Elevated blood pressure and temperature with Crohn's Disease

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

J

joe1984

Joined
Sep 12, 2010
Messages
61
yep I am in the hospital for the 8th time in the last year. i have been in more pain than usual since friday and it got out of hand today. I went to the doctor (my pcp) and when they took my vital signs my bp was 160/115. and my body temp was 100.5. So they decided to have me admitted they ran the first 2 liters of saline in 90 minutes and now they are running fluids in at 250 ml/hr. They will be running tests all night and through the day tomorrow. I will keep posted as I get some results.
 
I'm sorry to hear that!!! I hope they will be able to fix you up and you will feel better soon. Keep us posted :0)
 
Thank you both I currently am not in pain but then again I just got iv dilaudid I will definitely keep posted of what is happening. Thank you again for everyones support and thoughts I am so lucky to have found this forum
 
Sorry to hear you aren't feeling well - been there - done that with the Dr straight to admitting route! (more tiimes than I care to remember!)
 
I will. btw did you remember to be mad at crohn's today. Remember that I named today national be mad at Crohn's day.
 
Hey Joe, I am so sorry, I know what it is like. I remember my early onset of the disease, I was in and out probably about the same amount of time. YOU are in the best place right now even though it sucks, at least you have the Internet lol, computers werent invented then. You really need to rest, try not to stress and let the meds work. Please keep us updated ok? Big hugs and hang in there. Everything will be fine. ;)
 
:) Joe as a matter of fact I did remember to be mad at Crohns today. I posted earlier on anything goes.. Titled "frustrated".. Think I found my early breaking point. I wish u luck though buddy! Hang in there!!
 
ok so blood tests have been taken to the lab ( CBC, CMP, 5 diff) along with 4 cultures I think they took a pint of blood just for tests lol. Urinalysis is sent off and the urine was really dark but didnt seem to have any blood. wouldnt you know since i have had really bad D for 4 days that it is gone now that they need a sample. BTW I have another CT in about 8 hrs I will keep everyone informed and thanks again for everyones thoughts and prayers and you are all in my thoughts as well
 
Hi joe, sorry to hear you are in the hospital, sounds like you are getting what u need there. get better and take care
 
I am getting fluids and dilaudid right now no real meds until tomorrow but atleast the dilaudid helps with the pain long enough that I can get an hour of sleep between shots every 2 hours
 
they just took my vitals again temp still 100.5 pulse 78 oxygen is 98% and my blood pressure is a little less scary now it is down to 135/98. I am getting 4 mg dilaudid every 2 hours and that has the pain tolerable also I am much better hydrated I will be happy when I can get it to 125/90 or better no word yet on blood tests but I do know that my ct is scheduled for 8am Eastern (USA) I whould have the results of that by noon
 
Hey Joe,
Thinking of you bud! Thanks for the updates! And hope u start to feel even better (wink wink) keep the pain meds comin! Would rather u not be in any pain at all..and good luck w the ct scan. It'll be over w b4 u know it!
 
Hey Joe,

Sorry to hear you are in hospital again but it sure sounds like you are in the right place. Good luck with all the tests and I hope you get some long lasting relief very soon........


:goodluck: AND :getwell:


:hang: buddy, thinking about you, :)
Dusty
 
OK so here is another update. I am still in the hospital. They did a ct earlier and said it was a pretty tight stricture. Currently treating with steroids and antibiotics. I will see my gi in the morning because I had to see the on call gi today. Hoping to be home by the weekend. thanks for all of your thoughts and prayers and I will update here again tomorrow. oh and btw my white count is 19.4 but everything else was okay
 
Thanks for keeping us updated! Hopefully they can get the stricture under control with the steroids and such. Get better and I hope you do get to go home by the weekend!
 
Hey Joe,
Thinking of u bud! Glad they have u on antibiotics now too! I'm still up for yelling at some1 for u if u need it, Or just want a chuckle at my silliness. I'm here for ya! Anytime!! I wasn't able to eat yesterday myself, hardly slept, & managed to get down 1 sandwich today. Tummy's been goin wild.. My pcp didn't approve a refill on a rx yet. & still haven't got pd. Few accts overdue now. :) I'm smiling though. Yelled at someone a while ago.. Oops. ;) u just say the word and I'll let someone have it for u.. Hehe.. Hope u smiled anyways!
Hang in there .. :) (hugs)
Your friend Mon
 
Girl,
I am sorry that you havent felt well and that you are still having problems with your check. I could imagine you going off on my GI. He is about 6'4" and weighs about 240 lbs yet he is the most soft spoken person that I have met. I also got to explain some of the finer points of Crohns today to an intern. He was following my pcp around today and my doc asked me to talk to him about it. I almost had the intern convinced that there was a cure but my pcp started laughing and made me stop. I am feeling pretty good right now. lots of pain meds and rest and I finally quit vomiting so thats good. Hope tomorrows better for you. You are a great person and never forget it
 
Heya Joe,
U know what? U always make me smile :D ! I'll get my situation sorted. But I am so happy u r feeling better! U r the one in the hosp. And omg 6'4.. Lol.. I'm a whole 5'3.. Would have been some kinda funny..and go ahead on w your witty self.. Teachin the intern a thing or 2. Good 4 U! ;) and I sure hope tomorrows better for u as well! Its good u r goin in the right direction! Keep me updated!! This is the excitement of my life right now.. Don't deprive me.. :) PS.. U r pretty awesome yourself! And don't u forget it
 
glad i can be the high light of your day. i guess I am just good like that. Having this forum, but especially you has made my last few bays alot better. I am truly greatful for each and everyone of you. I can talk to all of you in ways that I just cant talk to my family. I am the one in the hospital and though it can get scary, when I am in here I suffer less and my pain is controlled in ways that it just cant be controlled at home. I am feeling better with every passing hour I am still hoping to be out on Friday but that isnt looking too promising since I am still NPO (no food or drink) and will be for atleast another day. Again I would like to thank you all for your thoughts and prayers. You are all also in my prayers
 
Thanks again everyone for taking the time to leave a comment. I thought that I would put a med list up. These are only the meds that I have been given in the hospital.
Dilaudid 2mg/2hrs IV
Zofran 4 mg/6hrs IV
Phenegran 12.5 mg/4hrs IM if zofran doesnt help
Xifaxan 500mg/12hrs PO
Solumedrol 100 mg/daily IV
Protonix 40 mg/daily IV
Bentyl 40 mg/6hrs PO
Lovenox 30 mg/daily SC
Ativan 1mg/6hrs IV
0.9% Sodium Chloride solution (regular iv fluids) 100 ml per hour
Potassium Chloride 40 mEq/daily IV
Ambien CR 12.5mg/if needed for sleep
 
Blimey, I can't even say some of those!

Just wanted to add my best wishes. So sorry that you have been so unwell, but am sending lots of positive vibes your way. I'm glad that you're getting the help you need and are hopefully on the road to recovery!

Lucinda
 
Thank you for your well wishes Lucinda. I truly appreciate your thoughts and positive vibes. I also cant pronounce a few of the drugs but I know what they all do for me and that is to make me feel better and thats all that matters to me
 
Hey Joe,
Glad u r feeling better hour by hour! Just want u 2 know I'm thinking of ya! So sorry about the NPO!<-ust 1 more day for that though.oh how that sucks to wait. & I've only had a few of those(meds), I think. But u r right all that matters is they have u feeling better! Oh :D and the advantage of the hosp when u "have" 2 B there.. The nurse button, & pain meds. Wouldn't it be nice to have 1 of those @ hm? Lol.. Not the nurse ;) but maybe a robot on a remote.. Hehehe.. U push the button & he brings u what u ask 4. :D .. Oh b4 I forget.. :) TY this has made a diff in my days too! Its the Crohnie IBD Colitis fam which I seem to relate to more now than any1 else these dys! Hope they get u feeling even better! I'll B thinking of U. Stay Strong, :D
 
joe1984 said:
Thanks again everyone for taking the time to leave a comment. I thought that I would put a med list up. These are only the meds that I have been given in the hospital.
Dilaudid 2mg/2hrs IV
Zofran 4 mg/6hrs IV
Phenegran 12.5 mg/4hrs IM if zofran doesnt help
Xifaxan 500mg/12hrs PO
Solumedrol 100 mg/daily IV
Protonix 40 mg/daily IV
Bentyl 40 mg/6hrs PO
Lovenox 30 mg/daily SC
Ativan 1mg/6hrs IV
0.9% Sodium Chloride solution (regular iv fluids) 100 ml per hour
Potassium Chloride 40 mEq/daily IV
Ambien CR 12.5mg/if needed for sleep
Click to expand...

Holy cow! I can't believe you are in the hospital and you can remember all these drugs you are on, let alone spell them.. hope something helps enough to get you outta there and soon!:shifty-t:
 
Update:
No more NPO I get clear liquids today. Also I dont remember any of it I write everything down when I am in the hospital. it is usually about 50 sheets of notebook paper front and back per 7 days in here. you dont have to be OCD about it like me but it is a good idea to document all interactions with staff and anything ingested ( food or meds) just for your records. it also seems to get you better care when they see you documenting everything
 
Hi Joe,
Good words of wisdom! Keep records. :) hope u r handling the food ok. I had a sandwich today & my tumm tumm is PO'd! Lol. Anywho, rec'd a paperck today. Yay! My pcp denied my rx. I called 2x's & no call back. Called my CR Surgeon in desperation. No call back frm him either. But went 2 cvs & they had 3 rx's ready. & I'm thrilled. Sad huh? Lol.. Hope your day has gotten better as well! :D ... When r they gonna let u go hm? Best Wishes
 
Update:
Sorry I havent given an update today. So they got my WBC down to 13.9 and they are saying that I should get to go Saturday or Sunday. We caught everything early so that is good. I am recovering much faster than normal and I truly believe it is all of your thoughts and prayers. Everyone has just taken me in so fast as I have only been a member for about a week. has anyone ever taken an antibiotic called xifaxan the generic is called rifaximin. It apparently doesnt enter your main blood stream it ficuses exclusively on your gi tract. I am taking it for the first time and was wondering if anyone had any experience with it. I did some research on it and for interactions and side effects it pretty much has a standard antibiotic profile. thankyou all again for all of your uplifting messages. I wouldnt be as well off as I am now if it werent for each of you. Atleast I got out of my colonoscope today. They couldnt do it because they were gonna take biopsies but I have been given an anticoagulant. yay i get to put it off for atleast another week.
 
Update:
I am now at home. They did a bunch of tests yesterday and decided to let me go home today, as long as I promised to take it easy. They sent me home with more pain meds and antibiotics. I will also be switching to Humira from the remicaide. I do truly appreciate everybodys thoughts and prayers. You all really helped me through this trip to the hospital. Thanks again
 
Good deal! Awesome. I've been wondering how u were.. Almost like worrying for a younger sibling. (I'm a dork.. I know.. Lol)All the best to u & keep us posted! Its good 2 know you're hm! :D
 
oh and an update on that xifaxan medication it is rarely prescribed because it is $1500 USD for a 15 day supply even with my excellent insurance it was $100 USD and most insurance companies will not cover it and tell them to give you flagyl. But since I am allergic to Flagyl they covered it
 

Similar threads

C
How our son’s Crohn’s was diagnosed
Replies
2
Views
1K
Stressedmom
S
C
Think i have had this a long time, not diagnosed yet but what a kick in the gut literally
Replies
16
Views
14K
never
N
J
Crohn’s in small bowel
Replies
5
Views
3K
Mountaineer01
M
E
Currently in hospital, first ever pancolitis, no diagnosis yet...what's wrong...
Replies
2
Views
1K
Lady Organic
Lady Organic
M
Process of Crohn's Rediagnosis - Encouragement & Support greatly appreciated
Replies
3
Views
1K
Citrina101
C

Latest posts

Back
Top