Don't they realize?

[wi_girl]

I end up in pain alot because of crohns and the doctors never give me pain pills.I swear that the doctors I see just don't realize or care how painful crohns is.Every time I end up in the hospital(which is every seven weeks)I end up getting pain medication while there but after I leave...nothing.Does anyone else have this problem.Also,I get remicade every 8 weeks but after six weeks I get a flare up.Its miserable.Does anyone know if 8 weeks apart is the earliest they can give remicade?

 

[TammySue62]

hi
Yah Im afraid so. You can only have infusions every 8 weeks.
What a drag aye? I too wish that I could Have them every 4 weeks.
As for your pain I would Think about getting a new Dr. He should be giving you some kind of pain meds.
Later

 

[wi_girl]

That does really stink.I knew they should have been doing something for my pain but they just didnt darnnit.Thank you,I'll have to do that.

 

[ruthymg]

Yeah, I have a stash of pain meds of varying strengths. Its important to always have some to hand I think.


Ruth

 

[katiesue1506]

Ahh see, I asked for pain meds and they never let me have t hem period because of drug dependency... pissed me off, but I just learned to deal with the pain.

 

[kissycole_1979]

I have been offered pain pills before but I refused them. I can't tolerate them. I throw up like crazy and have tried all kinds with the same side effect. It definitely sucks because there are times when I really need something to take the edge off.

 

[TammySue62]

Yeah, I have a stash of pain meds of varying strengths. Its important to always have some to hand I think.


Ruth

Hi Ruth
I make sure that I have a stash of pain meds too.Im forever switching back and fourth. Dilaudid for a couple weeks then oxycodone for a couple weeks then I will where that duragesic (fentynal ) patch for awhile. No Im not some kind of druggie but my body gets used to them so I have to switch.
Later

 

[Ilysha]

Pain Meds

What type of pain meds do you take for Crohn's? I've never been perscribed anythingn and I'm in the middle of a bad flare up and my heating pad just isn't cutting it any more.

 

[TammySue62]

Pain Pills

Over the past several years. I have taken demerol,perks,oxycodone IR(no its not the same as perks)(perks are also called oxycodine) big difference and dilaudid and the fentynal patch (Duragesic)
Later

 

[ruthymg]

Wow Tammy, you take some serious pain meds lol. All are highly addictive and quite strong and so could cause really nasty problems if not taken with care. I hadn't heard of any of them to be honest, I had to look them up. I think you seriously need to think about possibly having surgery if your fistulas aren't starting to heal any time soon. All those pain meds can be put back into the cupboard then, think of your poor liver lol. After the initial pain from the surgery it amazing how quickly the fistulas start to get better and its not that bad having a stoma. Anythings better than pain from fistulas I say.


Ruth

 

[Kev]

I prefer to avoid or limit pain meds.. first, I've got an addictive personality.. just look at my tobacco addiction.. (Thank God you don't need a prescription for sex, just the occasional one afterwards).. second, pain meds are a double edged sword. It may mask whether you are getting worse, have another issue, things along that line. third, aside from their potential long & short term side effects, lots have a negative effect on the bowel, digestive system, liver (which may or not be affected by crohns) kidneys, etc,. etc.. Don't get me wrong, I lived on them for as long as I REALLY had to, but I got off them AND then stayed off them since. I've got them tucked away in a corner of my medicine cabinet, just for an emergency.

 

[TammySue62]

Wow Tammy, you take some serious pain meds lol. All are highly addictive and quite strong and so could cause really nasty problems if not taken with care. I hadn't heard of any of them to be honest, I had to look them up. I think you seriously need to think about possibly having surgery if your fistulas aren't starting to heal any time soon. All those pain meds can be put back into the cupboard then, think of your poor liver lol. After the initial pain from the surgery it amazing how quickly the fistulas start to get better and its not that bad having a stoma. Anythings better than pain from fistulas I say.


Ruth

Its not like im a pill junkie.I dont take these all the time. Really just the past 4 months,because of the fistulas and very bad back pain and the very painful leg and arm spasams that Ive been having.Also this is the first time that I have been off the prednisone (completely off) in 10 years.
My system goes in spirts.Sometimes I will have to take the pain meds for a couple months untill things start to settle down then Im OK for a few more months. My GI knows of this. He is the one who prescibes them for me. Im just having a bad flare right now and the fistulas make it worse. I no they are highly addictive and Ive red up on each one. Isee the surgeon on Mar 23rd and hopefully he can do something about these fistulas.
I dont need or have to take them every day and when I do its only one type of pill.
Dilaudid is highly addictive and so are perks.My liver is fine because I get bloodwork done every 3 months.
Thanks for caring Ruth
I do take percautions.
Man if I took these all the time or at once I wouldnt be cohearant or able to type or drive or every household chores or cook ect... ect... LOL
Later

 

[leighhi27]

HI,

No, i never have a problem getting pain medication. I do know how painful it can be and sometimes it is so painful that I just can't make it with the pain medication. I don't like to take unless the pain is unbearable. I taken loretab 10, percoset, darvaset, demero. dilaudid, just about the same ones as Tammy. I always darvaset does nothing for me but make me itch. I have found that loretabs tend to help the best. But again, I only take them if i can't stand the pain anymore. I just took one, so forgive me if i ramble or misspell words. l

I was getting remicade 5mgs per kilo every 8 weeks, then my doctors wanted me to change to 10mgs per kilo but my insurance company wouldn't allow that so i get 5mgs per kilo every 6 weeks now. I think my body has become use to it and it has stopped helping. But that is okay because my doctors don't want me to continue you on it for much longer anyway because the long term effects are not really known.

anyway, if your insurance will cover it and your doctors prescribe it, you should be able to get remicade every 6 weeks. I hope this helped.

Leigh

 

[andilynn09]

My GI also did not want to prescribe me pain meds because she did not want them masking my true symptoms. She also did not suggest them because of how hard they are on you liver, digestive system, etc - especially since I am already on imuran which is hard on liver in the first place. I definitely had some horrible weeks, but i think not being oin the pain meds gives the doctor a more true idea of what stage your crohn;s is in so they can give you the appropriate type of treatment - not just make the pain better.