Fecal caliproctine test level 227 ANA bloods 1-640

[kathleens]

Hi my daughter has taken unwell again started with face rash then vision problems lines on the paper at school all wavey, some letter grey when all written ment to be black, blurry vision all only at times . Then days later pustules on hands , and rash on face worse and now feeling week horrible and tummy pain. Has anyone else had anything like this.

Her fecal caliproctine test twice done level 227 were tested 7 months apart,,
ANA bloods 1.640
camera scope up and down NORMAL
Bowel MRI with mannitol drink NORMAL.

She is 13 years and had rash and joint pains for about 5 years .
thanks kathleen

 

[Farmwife]

Has she been tested for lupus? Is the the rash in a butterfly shape? Across the nose and spreads on the cheeks?
Has she been to an eye specialist. My Grace gets very sharp pains and her pupil will dilate for a few hours.

 

[kathleens]

Hi Farmwife
Yes we took Chloe the other day to the opticians and he said only went slightly short sighted since last test all looks healthy.
No the rash isnt over the nose , on cheeks and neck.
And nor sure if they have checked for Lupus.
thanks

 

[Crohn's Mom]

Is it possible that she's having an allergic reaction to something ?
Is there a new medication? Or food ? Or new laundry detergent ? etc..

sorry she's having trouble !
:hug:

 

[kathleens]

Hi Crohns mom
No dont think anything is different at all the only thing the doctors have said got a auto immune disease one thing they thought years ago was SAPHO syndrome which is very rare.
At xmas were looking into crohns and colitis because of the raised fecal caliproctine tests .

 

[CarolinAlaska]

Check into Behcet's disease. Does this sound like what your daughter is experiencing? I read about it earlier today because another person said they had that along with Crohn's. It is an autoimmune disorder. The two things that caught my attention were eye involvement and rashes (pustules).