Hi ,
I have had UC for over 15 years and arthritis in my spine for 3 yrs.
this is not about me though , I am under control ish but general don't have I me to think about my ails, I really need advice nd thoughts or my seven year old daughter. G is the second child and has an older sibling 10 , another sister 4 and a brother 3 all from same gene poole .
G has been ill for many years , started itch acte tonsillitis followed by glandular fever. Always had the odd tummy problem nd always aching knees.
We are under Gt Ormond St Hospital Rhemotology department as local hospital referred as pediatrician suspected Vasculitis .
Bloods really show nothing exciting.
Symptoms
Mouth ulcers
Aching knee and ankle joints - sometimes lead to onset of agonising pain that lasts got ten minutes to five plus hours?
Eye sight over night became blurred and the muscle in one eye stopped working with the other, on second pair of specs . She had a severe headache and then this happened.
She has rashes that appear and nodules left behind at sight of pain.
Now we have had a lot of test and where in hospital on the 22 July where a stool sample was taken . Get to that in a mo.
consultant mentioned she thought it could be Bechets - a very rare vasculitis .
On the 9 th August her bowel stopped working . Saw GP - movical. Nothing ! Stabbing pains and really ill, didn't eat , move , just was in agony . Took to hospital and they gave morphin for pain and tried an enema , didn't work. Then she was put on 12 sachets of movical . Four days later I had to manual remove blockage . She felt sick , hot etc.
we have been waiting for bone marrow and mouth ulcer biopsies to be done, when last week I got an email telling me her fecal calprotein was high and that she would see what gastro thought. Within a day I recieved a call and she is now having endoscopy , colonoscopy and bone plus ulcers together.
I am really behind the times and had never heard of this test ? Checked it out and suddenly felt like CROHNs was hitting me in the face. I know a lot about my illness but not much about this evil?
Could it be , do you get agonising pain in varies joints body parts.
Please if you have any thoughts let me know , grateful for any info x
I have had UC for over 15 years and arthritis in my spine for 3 yrs.
this is not about me though , I am under control ish but general don't have I me to think about my ails, I really need advice nd thoughts or my seven year old daughter. G is the second child and has an older sibling 10 , another sister 4 and a brother 3 all from same gene poole .
G has been ill for many years , started itch acte tonsillitis followed by glandular fever. Always had the odd tummy problem nd always aching knees.
We are under Gt Ormond St Hospital Rhemotology department as local hospital referred as pediatrician suspected Vasculitis .
Bloods really show nothing exciting.
Symptoms
Mouth ulcers
Aching knee and ankle joints - sometimes lead to onset of agonising pain that lasts got ten minutes to five plus hours?
Eye sight over night became blurred and the muscle in one eye stopped working with the other, on second pair of specs . She had a severe headache and then this happened.
She has rashes that appear and nodules left behind at sight of pain.
Now we have had a lot of test and where in hospital on the 22 July where a stool sample was taken . Get to that in a mo.
consultant mentioned she thought it could be Bechets - a very rare vasculitis .
On the 9 th August her bowel stopped working . Saw GP - movical. Nothing ! Stabbing pains and really ill, didn't eat , move , just was in agony . Took to hospital and they gave morphin for pain and tried an enema , didn't work. Then she was put on 12 sachets of movical . Four days later I had to manual remove blockage . She felt sick , hot etc.
we have been waiting for bone marrow and mouth ulcer biopsies to be done, when last week I got an email telling me her fecal calprotein was high and that she would see what gastro thought. Within a day I recieved a call and she is now having endoscopy , colonoscopy and bone plus ulcers together.
I am really behind the times and had never heard of this test ? Checked it out and suddenly felt like CROHNs was hitting me in the face. I know a lot about my illness but not much about this evil?
Could it be , do you get agonising pain in varies joints body parts.
Please if you have any thoughts let me know , grateful for any info x
