Hi, i was diagnosed with crohns august 2011 and went on prednisolone straight away and came off it dec 2011. as soon as i came off it the symptoms came back. i thought they were withdrawal symptoms so didnt seek help straight away and it was the xmas break. i was bed ridden for about 2 weeks where i didnt eat at all. i went to see a dietician and started on the liquid diet but a week of that and i wasnt feeling that great. i saw the consultant and she put me on 20mg prednisolone a day which ive been on a week and azathioprine which ive been on 2days.
the problem is i still have no energy.since i stopped eating boxing day it hasnt come back. im basically bed ridden but do sit in the lounge a bit most days. if i shower i sleep for hours afterwards. its been over 3 weeks now with no energy and last time i was on pred it helped quickly and i was up at 4am cleaning cupboards (it was40mg a day then). i feel the symptoms of crohns are lessening - blood, D etc but the energy levels arent changing. the consultant said next week ill have my first weekly test for azathioprine and they will test my iron levels as i might need an infusion.
i spoke to her today as im still off work and worrying a bit and she has put me on 30mg pred a day for 2 weeks starting tomorrow. if im not better by monday ill have to go in to hospital and have IV steroids for 5 days. obviously i dont want to go into hospital.
has anyone had this sort of fatigue - where i literally could sleep 16 hours a day (before this i was very active and never slept in passed 7am) and im struggling to put one foot in front of the other? is it because i got weak before i started the drugs?
it wasnt this bad when i was diagnosed last year so i dont understand why my energy levels are so low and im bored of being in bed now and i need to walk my dogs and get back to work!
the problem is i still have no energy.since i stopped eating boxing day it hasnt come back. im basically bed ridden but do sit in the lounge a bit most days. if i shower i sleep for hours afterwards. its been over 3 weeks now with no energy and last time i was on pred it helped quickly and i was up at 4am cleaning cupboards (it was40mg a day then). i feel the symptoms of crohns are lessening - blood, D etc but the energy levels arent changing. the consultant said next week ill have my first weekly test for azathioprine and they will test my iron levels as i might need an infusion.
i spoke to her today as im still off work and worrying a bit and she has put me on 30mg pred a day for 2 weeks starting tomorrow. if im not better by monday ill have to go in to hospital and have IV steroids for 5 days. obviously i dont want to go into hospital.
has anyone had this sort of fatigue - where i literally could sleep 16 hours a day (before this i was very active and never slept in passed 7am) and im struggling to put one foot in front of the other? is it because i got weak before i started the drugs?
it wasnt this bad when i was diagnosed last year so i dont understand why my energy levels are so low and im bored of being in bed now and i need to walk my dogs and get back to work!
