Energy Level?

[nwood10]

Hey Everyone,

I'm new to this forum and also Crohn's. I was diagnosed on Jan 26th 2012. I was just wondering what your energy level is with the disease? I am wondering becuase sometimes I feel like I can't get out of bed, and sometimes I feel like I can run miles and miles.

Is this a common symptom of Crohn's? Let me know!!

 

[Rebecca85]

This is the thing that's troubled me most, even more than digestive problems! More often the'can't get out of bed' feeling than 'run for miles'

 

[DanHerefordshire]

unfortunattly crohns does make you feel extra tired i find i need about 12 hours sleep a day while a normal healthy person has about eight i belive

 

[peaceandsmile]

Hello,

I am usually pretty energetic when outside or with others, but most of the time I just get tired, dozed off, or just lazy. My parents are usually appalled by the amount of sleep I have, usually more than 12-14 hours a day, and I still feel tired at times! Crohn's is wearisome!:O

kisses, Aya

 

[Artificial]

Hello,

The tiredness really gets me to - in fact just woken up from a 3 hour afternoon nap.

I find I really need about 12-15 hours a day but sometimes still feels like I haven't slept at all. I'm only 23 but feel like an old lady x

 

[PVail]

Hey nwood10
Energy level is a problem ,especially when you cant eat much . I find that i substitute with sports drinks as I used to do alot of cycling. It gives me a bit extra and keeps me going at work . I find difficulty sleeping generally although, I have just started using amitripyline and it is helping dull the pain.
You really have to make a huge effort sometimes to motivate yourself. I try to plan ahead to do stuff to give my day a purpose.

 

[barmybev]

I get tired easily I can go to bed get 10 hours sleep and get up feeling like I have done a night shift. Bev

 

[DanHerefordshire]

Hello,

The tiredness really gets me to - in fact just woken up from a 3 hour afternoon nap.

I find I really need about 12-15 hours a day but sometimes still feels like I haven't slept at all. I'm only 23 but feel like an old lady x

HaHaHa excact same here im early 20,s look about 18 but feel about 55

 

[Rebecca85]

Same here- 26, still get ID'd occasionally, but at the moment I'm hobbling like a little old lady because in a burst of energy I picked up my 2 year old neice and threw her in the air (and caught her ) and now my bum and thigh muscles are killing me!

 

[robbo87]

I have days where I feel like I've been hit by a train and really really struggle to get out of bed and do anything, but I do have the odd good day. In general I tend to need atleast 10-12 hours sleep and even then I end up needing a nap in the afternoon. For me the fatigue joined by aching joints/muscles is one of my main problems now. I was quite active at one point but I just don't have the energy anymore.

 

[nwood10]

I have days where I feel like I've been hit by a train and really really struggle to get out of bed and do anything, but I do have the odd good day. In general I tend to need atleast 10-12 hours sleep and even then I end up needing a nap in the afternoon. For me the fatigue joined by aching joints/muscles is one of my main problems now. I was quite active at one point but I just don't have the energy anymore.

So is aching joints and muscles a common symptom of Crohn's as well?

 

[dmarrs06]

I completely know the feeling. I just started taking Humira and I'm on Imuran daily and right now I'm feeling very fatigued and I have no energy what so ever!! I'm the type of person I want to feel better quick but this just isnt the case.

 

[PomeSutton]

Same ^ just on humira though. My energy levels are so bad i may be dropping out of uni mainly because of it.

 

[PlutoCronie]

The Rx meds I've been taking for most of the past year since my diagnosis is Colozal, a sulfur-based medicine. It helped boost my energy because it curtailed the inflammation but in some ways made me vaguely tired, but nothing too serious. What seems to be helping whether I take the Rx meds, or, not, is a combination of probiotics along with liquified vitamins (crushed in warm water). I've also added Vitamin D to my regimen of Multi and C. Been feeling rather well the past few days.

 

[tots]

Hit by a train is how I describe it. Usually I dont need alot of sleep- but, I had a really bad weekend symptom wise. Monday I took Steven to school and came home and slept again until 245. That tells me my body needs to do more healing. I can say for sure I am not in remission! Soon though, very soon!!


Lauren
:dance:

 

[ComaGirl]

nwood10 - I feel your pain, or in this case, your fatigue. I'm also newly diagnosed, although I had my first surgery 25 years ago. Another one of those undiagnosed cases for years.
Hit by a train pretty much describes how I feel right now. I can only guess that I was in remission for many years after that first surgery. So now the full throttle of Crohn's is hitting me. I don't like it at all.
So I've developed the gravy principle. I work from home. I don't plan fully packed days on top of each other and I save my energy for the most important things - like my daughter's 9th birthday. On any given day, I select two big things to accomplish - like a week's worth of laundry and updating safety criteria for work. After that, anything else I get done is what I call "the gravy."
I find with the gravy principle, I'm not as disappointed and discouraged anymore. I did set a goal, met it and anything extra was "gravy."
Trust me, I'm a go getter and learning to pull back is hard, really hard, but I'm learning.

 

[tlc-x]

Sometimes, I wake up and think yeah, I could run for miles! Lets do this! Get down the stairs and think nah, i'll just head for the sofa and sleep for the day.. I usually sleep 10 hours at night and around 5 hours a day most of time. But recently, since being on Amitriptyline, i've been sleeping 8 hours a night and managing fine with out naps.