EEN diet

[AlexIta]

My son is doing the EEN diet, he is drinking E028, 2000 ml per day. He is doing well, he is drinking without complaining ( 11th day). However, M stool are mushy and sometimes greenish, is it normal?

The GI told us that if M wants to continue the EEN after the 6 weeks, he could do 50% EEN and 50% food, anyone has any experience with this kind of diet?

I was wondering also if there is any correlation between FC level and the amount of inflammation? I asked to the GI but he wasn`t so sure.

 

[my little penguin]

All Liquid in equals liquid out in a lot of kids
So mushy is expected
50/50 with unrestricted foods tends to not work
50- formula with a extremely restricted diet ( crohns exclusive diet)
Link here
http://www.crohnsforum.com/showthread.php?t=71686
At 50% has been proven to work for some

Most kids required maintenance meds though

 

[pdx]

That's great that your son is able to drink his formula without complaint.

My daughter was on EEN for 8 weeks, and then we went to 50% EN for 2 weeks while slowly adding back foods. In her case, the slow reintroduction of food was just to see if her maintenance meds (Remicade and methotrexate) were working enough that she could tolerate food again. Is your son on a maintenance drug, or is EEN his only treatment right now?

When we started adding back foods, we used this diet to guide us:

http://www.umassmed.edu/nutrition/ibd/ibdaid/

 

[Optimistic]

If he has made it 11 days, he is over the hard part. Go tell him he is amazing!!!!

My son did it for 8 weeks then slowly added back in food from the Specific Carbohydrate Diet. Almost two years later he is about 30% forumula and rest Scd. It has become his normal and just what he does. He even has friends who drink occasionally.

FC level has been wonky with him. We just know that a level higher than normal means inflammatory. His lowest non normal level was when he was in ICU with his first flare. We can't explain that.

Hope the next few weeks fly by for your rock star. I'd suggest he has earned tons of extra screen time or whatever he loves!

 

[Maya142]

We also had liquid stools with when my daughter was on mostly formula.

Way to go for drinking it!! My daughter absolutely hated EO28 - tried very hard to drink it, but just couldn't. She ended up with a feeding tube and that worked very well for her.

Well done, he's a star :dance:!

 

[crohnsinct]

way to go m!

Both of my girls had normal bm's with een and our doc felt kids should have normal but I have heard from many people here that their kids had mush or liquid stools so I wouldn't worry.

I have heard of 50/50 working for people. It just didn't happen to work for my girls. We tried it with the Ibd aid diet. But not all meds work for all people either. I would definitely give it a try.

Just like crp and sed rate vary by person so does fc. One kid could have an fc of 500 and be a mess and another could be mild. The best way to tell is get an fc at scope time. Then the doc has a good idea of what that number means for your child.

Inflammation is also a funny thing though. Some could have mild inflammation and have terrible clinical symptoms and others could have raging inflammation and be totally aasymptomatic. Again, this is where the scopes become useful.

 

[ncman]

The green is due to the bacterial die off and completely normal.

The foods everyone reacts to is going to be completely individual, so once you've established a baseline of 'safe' items (I used the Lofflex for this) test new foods and watch for reactions.