Feeling so defeated.... Need help

[Nikibeach]

I have been sick for 37 days, lost 10 lbs and am down to 107 lbs. I'm losing weight daily. I went to six different doctors who seem to know very little about what's wrong with me. One put me on cipro for 10 days pain killers and stuff to stop my stomach from cramping. When that didn't work he put me on a different antibiotic for another ten days which also did nothing. On Friday I got a call from the doctor who said he believes I have Crohn's and am scheduled to see a specialist in 7 days. I know little about Crohn's but from what I read I have most of the signs and symptoms. Every time I eat or drink anything my stomach cramps so painfully, bloats and hurts then I need to rush to the washroom to expel it out. Usually within ten minutes of eating or drinking. It is a runny liquid stool and hasn't been solid in 37 days. I'm going on average 20 plus times a day. I'm woken up nightly 2-3 times as well. It feels like I don't even digest food anymore. I'm so weak and fatigued by this I can barely function. I have no appetite what so ever cause my stomach always hurts. Is there anything I can eat to help this or at least something that will keep me from starving to death until I can see the specialist? I have been taking vitamin B12 injections and gummie multivitamins but I feel so terrible still. I am hoping to find some answers on how I can take eat or drink to keep myself somewhat healthy for the time being. I can't take time off work and it doesn't seem like I can ever get enough rest, I'm physically drained and an emotional wreck. Any suggestions would be extremely appreciated..

 

[Clash]

Welcome to the forum so sorry to hear of all the problems you are having right now. Have you kept the doc that thinks you may have CD informed of your increasing symptoms and weight loss?

Some use nutritional shakes to keep their calories up while flaring. The ones available over the counter would be like Boost or Ensure but you can also find some that are more orgainic like orgain shakes.

Is there any possibility of getting your appointment with the specialist moved up? If things get to be too much a trip to the ER may be in order to ensure you aren't dehydrated and such.

I hope you find answers and relief soon.

 

[Jennifer]

Hi Nikibeach and welcome to the forum!

So sorry to hear that you aren't doing well. I agree with Clash to let your GI know that your symptoms are getting worse and hopefully that will help get you an appointment sooner. Also ask to be put on the cancellation list in case someone cancels their appointment. Definitely go to the hospital if things get too hard to handle.

For food you could try the low residue diet or the BRAT (bananas, rice, applesauce and toast, not just those 4 things but basically super bland) diet but if food is getting too difficult to get down then I agree with trying some supplement drinks for now to give your bowels a rest yet still get some nutrients. Keep up your fluid intake as well.

I hope you start feeling better soon and please keep us posted on how you're doing. :hug:

 

[kolitha]

Hi nikibeach hope you are getting better now!

i have even faced a similar situation like you. its best to start eating food which are very esay to digest. when i had the symptoms i just ate rice and very well cocked vegetables with no oil. bread made my symptoms worse so i gave up eating it completely. fish was the best protein option for me. stop consuming alcohol and cigarettes if you are using them.
good luck with your Doctors appointment!!!

 

[Nikibeach]

5 more days till the specialist appointment!!! I tried eating bland food but it all seems to affect me the same. It feels best when I don't eat at all (, however I don't have anymore weight I can afford to lose. Is there anything I can take to stop the cramping bloating and diarrhea? I tried pepto bismal and another type like that (Imodium) that didn't work.

 

[hingrum]

I understand how you feel. My stomach can get cramped and nauseated by just drinking water. Unfortunately, all of the remedies that work for me are prescription meds. I would try to drink clear liquids (broth, jello, tea, coffee w/no dairy products) in small portions until your doctors appt. You do not want to get dehydrated and have to be hospitalized. I wish I had a better solution for you, but all of those symptoms are part of the disease. Medications prescribed by the specialist will help manage those symptoms if you are diagnosed. As bad as your symptoms are, it seems like they need to be medically managed before any home remedies will work.

 

[Jennifer]

5 more days till the specialist appointment!!! I tried eating bland food but it all seems to affect me the same. It feels best when I don't eat at all (, however I don't have anymore weight I can afford to lose. Is there anything I can take to stop the cramping bloating and diarrhea? I tried pepto bismal and another type like that (Imodium) that didn't work.

Going on a liquid diet may help. You could drink supplement drinks like Ensure etc and you could make soups and drink the broth. The BRAT (bananas, rice, applesauce and toast) diet can also help when you have diarrhea but you still have to try and keep your nutrients up and if it still hurts to do a soft diet like that then liquids may be best. Increase your fluids as well when you have diarrhea because you're losing a lot of water.

 

[sammybeggs]

Buscopan for cramping!

 

[kurtflies12]

What they said girl. You have to eat something. Something that is easy on your tummy. Applesauce, bananas, jello, broth . Cranberry juice worked for me. Find something that you can keel down and in. I know how hard it is. I had the runs for nine days and lost 10 pounds myself, before I figured out that I had Crohns. Make sure your GI has some experience with this illness. Don't use a normal family doctor. You need someone that knows this disease and has treated others. Don't be his first subject . Most of all don't let this get you down. There are thousands of us out here and hundreds on this site that are more than willing to help you get thru this stage. Search this site and you will find some relief .

 

[yellowamc]

Im sorry I know how u feel. I get the same way where I don't wanna eat anything at all. I know for me when I get like that rice seems to be a pretty safe food. I can remember getting to where all I ate was carrots potatoes rice and chicken. Now what I have found is best for me when I feel like that is lean hamburger and plain white rice just cooked and mixed together. I hope this helps and that u feel better.