing topical to reduce swelling, and this is with him knowing how difficult it was to get a child sized scope in for the colonoscopy (plenty of fissures at the time too). By the time that he finally got around to doing a pill-cam, I had scarring throughout my bowel, and the anal stricture proved to be a wonderful place for the cam to cause an obstruction. Between the 24 hour waits in emerg to get blood, his lack of initiative in even looking for a cause, the week in hospital needed to pass the cam, he`s done plenty. He wouldn`t consider any idea that I mentioned with regards to possible causes, and he wouldn`t even pursue alternatives other than changing the dosage on Remicade. The only reason a lawsuit didn`t get looked at further is that I was told it would cost at least $500k to try my case due to the size of my file. Lawyers didnt see enough up-side for themselves.

Anyhow, new GI who is really good, symptoms have eased a fair bit and things are returning to `just about`normal.

 

[ameslouise]

Super lucky over here. At first I didn't like my GI, but I wasn't ready to accept my diagnosis of Crohn's at the time. He told me that "food doesn't matter" with Crohn's and that pissed me off, but now I know he meant that food can't cause Crohn's or induce remission.

Since then, we have become partners in my health care. He always calls me back the same day, admits when he doesn't know something, refers me to other docs when I need them, calls me "Babe", and always sends regards to my husband.

Sue - in response to your original post, if any doc mentioned God to me or told me to pray, I would RUN in the other direction.

- Amy

 

[supercellbaebe]

Some medical professionals I have no doubt are good, but I've not had any experience of them, maybe I've just been very unlucky. one thing I am grateful for is the fact that the NHS is free though. If I'd had to pay to be treated as I've been treated I'd be even more irate!

The fact that I had to pay private just to get to see a gastroenterologist in the first place speaks for itself, my GP and the doctors at the hospital I was in at the time flatly refused to refer me, because they thought I was lying about how much agonizing pain I was in and they refused to see the physical symptoms with their own eyes, even though it was impossible to miss. When you get labeled with something like Anorexia Nervosa you automatically get labeled a liar as well and dumped on the scrap heap, unworthy of care.

Now I still have no confirmed diagnosis, but at last the medical profession has been willing to see I actually do have real symptoms and I'm not lying, but they aren't exactly bending over backwards to find the answers. I'm having to pay private to get tests done to try to establish the problem. I haven't got the money and I shouldn't have to pay, but thank fully I have an incredible mum who lending me the money I just really hope to have some answer soon.

Words cannot describe how much I hate these people, I lost 11 years of my life and have almost died many times because of their arrogance. The thought of them treating anyone else like that really distresses me. No one deserves to be treated like that.

Shamrock that is absolutely horrific, I cannot begin to image what you have been through. Jeez, what a horrid horrid man. How are you doing now? I really hope you are being treated with the care you deserve now.

Hannah rose, I have heard the facilities in other countries aren't great. fancy having to wait 9 hours for antibiotics! That is insane! I guess we are lucky in the UK in many respects.

 

[Absentminded]

I realise that many of you have had really horrific and totally shocking treatment, and I'm so sorry you've had to go through that, but I think it is somewhat unfair to tar all the medical profession with the same brush.
I must have been very lucky because I've had two wonderful teams of GI staff, first when I lived in London and now in Bristol.
My current IBD nurse is amazing, as was the one I had before. Both are from big teaching hospitals, with a specialist IBD department. I don't know whether I would have got such good doctors had I gone to a smaller hospital?
The NHS has been a lifesaver for me, I'd never be able to afford Infliximab otherwise. The fact that we get free at the point of service healthcare, which is for everyone, no matter who they are or how much they earn, is AMAZING and something that we should be very proud of.

 

[gus]

The worst doctor I ever had experience with was not treating me but was treating my mum. Mum had been ill for a while and was being treated for breathing problems.She had been diagnosed with asthma her gp is another story of an awful doctor. Finally she was admitted to hospital. She had been there for 2 days and we were visiting her. A doctor came to my mums bed and asked to speak to one of us since I was the oldest I said I would speak to him. I followed him and he stopped at the bottom of another patients bed three beds away from where my mother was.He stood with his back to her but mum could clearly see me.
Even now 12 years later his words and manner make me angry. He said "she has lung cancer" I was in shock and replied "I hope it's been caught in time". His reply was so cold and callous "oh no she won't survive" . I could have punched him. This was in front of other patients and with mum looking on.
Mum never knew the cancer was terminal and died seven days later at 53 years old RIP mum still miss you loads.

 

[shamrock15]

I agree - definitely not broad brushing the medical field. My first GI looked after me for 20 years - fantastic. Same surgeon for all 6 surgeries - was like family to me. Current GI is also great. My remicade nurse is amazing - finishes each infusion with a hug and genuinely knows each of her patients. I have been fortunate to have far more good medical professionals than bad.