Feeling down and out

[Manzyb]

Right after my surgery on Thursday I was doing really well. Bowel movement within 36 hours, catheter removed, getting up out of bed, NG removed 2 days after. It all seemed to be doing really well. Yesterday morning they took my PCA pump away and have been switched to Percocets. Holy crap. I feel awful. They ended up giving me diluadid shots between percocets for breakthrough pain, but man, even with the two of them, I have this horrible pain on my right side that is worse than any kidney stone I've ever had. I'm getting fairly discouraged. I thought I was doing really well, but the pain is very hard to handle.

Yesterday I started trying to walk some. I haven't gotten very far very much. I get extremely tired/light headed and nauseous. I move very slow and just can't do much.

I'm feeling a bit depressed. I knew this was going to be hard, but I thought I was ahead of the curb and doing great.

Yesterday, they brought my baby by for the first time. She saw me and smiled so big and immediately started crying and grabbing for me. It broke my heart. She wanted me to hold her so bad and i couldn't. I had my hubby hold on to her and i was squeezing her and kissing her, but she kept trying to crawl into my lap.

This is hard!

 

[chrisnsteph1022]

So sorry to hear you're in so much pain.

 

[hawkeye]

Maybe it's a reaction to the medication. I had dilaudid when I had an obstruction and found it made me extremely lightheaded and somewhat nauseous to the point where even reading in bed made my head spin worse.

 

[handle]

Yeah there's always a big dip after doing well for a bit...
It's such a big journey when you've been crook for a long time and had such a big emotional challenge as well as physical!
You will pick up again. Take it easy and think peaceful thoughts if possible.
All the best.

 

[DustyKat]

Hey Amanda...(((MEGA SQUISHY HUGS)))...:ghug:

Matt and Sarah seems to have had a little easier time of things but it was hard hun. They kept Matt in hospital for 8 days even though he was progressing well and I know he started to hit a wall then and by 3 weeks out from surgery he was really down. I think he thought that he would have the op and recovery would be fast and all would be back to normal. He had pain on movement for 3 weeks post op and found it difficult to move, cough and sneeze. It was at the beginning of week 4 post op that everything fell into place. He could move freely and emotionally he was a different boy, shades of him emerged that I haven't seen in years.

If you feel the pain is out of proportion to what it should be then speak to the surgeon/docs about it.
Don't underestimate the effect that chronic/acute pain can have on you hun, it can be very debilitating so don't be hard on yourself and that coupled with being away from Sadie, well it's no wonder you are feeling blue. As hawkeye has said too, it may be the meds casuing some of the issues you have as well.

You ARE doing really well Amanda and once the pain is under control you will be on top of things again.

Thinking of you, :heart:
Dusty. xxxxxxxx

 

[Jin]

I'm sorry you're not feeling well! :/
It seems, like DustyKat said, it's just the pain slowing you down. Your body will
adjust and you'll improve like you were! Stay strong and take it a day at a time.
Make sure the lightheaded-ness isn't a slight allergy you may have to the pain meds. And don't push yourself TOO much just to try feeling better faster. Take it easy and rest.

Hope this message finds you at least a little bit better ♥

xoxox

 

[Manzyb]

Thank you guys!

I know, I am doing really well! It seemed like the first 3 days went quick and they were all saying how great I was doing. I think I fooled myself into thinking I was feeling great on day 4 and was rudely awakened!!

@Dusty, I hate that for Matt and Roo, but I'm glad to know that it really will take time. The docs all tell you it will take time, but coming out of the gate doing so well, I think I tricked myself. Oh well! I think they are going to bring Sadie to see me tomorrow, or we might try to Skype with her from here. She recognized my husband on skype last week, so we're going to see how it goes! LOL I just don't want her to be here at the hospital and catch something nasty. Although, I think if I have to stay here longer, she might just have to come visit me. I miss that chunky little butt so much. I've got pictures hanging everywhere of her, but it's just not the same!

Thank you for all the encouragement. It really does help when going through such a rough time!!

Oh... and the pathology came back on the part of the intestine they took out, they said it was all consistent with Crohn's and no signs of cancers or anything else! I hadn't even thought of all of that, but they had it in their report today

 

[Jin]

Glad to hear on the improvement and the good news on the pathology (minus the Crohn's, nobody likes that news lol).

Wishing for your speedy recovery and that you see your little girl soon!

 

[DustyKat]

Awww, I can well imagine how much you miss your precious baby...:hug:

Don't worry about the mention of cancer in your path report, that is standard procedure, a part of the process of reporting on the specimen they receive. It was also mentioned on Sarah's and Matt's pathology reports. Stiill good to know all is clear though!

Take care hun, :Karl:
Dusty. xxxxxxxx

 

[Manzyb]

I know! Hadn't really thought about it, but glad it came back with "just crohn's" I just thought that was cool they checked all of that.

 

[moogie]

Pain is a real B****!

Stay strong it will get better. We all know pain well and it's hard when you have to feel it.

We are all here for you!

 

[Emily]

It is definitely tough in that time in the hospital before you get to go home. I was so miserable and fatigued and depressed. This is, in my opinion, just a stage of your post surgery healing and definitely the worst stage. Just get your pain under control and get home soon cause everything will be looking a lot better when your at home eating mashed potatoes relaxing with your baby

Keep having a speedy recovery!