Feeling like poo all the time =(

[kyi]

feeling like poo all the time =(

hey all

i know everyone prob feels like this all the time too but i just cant seem to shake the whole "im alone" feeling. Im tired, hurting, depressed, angry and just in general pain. Im newly diagnosed and at my recent mri scan met a man who has basically scared the living crap out of me.He told me how rubbish his life is and how he has no support and cant eat anything etc. I just seem to get people who dont understand how serious this can be and they seem to think that it dont effect my life when it bloody does, im on the toilet 20+ times a day (not so much since iv been taking entocort) iv had a flaire up since starting my med and they put me on Prednisone 40mg a day, iv now finished this corse of them, but i cant stop sweating night and day, im boiling hot changing clothes alot and starting to smell, its making more depressed im on a high dose of sertraline already 200mg a day. I dont want to go near my partner cause i just feel "dirty" all the time, i sleep on the sofa cause i soak our bed right through. My sons 18months and i can feel itg effecting him alot already.Im scared to go out in case of an accident again and my sweating is just embarrasing people watching me all the time.I also cant stop itching so bad im making myself bleed, sorry for rambling on iv found this a bit of a realise. nay comments or feedback would be amazing thanks
kyi xx

 

[glum chump]

Hi kyi

I'm so sorry that life is so hard right now. This disease can be really isolating and scary and even though we have people around us, life can be really lonely.

For a long time, I felt a lot like you and the man you met. It felt like no drugs would work and because of the number of times I would have to go to the bathroom, I stopped leaving my home. I felt trapped by my life and lost a lot of joy. It takes time to step out of this place, but it is possible!

In terms of your sweats, I wonder about two things: one, I wonder if the sweats indicate that your inflammation is still active. Do you have a temperature at all? The other thing that I'm thinking is whether the Sertaline (that's Zoloft, right?) is causing the excessive sweating. I know from a couple of other people who've been on Zoloft is that they experienced a lot of sweating. You might want to check in with your doctor about the sweating since it seems to be really affecting your quality of life at the moment.

It does get better, kyi. I imagine that it's probably really hard to hear of believe that things will shift, but it will. Hang in there.

Cheers,

Kismet

 

[silvermander]

First off, breathe, you are NOT alone!

When I was on prednisone I was always a sweat ball and it sucked. There's little to do about it, but you really should talk to your doctor about it.

A bit about me - I was diagnosed about 30 years ago, I'm 38 now. So it is possible to go through all this crap and survive it. I won't say I'm thriving right now as I just went through my 6th small bowel resection. This time I also had an insane fistula and a 6X8cm abscess! My surgeon believes in open wounds that heal from the inside out, so as of today, I've had open abdominal wounds on my belly for one month. One is almost to the point of sealing up, the long one down the center is about 18cm. I have 217cm of small intestines left.


I'm not telling you all this to be smug about all I have gone through with Crohn's, I'm showing you that you can do anything! Yes, this all sucks and we all have huge 'WHY ME?' days. It hurts, we feel miserable, want to blame the world, think it's just us dealing w/ all this crap and want to crawl under a rock until it's fixed. For me it's late at night, after everyone's asleep and I'm still wide awake. The silence gets my mind spinning and I can pull myself down deep wallowing in self pity. All of this upset and worry can make us feel worse physically. It's hard to keep our chins up most of the time, but it does help in keeping us feeling better in the long run.

If the side effects of the prednisone are too much, talk to your doctor! There are other meds out there that work like prednisone, but without most of the horrid side effects. If you're that sweaty and feeling that bad, talk to your doctor.

 

[kyi]

thanks for both reply, its justb all so new to my life, ajnd changing my life style and habbits are being very hard, i dont know or understand enough about this dieses to talk about it really, i just know keys points. Iv got drs tomo so will speak to him about all my points that i have made, just the last time i went they just dont seem to know either, so i thought speaking to people that have been/going through this aswell, may get better answers. Thanks for the reply and hope ur both feeling good today =)