Hi,
I'm new to your fabulous Forum. Thank you for having this.
I'm 52 y.o. and have been dealing with IBS since about 15 years old. Over the years my symptoms increased, along with the pain, the bleeding etc... In May 2010 I became very ill with non-stop bowel movements, severe bleeding, decreased energy and massive weight loss, about 30 pounds in 1 month. By July I was driven to the ER because of the bleeding. After waiting around (all the while running to the bathroom every 10 minutes) for 5 hours, they send me home with acid reflux medicine???? Shocked and upset I told them I'd be back tomorrow, which I was. Then finally a nurse who listened to all my symptoms said we have a gastro specialist on site today, I'm going to grab him. After discussing my story with him, he booked me in for a colonoscopy and a scope down my throat (as I have had serious upper GI problems for years).
The results came back as Crohns in 3/4 of my colon, along with a Barretts Esgophogus and intestinal metaplasia in my upper stomach. I have been telling my GP for years that there is something seriously wrong with my GI system, they put it down to IBS.
They first put me on Prednisone, 50mg per day for 7 days, then a slow taper off to 0. I've been on Salofalk, (8 pills per day at 500 mg each pill) now for 10 months which has controlled it for the most part. I also take Iron supplements Liquid form, triple dose of Vit. D, along with massive doses of Acidopholis and a high oxy formula.
I see a blood scientist 2x per year, he looks at my blood and tells me exactly what I need and where I'm lacking. He is the one who recommended the iron, acidopholis, vitamin D and oxy formula. I have more confidence in him, than I do most doctors. I'm just lucky to have someone in my small town who does this for a living.
It's been a whole year of real trial and error, as far as what I can and can not eat, I'm still trying to sort that out a bit, but for the most part it's at least manageable.
Your Crohn's Forum is a great help to all of us. It's very difficult for most people to even remotely understand just how difficult this disease is to control, not to mention tolerating the pain.
Thank you for listening.
BrendaM:heart:
I'm new to your fabulous Forum. Thank you for having this.
I'm 52 y.o. and have been dealing with IBS since about 15 years old. Over the years my symptoms increased, along with the pain, the bleeding etc... In May 2010 I became very ill with non-stop bowel movements, severe bleeding, decreased energy and massive weight loss, about 30 pounds in 1 month. By July I was driven to the ER because of the bleeding. After waiting around (all the while running to the bathroom every 10 minutes) for 5 hours, they send me home with acid reflux medicine???? Shocked and upset I told them I'd be back tomorrow, which I was. Then finally a nurse who listened to all my symptoms said we have a gastro specialist on site today, I'm going to grab him. After discussing my story with him, he booked me in for a colonoscopy and a scope down my throat (as I have had serious upper GI problems for years).
The results came back as Crohns in 3/4 of my colon, along with a Barretts Esgophogus and intestinal metaplasia in my upper stomach. I have been telling my GP for years that there is something seriously wrong with my GI system, they put it down to IBS.
They first put me on Prednisone, 50mg per day for 7 days, then a slow taper off to 0. I've been on Salofalk, (8 pills per day at 500 mg each pill) now for 10 months which has controlled it for the most part. I also take Iron supplements Liquid form, triple dose of Vit. D, along with massive doses of Acidopholis and a high oxy formula.
I see a blood scientist 2x per year, he looks at my blood and tells me exactly what I need and where I'm lacking. He is the one who recommended the iron, acidopholis, vitamin D and oxy formula. I have more confidence in him, than I do most doctors. I'm just lucky to have someone in my small town who does this for a living.
It's been a whole year of real trial and error, as far as what I can and can not eat, I'm still trying to sort that out a bit, but for the most part it's at least manageable.
Your Crohn's Forum is a great help to all of us. It's very difficult for most people to even remotely understand just how difficult this disease is to control, not to mention tolerating the pain.
Thank you for listening.
BrendaM:heart:
