- Joined
- Dec 3, 2010
- Messages
- 787
So I went back to my GI today 2 weeks after my flex sigmoidoscopy and them giving me some steroid suppositories as nothing improved and still got some inflammation going on.
I'm on fortnightly humira at the moment,since jan, and they are Going to give me my loading doses again to see if that improves any of the D and pain. So fingers crossed that this sorts everything out or it gives me more of an idea of what kind of dose I need maybe weekly.
It did worry me a bit as the doc didn't seem to convinced that it will make a difference as I built up antibodies to infliximab and this doesn't seem to be working properly. It is helping I don't feel any where near as bad as I did in dec I can eat just about, all plain food, and I'm able to work but struggle as I find myself running to the bathroom and In some pain. Sorry I'm going on a bit lot on my mind. Also when I asked the doc what happens if this doesn't work he said he doesn't really know what the next step would be as I have exhausted all medications except from methotrexate which I didnt want to try because I got pancreatitis from aza and 6mp and thought it is likely to happen again.
So I guess just to write stuff down helps me not worry so much. Anyone else gone through most medications what happened for you? I started talking to the doc about trials but I think its just crossing that bridge when I come to it.
Fingers crossed I won't have to think about this and the humira works.... But just don't feel hopeful at the minute as nothing else has worked.
Thanks for reading sorry if there are any spelling mistakes taken some strong co-coda mol for the pain and very spaced out at the minute lol. X
I'm on fortnightly humira at the moment,since jan, and they are Going to give me my loading doses again to see if that improves any of the D and pain. So fingers crossed that this sorts everything out or it gives me more of an idea of what kind of dose I need maybe weekly.
It did worry me a bit as the doc didn't seem to convinced that it will make a difference as I built up antibodies to infliximab and this doesn't seem to be working properly. It is helping I don't feel any where near as bad as I did in dec I can eat just about, all plain food, and I'm able to work but struggle as I find myself running to the bathroom and In some pain. Sorry I'm going on a bit lot on my mind. Also when I asked the doc what happens if this doesn't work he said he doesn't really know what the next step would be as I have exhausted all medications except from methotrexate which I didnt want to try because I got pancreatitis from aza and 6mp and thought it is likely to happen again.
So I guess just to write stuff down helps me not worry so much. Anyone else gone through most medications what happened for you? I started talking to the doc about trials but I think its just crossing that bridge when I come to it.
Fingers crossed I won't have to think about this and the humira works.... But just don't feel hopeful at the minute as nothing else has worked.
Thanks for reading sorry if there are any spelling mistakes taken some strong co-coda mol for the pain and very spaced out at the minute lol. X
Thanks again
