- Joined
- Feb 23, 2012
- Messages
- 180
I was going to update last night when I got home but I was so mad.
We were told to wait Kotas weekly labs until after he seen Gi yesterday in case he wanted to add more on top of weekly ones and magnesuim.
Gi was seeing both boys yesterday Sky at 3:15 and Ko at 3:30. So we get there about 3. I hate to run late. I know its always going to take a while at this office and I am okay with that. When Ko gets restless I always tell him well they are running late because some other child needs extra care and I would want someone to be patient and understand if your appointment rans longer than it should and they had to wait. So we are sitting there waiting and waiting.
Finally at 4 I asked front desk Can you tell me when lab downstairs closes. I get told I am not sure maybe like 6 :ybatty: I know thats not right. Its 4:30 or 5. We finally get into a room at 4:15. We wait until 4:30 I call lab downstairs and they close at 5. We have still yet to see nurse or Dr. So I walk back out and talk to lady at checkout. She calls nurse and nurse says she will come talk to me. She tells me to take Ko downstair and then come back but to leave Sky in case Dr comes in before we get back. Thank goodness Steve was there to stay with Skyler. She comes and brings lab sheets for just Magnesium check. I was like thats not all that needs to be done. I said I need sheet for his weekly cbc, hep panel, ggt and I want to see if he will check his VitaminD, and B12. She says is there anything else. I said yes there is he can go ahead and check all vitamin levels. We get down to lab at 4:50. The lab tech that always does Ko labs says I was so worried about you because you had not came in yet. She said I looked to make sure I didnt miss you or that you werent in the ER:kiss: We love her she is the best.
We get back to exam room at 5:15 and Dr still hasnt been in to see Skyler. Finally at 5:25 he comes in and he is just as nice and friendly as can be. Made me rethink changing doctors for a split second and I do mean second. Then he looks at Ko and says you look great. Still dont look like a kid with Crohns disease:yfrown: So he ask Ko how he is feeling and he tells him his tummy still hurts but it hurts everyday. Doc says I want to scope him ASAP. I said well I want to figure out this heart rate before we do anything. And Doc says well I have no idea about his heart rate or what might be causing it. :sign0085: I realized at that point for sure I am in the room with a dumb ass. He says depending on what the scope says we will have to figure out what the next step is. Once again I said I want the heart rate under control first. Then I asked what is the next step after the scope is done. (I know he isnt going to be scoping him anyways) He says I dont want to discuss that in front of the kids. So I said okay when you finish Skylers exam the boys can go play games in the waiting room and we can talk..
He looks at Skyler and says well you look good. I havent ever seen a 6ft 200lb Crohns patient before. He said your chance of having Crohns is higher than mine because I have no one in my family with Crohns or IBD and you have Kota:ywow: but I think you are fine. So I ask the boys to go to the waiting area.
I ask Dr so what will the next step be? And this is what he said to me.. It really took everything I had to not go completely off on this guy. He said well I know its sometimes hard to not treat Ko differently. Some kids crave attention. Uh yeah okay. He said I am thinking maybe thats what Kota is doing because his labs arent THAT BAD. He always has a smile and doesnt look like a Crohns kid. I had to pick my jaw up off the ground. I said okay so you are telling me Kota is faking his pain. He says well I just know how kids can be. I said well its clear you dont know my child. I said Kota gets his maddest when people are doing for him and asking him if he is okay. The thing he worries about is people being able to tell he is sick. I said well I dont agree with you. How would he fake a high heart rate
How would he fake a fever of 103 for a week :emot-nyd: Why would he throw up everyday? Why would a 12 year old boy give up all his favorite and I doo mean favorite foods if he is faking. Why and how would he fake having a full blowout of watery poop all over himself when we left ER. Which totally broke Kotas heart. He said I know you have called in a few times and talked to my nurse. Uh yeah I have more than a few times. Dr says I know you also told my nurse that Ko asked if you thought he felt like his Pop did when he died. He said I dont think he was really worried about that at all.. He said I dont think its that bad. I said he said that when he was first dx and scared to death. I asked well if its not that bad why is he on 6mp? Dr says well I am afraid to take him off it and rock the boat. I said well something you have done has now made his heart rate way to high and that needs to be addressed. He says well I really dont know what has made it that way. I said you tell me he needs to be a NORMAL 12 year old. How can we do that when he cant ride his bike 50 ft without having a heart rate of 200 an dhim almost falling off his bike. How can he do normal things when he cant shoot 3 basketball hoops without a heart rate of 160. How normal can he be treated. He says well I really dont know. Really I mean really is that all you can say is I dont know. I so wanted to say I am a bit confused here can you tell me is there anything that that you know about anything.
So yeah the appointment was not good. And I am thanking God that we dont have to go back and see him. How could a child really fake all this..
How would you have reacted or has anyone ever went through this. I still get so upset just thinking about the dr.
We were told to wait Kotas weekly labs until after he seen Gi yesterday in case he wanted to add more on top of weekly ones and magnesuim.
Gi was seeing both boys yesterday Sky at 3:15 and Ko at 3:30. So we get there about 3. I hate to run late. I know its always going to take a while at this office and I am okay with that. When Ko gets restless I always tell him well they are running late because some other child needs extra care and I would want someone to be patient and understand if your appointment rans longer than it should and they had to wait. So we are sitting there waiting and waiting.
Finally at 4 I asked front desk Can you tell me when lab downstairs closes. I get told I am not sure maybe like 6 :ybatty: I know thats not right. Its 4:30 or 5. We finally get into a room at 4:15. We wait until 4:30 I call lab downstairs and they close at 5. We have still yet to see nurse or Dr. So I walk back out and talk to lady at checkout. She calls nurse and nurse says she will come talk to me. She tells me to take Ko downstair and then come back but to leave Sky in case Dr comes in before we get back. Thank goodness Steve was there to stay with Skyler. She comes and brings lab sheets for just Magnesium check. I was like thats not all that needs to be done. I said I need sheet for his weekly cbc, hep panel, ggt and I want to see if he will check his VitaminD, and B12. She says is there anything else. I said yes there is he can go ahead and check all vitamin levels. We get down to lab at 4:50. The lab tech that always does Ko labs says I was so worried about you because you had not came in yet. She said I looked to make sure I didnt miss you or that you werent in the ER:kiss: We love her she is the best.
We get back to exam room at 5:15 and Dr still hasnt been in to see Skyler. Finally at 5:25 he comes in and he is just as nice and friendly as can be. Made me rethink changing doctors for a split second and I do mean second. Then he looks at Ko and says you look great. Still dont look like a kid with Crohns disease:yfrown: So he ask Ko how he is feeling and he tells him his tummy still hurts but it hurts everyday. Doc says I want to scope him ASAP. I said well I want to figure out this heart rate before we do anything. And Doc says well I have no idea about his heart rate or what might be causing it. :sign0085: I realized at that point for sure I am in the room with a dumb ass. He says depending on what the scope says we will have to figure out what the next step is. Once again I said I want the heart rate under control first. Then I asked what is the next step after the scope is done. (I know he isnt going to be scoping him anyways) He says I dont want to discuss that in front of the kids. So I said okay when you finish Skylers exam the boys can go play games in the waiting room and we can talk..
He looks at Skyler and says well you look good. I havent ever seen a 6ft 200lb Crohns patient before. He said your chance of having Crohns is higher than mine because I have no one in my family with Crohns or IBD and you have Kota:ywow: but I think you are fine. So I ask the boys to go to the waiting area.
I ask Dr so what will the next step be? And this is what he said to me.. It really took everything I had to not go completely off on this guy. He said well I know its sometimes hard to not treat Ko differently. Some kids crave attention. Uh yeah okay. He said I am thinking maybe thats what Kota is doing because his labs arent THAT BAD. He always has a smile and doesnt look like a Crohns kid. I had to pick my jaw up off the ground. I said okay so you are telling me Kota is faking his pain. He says well I just know how kids can be. I said well its clear you dont know my child. I said Kota gets his maddest when people are doing for him and asking him if he is okay. The thing he worries about is people being able to tell he is sick. I said well I dont agree with you. How would he fake a high heart rate
How would he fake a fever of 103 for a week :emot-nyd: Why would he throw up everyday? Why would a 12 year old boy give up all his favorite and I doo mean favorite foods if he is faking. Why and how would he fake having a full blowout of watery poop all over himself when we left ER. Which totally broke Kotas heart. He said I know you have called in a few times and talked to my nurse. Uh yeah I have more than a few times. Dr says I know you also told my nurse that Ko asked if you thought he felt like his Pop did when he died. He said I dont think he was really worried about that at all.. He said I dont think its that bad. I said he said that when he was first dx and scared to death. I asked well if its not that bad why is he on 6mp? Dr says well I am afraid to take him off it and rock the boat. I said well something you have done has now made his heart rate way to high and that needs to be addressed. He says well I really dont know what has made it that way. I said you tell me he needs to be a NORMAL 12 year old. How can we do that when he cant ride his bike 50 ft without having a heart rate of 200 an dhim almost falling off his bike. How can he do normal things when he cant shoot 3 basketball hoops without a heart rate of 160. How normal can he be treated. He says well I really dont know. Really I mean really is that all you can say is I dont know. I so wanted to say I am a bit confused here can you tell me is there anything that that you know about anything.So yeah the appointment was not good. And I am thanking God that we dont have to go back and see him. How could a child really fake all this..
How would you have reacted or has anyone ever went through this. I still get so upset just thinking about the dr.
