Finally something works!

[Swirl]

Well I've been taking Hydrocortisone Rectal Suspension for 8 days now and this is the second day I haven't had any blood or D or anything else! I've had non stop bloody D since October.
I go now once a day lol like it should be! And everything is normal.

I'm glad it stopped everything fast because usually from what I read is that after 21 days or a month, you get taking off to see if it comes back. I'm hoping everything heals up before I come off it.

Left Sided Colitis with hemorrhage bleeding for a year and a half. It went into remission twice for two months last year with no help of any drugs or diet. Hopefully its mild colitis.

Prednisone didn't work this fast for me.

I feel normal again. It feels great

 

[DustyKat]

That's great to hear! I so hope it stays that way for you!


:goodluck:


Fingers and toes crossed,
Dusty

 

[bushydougie]

Great to hear some more good news! Long may it continue

 

[ameslouise]

Swirl that's great!!! I hope it lasts and you continue to feel good!

It's nice to hear a positive note in your voice!

-Amy

 

[Entchen]

Keep on feeling better and better!

 

[Swirl]

Yes, I didn't expect it to work much, I was in such a bad condition for a long time.
So far no side effects.

Trying to eat good again. Getting help from people on youtube also!

 

[Astra]

YAY!

we love good news!
stay well Swirlie
xxxxx

 

[Swirl]

Not again.

OK now I have a problem.
I'm getting a lot of small bumps on my cheeks. This is like Prednisone.
I skipped taking the drug yestarday because of this and today wont be taking it.

I don't know how someone can continue taking this with this acne side effect you get around your upper body.

It was bad when I was on Prednisone and I really don't want to go through it again.

Its hard to go out in public with hundreds of red bumps on your face and arms and neck.

 

[Joyce]

Swirl you can't just stop taking prednisone I never had the bumps on prednisone only when I started taking Imuran (only on it for a month) had a rash so Dr changed me to 6mp have bumps on my face not to bad. But my hair is getting thinner I think not sure if it's the meds or the new Wen hair product.

 

[Swirl]

I'm taking Hydrocortisone Enema right now. I've stopped taking prednisone at the end of june (on it for 4 weeks, er doctors gave it to me) and my GI doctor knew this because he didn't want me on it. So without slowing it down or anything I had no more and he didn't lower the dose, nothing happen that I know of but this drug is the same.
I just had it with these drugs. I'll just end up the same once off it and horrible after taking it for sometime.

The bumps I've gotten on my back, chest and arms before, I see it appear again on my face now so I'm not going through it again. That'll be the last time I'll post about a drug, not taking any new ones. and this maintenance drug (pentasa) is a big question mark.
These are the drugs I'm on.
http://img85.imageshack.us/img85/2677/drugsg.jpg
Only drugs that do something only make things worst in IBD.

 

[Joyce]

Have you ever taken 6mp that's what my dr has me on now only with asacol I also take folic acid, bentyl, vitamins and b12 2500 mcg and found some probiotics from publix's I going to try. Tried imuran for a month but couldn't take it. I did take azulfidine for 20 years then he put me on Asacol for my small bowel but it must not have worked to well because i just had to have surgery in May. I just feel so tried sometimes and I hate feeling like that. Of course after reading on here I really don't have it too bad I guess I just tried of it running my life scared to go anywhere. If go anywhere I always want to know where and if my husband wants to stop anywhere else which he usually does I never want to just want to go back home. Sorry I just needed to get this off my chest to somebody who understands. So glad I found this site.

 

[DustyKat]

Hi Joyce and :welcome:

I'm glad you found this site too. Sounds like you've had a long journey with your Crohns. When you feel ready, do you think you might like to start a thread in the Your Story forum so it is easier for people to find and welcome you? This is a great place with heaps of friendly and knowledgeable people and with your years of experience you would be a wonderful asset. I hope you have recovered well from your surgery.

Welcome aboard!

All the best,
Dusty

 

[ameslouise]

Swirl, I am sorry to hear that you are giving up on the enemas after they gave you such great relief!

Most every drug has a side effect, some are worse than others. Don't give up on feeling better because of vanity.

And you can't just stop taking prednisone - whether oral or enema - cold turkey. It can really mess with your adrenal gland and cause serious damage.

You still sound depressed IMO, and like you haven't come to terms with your disease or the treatments necessary to get it under control. Please don't give up. It is possible to live a good life with UC, but you will likely need drugs to do it.

Hang in there. - Amy

 

[Swirl]

Have you ever taken 6mp that's what my dr has me on now only with asacol I also take folic acid, bentyl, vitamins and b12 2500 mcg and found some probiotics from publix's I going to try. Tried imuran for a month but couldn't take it. I did take azulfidine for 20 years then he put me on Asacol for my small bowel but it must not have worked to well because i just had to have surgery in May. I just feel so tried sometimes and I hate feeling like that. Of course after reading on here I really don't have it too bad I guess I just tried of it running my life scared to go anywhere. If go anywhere I always want to know where and if my husband wants to stop anywhere else which he usually does I never want to just want to go back home. Sorry I just needed to get this off my chest to somebody who understands. So glad I found this site.

I never was on 6mp. I haven't heard of it. I hope its not another steriod drug.
If taking these drugs haven't helped in decrease ibd after all these years, I wouldn't take it. I would think what works for most people or everyone is the right drug but theres none. So I don't believe in taking any of these drugs the doctors prescribe to me.

So far I'm doing good. The bleeding came back but not much and I don't always go normally.
This is a tricky disease.

 

[Swirl]

Swirl, I am sorry to hear that you are giving up on the enemas after they gave you such great relief!

Most every drug has a side effect, some are worse than others. Don't give up on feeling better because of vanity.

And you can't just stop taking prednisone - whether oral or enema - cold turkey. It can really mess with your adrenal gland and cause serious damage.

You still sound depressed IMO, and like you haven't come to terms with your disease or the treatments necessary to get it under control. Please don't give up. It is possible to live a good life with UC, but you will likely need drugs to do it.

Hang in there. - Amy

I'm taking another change with just stopping this enema drug. Been on it for 8 days I think. I'm ok now.

But steriods I would have to avoid because I've always had problems with acne, this summer has been much less. I will have to stay away from anything that gives me acne that I know of, and it got so bad that people would afraid to go near you because it looks so creepy to have all these acne bumps from prednisone on you. Thats really something you don't see in public lol.

Really, that would make me so depress and want to commit suicide one that. I really don't need anything that does that too me. That's too sensitive for me to deal with.


But....I'm going back on probiotics. And it has helped me before. So I have something to look forward too.