So I had an operation to remove my diseased bowel/fistula's - received an illeostomy in return - 2 months ago. The Consultant etc decided not to put me on any drugs and actually apart from the usual stuff going on I feel fine - occasionally have a bit of pain from my ride hand side (my ileum was removed) though that's normally if I 'over-do' it a bit.
I spoke to the Crohns/GI people in t he hospital and they were talking about putting me on 6mp but that was 'forgotten about' for the rest of my stay
I had a letter through today about an appointment for a meeting in March where there talking about putting me on Aza (sorry can't spell it).
Now, what I want to know is WHY leave it for 3 months before even beginning to think about putting me on something, because, having done a bit of research, Aza is quite intense, and surely if my Crohn's was that bad surely I should have been put on it straight away?
Also would I know whether I was in the fabled remission? Am I in remission now? I'm a bit scared of trying the foods that usually made me very sick like beef/bacon etc, yet I have tried a bit of pork (usually did make me sick) I was fine. And this is a conversation I have a lot with my parents
The thing is, as soon as I got onto the steriods etc I was fine - no pain. However, I did suffer from fistula's, and I was ill when I had them. I just find all of this very confusing!!!
Thank you for taking the time too read
I spoke to the Crohns/GI people in t he hospital and they were talking about putting me on 6mp but that was 'forgotten about' for the rest of my stay
I had a letter through today about an appointment for a meeting in March where there talking about putting me on Aza (sorry can't spell it).
Now, what I want to know is WHY leave it for 3 months before even beginning to think about putting me on something, because, having done a bit of research, Aza is quite intense, and surely if my Crohn's was that bad surely I should have been put on it straight away?
Also would I know whether I was in the fabled remission? Am I in remission now? I'm a bit scared of trying the foods that usually made me very sick like beef/bacon etc, yet I have tried a bit of pork (usually did make me sick) I was fine. And this is a conversation I have a lot with my parents
The thing is, as soon as I got onto the steriods etc I was fine - no pain. However, I did suffer from fistula's, and I was ill when I had them. I just find all of this very confusing!!!
Thank you for taking the time too read