Elemental diet

[Naomi1]

Hi!
I'm new to this forum but I've known I've had IBD for 2.5 years. When I was first diagnosed, I went on an elemental diet (elemental extra 028) for 5 weeks and then slowly introduced food back into my diet. I don't really think any particular food triggered my IBD but I stopped eating gluten and coffee just to be careful. Anyway, was in remission for two years, but now I'm in the middle of another flare. Just wanted to ask whether anyone else has a) done the elemental diet and b) flared afterwards? If yes to both, did you do the elemental diet again and was it successful? Thanks very much!

 

[my little penguin]

What other meds have you been on after you stopped een?
Een like pred reduces inflammation but once food is reintroduced the inflammation/damage starts all over again unless you have a med to stop its progression
What have your scopes /imaging /bloodwork looked like in the past two years?
You can be symptom free but still have damage ( tagging clash )

Ds has done een three times now
It works like a reset button
He still takes meds to keep things under control

 

[Naomi1]

Thanks for your reply, my little penguin! I've just been on 2g daily of pentasa. My last scope was 2 years ago and it showed total remission and I've been symptom free up until recently. My problem has always been working out which food, if any, trigger the Crohn's. I have mild symptoms and I haven't really picked up any change in my symptoms after eating a particular food. Glad to hear the elemental has reset your son's system. Did he do an elimination diet after the een? That is, to work out if something is triggering his immune response? Or does he find food isn't the problem? I will continue on the diet and hope it is successful the second time around.

 

[Charlotte.]

Sorry to hear you are flaring again.
a) Yes
b) Yes
;-)

I would recommend clicking on my profile and search for my posts on Elemental, I have written quite a lot about my experience with Elemental028.

Hope things get better soon for you.

 

[my little penguin]

Yes he has done elongation diet
Introduce one food at a time for three days
Single ingredient
Wheat is a big issue for him ( not celiac )
But he has other allergy/Gi issues which the food trigger
Not his crohns
He is basically on 50/50 right now
Of formula /food

 

[Naomi1]

Thanks for that, Charlotte! I'll look through your posts now.