First appointment with consultant

[GlasgowGirl86]

So I had my first appointment with the consultant yesterday. I thought I was seeing a gastro consultant, turned out to be the surgical consultant. My faecal calprotectin was normal. However the doctor said that although the tests aren't revealing much it could just be that I had the tests done on a "good" day and my symptoms do suggest IBD so they can't rule that out yet. I've to go for an MRI scan and if that shows nothing abnormal I will get an appointment to see the gastro doctor.
I would have thought that they would have wanted a repeat faecal calprotectin done when my symptoms are bad but they just want another sample for culture and sensitivity even though I've already had one come back negative.
The doctor seems to think it's IBD but won't put me on medication until they can get a definitive diagnosis.

 

[nikki7]

I've had 3 fecal test in the last 6 weeks. My nurse let me know that my levels of inflammation where well above 2000. A normal person person is 100 or below. I had a bad week so they sent me in for the 3rd one last Friday. I haven't got the results for that particular one yet.

 

[24601]

I'm surprised too that you had an appointment with a surgical consultant not a gastro :confused2:

It's good they are investigating further but if I were doing an MRI I think I'd add in another faecal calpro too!

 

[scottsma]

I think the MRI is to investigate the small intestine,to see if there's inflammation higher up.I think it's normal procedure.Colonoscopy,MRI. then maybe Ultrasound.It's the waiting time in between that's annoying. I mean you (we) could flare and recover 2 or 3 times while we wait.I know I have.But at least somethings happening,so be patient and try to enjoy the summer if you can.

 

[GlasgowGirl86]

I'm so fed up now of feeling like crap all the time and not a thing I can do about it! I've just done my first few nightshifts at work since I became ill and I had to get sent home because I felt so horrendous. I'm finding myself getting really emotional and teary when people ask me how I am.

 

[scottsma]

Just be kind to yourself sweetheart.If you're feeling unwell,snuggle down and go with the flow.Hopefully,you'll get meds that suit you soon,and be back to your old self.
Keep an eye on your diet.No grease/fat,no spice,small meals,careful with fruits and veg.It's all trial and error,and a bit overwhelming at first. Feel better soon.

 

[GlasgowGirl86]

Thank you for your kind words scottsma I try and rest up as much as I can when I'm not at work but I think nightshift does not agree with me! I've been keeping a food diary for a wee while now and managed to identify some trigger foods but half the time I'm just guessing :S

 

[GlasgowGirl86]

I'm a bit confused/concerned.. Just received a phone call telling me I have a hospital appointment with a gynaecologist... I told the woman I don't know why I would need to see a gynaecologist as I have gastro issues. The only thing I can think of is that I had a smear test done recently and I'm still waiting for the results. I'm freaking out incase my results are abnormal and that's why I have this appointment. I'm hoping it's one big mistake and I've been put on the wrong waiting list :S

 

[teeny5]

That would kind of freak me out too! When is the gyno appt? It could be something minor. I had an abnormal one once, but it was a minor infection. After that all normal ones for years. Try not to worry too much.

 

[GlasgowGirl86]

The appointment is a week tomorrow and I've discovered today it's for colposcopy. I've spoken to 5 different people, none of whom can tell me why I have this appointment or what my smear test results are!! I think it's terrible giving me a hospital appointment without even telling me why I need it. I'm freaking out that my results are abnormal. This stress is the last thing I need and my guts are going crazy.