- Joined
- Aug 23, 2009
- Messages
- 405
After my last post (where I was pondering the decision between surgery, balloon dilation or do nothing), I had a consultation with a surgeon and he advised that due to the amount of scarring and damage I have, if I were to get surgery it would be a full right hemicolectomy and not the simple resection that my GI made it out to be :ywow: The surgeon also told me that my doubt is the best indicator that surgery is not for me. He said that people who are at the stage where they need surgery are generally in a lot of pain or suffering so my lack of any great discomfort made it really clear to him that surgery can wait. That made my decision regarding surgery incredibly easy, I decided just to let it be for now and see what happens in the future. It's somewhat comforting to know that I always have the surgery card up my sleeve if things get really terrible.
Despite opting out of surgery, I've been doing great. My remission has stuck around and although I still get the very occasional D (I'm talking like once every 2 weeks or so), I almost never get any pain or blood. I'm doing well at my job, have a wonderful boyfriend who is amazingly understanding and supportive who I'll be living with at the end of January (yay!) and I'm pretty happy all 'round :biggrin: I even spoke with my GI at our last appointment a few weeks ago about coming off the MTX and getting back onto Imuran for maintenance. I'm getting some blood and fecal work next week and if my inflammation markers are low, we're going to give it a try. I know that there's a risk of flaring again but it would be really nice to not be so tired and apathetic for a day or two after my weekly injection.
I really hope that other people who are at a lower point in their Crohn's journey can read this and find a little bit of hope for the future. Although I never know what will come, I'm enjoying this good time in my life and I genuinely wish for health and happiness for everyone suffering with this illness.:ghug:
Despite opting out of surgery, I've been doing great. My remission has stuck around and although I still get the very occasional D (I'm talking like once every 2 weeks or so), I almost never get any pain or blood. I'm doing well at my job, have a wonderful boyfriend who is amazingly understanding and supportive who I'll be living with at the end of January (yay!) and I'm pretty happy all 'round :biggrin: I even spoke with my GI at our last appointment a few weeks ago about coming off the MTX and getting back onto Imuran for maintenance. I'm getting some blood and fecal work next week and if my inflammation markers are low, we're going to give it a try. I know that there's a risk of flaring again but it would be really nice to not be so tired and apathetic for a day or two after my weekly injection.
I really hope that other people who are at a lower point in their Crohn's journey can read this and find a little bit of hope for the future. Although I never know what will come, I'm enjoying this good time in my life and I genuinely wish for health and happiness for everyone suffering with this illness.:ghug:
