Don't Want To Feel Like The Only Person With Chrons

[ASHLEYVL]

Hi I am new at all this and have come to my last resort. I am 23 and have had Chrons for what seems like forever ( really only 2 years) But I feel like I am getting nowhere. I am sick of not having the energy to do normal things or having pain. I JUST WANT A NORMAL LIFE!!! I feel like I get nowhere with the doctors. It's almost like they don't even want to talk about chrons. I don't know if for legal purposes or if they just don't know enough about chrons but I really feel like I am blind in this whole Chrons thing. Thank goodness for the internet so I can learn SOMETHING about what my body is going through. I am SO SICK of not being able to work and us not having any money b/c all my medical bills are draining us dry. Sorry if this seems like a complaing session I just want to talk to someone who knows what I am going through everyday and who understands. I want someone to talk to get advice.

 

[Kev]

Sorry to break the bad news to you Ashley, but you are the only person to have chrons. The rest of us have crohns. ;-) KIDDING! Complain all you want, and welcome, OK?

 

[butt-eze]

Welcome!!! It is terribly frustrating. But you will feel better talking to this group of supportive people.

My first advice is to find a new doctor. Almost everyone here as seen more than one specialists for the Crohn's.

Please share with all what medications you have tried and what your current meds are.

Again, Welcome,

Amy

 

[jed]

your defintely not alone Ash, and you'll find yourself (ad your family) very welcome here.

find another doctor if you can, and keep pushing them for more answers, your paying them so you deserve to know all you should.

welcome!

 

[Guest]

a warm welcome to the forum, Ashley.

you are most definitely not alone - and now that you've found this forum, you've found a bunch of friends who know exactly how it feels, living with Crohns Disease.

have a good read through of threads in here, particularly the intro stories of members - there is a lot to learn, and loads of invaluable help and ideas.

if i were to sum up the best way of dealing with this condition, i'd begin with acceptance - its not a nice feeling to be diagnosed with something which you know will be with you for life, but dont forget there is remission, and sometimes this can go on for years, so its not a doom & gloom sentence. secondly - information is paramount. learn all you can from doctors and sufferers, see how others are dealing with and coping with their Crohns. thirdly, and i think very importantly - support. the more people in your life who understand what you're going through, the better - and that includes people like ourselves (online contacts). i also include your own doctors (specialist AND gp). like Jed says, if you don't have a mutually good and open relationship with the ones you have - change. and then there are the meds, and the other coping mechanisms such as diet, rest etc...

you'll get there - dont give up!

 

[Joshua_A_B]

Hi Ash,
This is just an echo of everyone else but you are not a stranger here and yell (proverbial) and cry and laugh! Whatever it takes to stay strong! Normal for us has changed - I don't mean it will be bad but we have a different set of standards for what is normal now. Information is your best weapon... make them Docs earn their checks!