Emotional kid. x

[dodie74]

Well, got up this morning, went to work and got in for my hubi to tell me kian was in tears this morning. Came out of the blue, no warning as he been happy enough. I wonder if its because he changing to mxt on Friday and feels uptight about it or can they feel a bit down once off meds as he has had no meds at all for 2 weeks. Hes now saying he doesn't want to go on his school trip and he was soooo looking forward to it. Its such a worry. Ive rang the school to keep an eye on him and also told them about his new meds. feel a bit emotional and down myself today, everything just hit me I guess. xx

 

[Amy2]

So often kids suffer in silence and put up with things adults would never dream of putting up with. His tears might be a sign that he's been trying to deal with too much by himself.

 

[CDJ]

It sounds like he could be worried about the change of meds. It's the unknown that does it. Hopefully once he starts the new meds he will feel better about things.

I know my son gets uptight about anything new coming up. It's so hard for us as parents to know what to do for the best. Try to distract him as much as you can, and probably not say too much about starting on the new meds at the moment. Hopefully being at school will help him take his mind of everything. Good luck xx

 

[Farmwife]

Grace gets this way because of dealing with fatigue. Instead of saying, mom I'm tired, she just pushes and pushes herself until she's an emotional wreck.

Hugs

 

[mdd]

I feel for you and your family. Its hard he needs to push when he's ready. I know every bathroom from Pittsburgh to Mobile AL. its not feeling safe with his meds. Or off them. stress make it comes on harder. Just keep talking be positive. if he could or you talk to other kids could help.i still have it everytime I leave the house. but it passes one step at a time I hope I help you. Love ya, keep on going we are here for you all

 

[SupportiveMom]

The emotional roller coaster is not something discussed much. There are so many things our kids have to deal with it would make an adult upset. Sounds like you are doing what you should. Encourage your little one to talk to peers with IBD. I convinced Dani last night to join the forum and even went on the chat last night. I don't know how old your kid is, but if old enough it may help.

Dani was excited and scared connecting last night. Thanks to the great parents here it looks like she made 2 new friends. As their parents we are only going to "get it" so much. Encourage talking like you are doing is my best advice I can offer, and you are already on that. Hugs...

 

[dodie74]

His teacher is a friend of my mums so I went to chat to her tonight. She had a wee chat with kian today and he seems ok now although very tired tonight, I think maybe its because hes been off the 6mp for 2 weeks now as about to start the mxt shots on Friday. x

 

[CrohnsKidMom]

My son was very stressed about switching from Imuran to MTX shots. He has always been VERY scared of needles. I remind that the needle is short, just long enough to get the medicine under the skin, and that it will be quick. It gets easier as time goes on. Hang in there!

 

[mdd]

hey dodie74,let me know if he went on the field trip. keep it up your a good mom

 

[dodie74]

That's the thing, the trip isn't until May time... theres a boy in his class that I think is trying to get kian not to go as hes not going on any of the trips himself and I have a sneaky suspicion he said something to Kian on Friday to put him off!! Kian was so excited about his trips and this just came out the blue. His teacher reassured him that if by May he still feels the same then it will be no problem to take him off the list but she would like him to stay on it just now if it was ok with him and he agreed. xx

 

[DanceMom]

We're going through the emotional bit too. I've wondered if it was a mtx side effect or perhaps she just isn't feeling well. Farmwife mentioned fatigue and that's a good point as well. Our kids go through so much.....

 

[dodie74]

DanceMom, I think I may have asked this before but how long has your daughter been on mxt shots? has the fatigue been an issue? xx

 

[DanceMom]

She will have her 5th shot tomorrow. She really didn't have any symptoms other than skin lesions when starting the mtx. All was well for about 2 weeks and then the GI symptoms and fatigue returned. I'm not really sure what is going on with her at this point. I would say that the mtx definitely hasn't helped matters much but it probably isn't expected to at this point in the course. I was told we'd look at adjusting the dose at 8 weeks if she was still symptomatic.

 

[dodie74]

I hope it kicks in real soon for your daughter. All being well, they giving it 3 months to see if it working for kian, if not then we looking at surgery. xx

 

[kimmidwife]

Sending you wishes the methotrexate works! May daughter had a good twenty months on it before it stopped working. It kicked in pretty quickly and she had no real side effects.

 

[vtfamily]

I've always counted Gus' emotional/rude/snarky behavior as a precursor to learning that his disease is active and taking prisoners. It took me a really loooooong time to realize that though. Just about the time I'd become exasperated with the overly emotional or "teen-tude" coming out of my 5-6-7, etc... year old, I'd realize that there was something else going on inside him. Something that he could not explain. Something that would take six months to a year to manifest enough to show up on a test/scan/scope before the doctor would see it too. In fact, the behavioral changes seem to even precede physiological changes (coloring, weight, etc...).

Hope you are feeling a little more optimistic today!
Cheryl VT

 

[Sascot]

Kids seem to cope with everything well, but I suppose it must build up every now and then so it comes out as tears, etc. Hope he is feeling better now. Good luck for Friday

 

[DustyKat]

Good luck for tomorrow dodie. :ghug:

I hope all goes well for your lad and he is soon feeling better about things, bless him. :heart:

Dusty. xxx

 

[dodie74]

Thankyou DustyKat.... Kian fine about it all tomorrow, its me who is really nervous. I remember feeling the very same the 1st time I had to give him 6mp over 3 years ago, just hoping the mxt works for him and he doesn't need the surgery. xxxx

 

[Jmrogers4]

Thinking of you guys

 

[Farmwife]

It's never easy. Grace already is a pro at taking mtx but now I'm nerves up about the humira shot. We're mother's forever and will worry about the kids for at longer. Lol