Hi everyone hope you all are as well as can be morning evening and good night to some of you lol seen my specialist today basically he seems to think that my mri will be the first step into seeing what's going on in totally agree with him abscess number one lead to fistula number twould wich led to a cavity inside me wichick is now filling up times two and discharging it's self so in between all this is get infections and need antibiotics my guts are turned upside down with the antibiotics wich causes diarrhoea and interupped menstrual bleeding three a month to be precise I told him I was lacking in folate I can't understand? I also get mouth ulsers wich I couldn't get to tell him and the other thing I wanted to ask was what would be the possible reasons for all this to have started in told him I seen my food floating around in the toilet bowel for the first time when this all started and I didn't get to tell him before all this every one would same to me about having a low immune system cause I always suffer terrible with infections or cold and flu I understand it will have mri then see him and discuss the next step into fixing the filling cavity and then colonoscopy down the line wich could be 3 months away from what I gather.this forum has been fab for support and reading stories I can't contribute a lot cause I don't know what's going on with myself however having a sounding board helps so much I'm not asking for diagnosis at all let me stress but he said he's unsure that this is Crohn's and he could be right but I wanted to ask do I sound like any of you has any one else experienced this ? Much love appreciate any feedback and anticipated mother who wants to return to any state of normality lol xx
First appointment with my colorectal surgeon today
- Thread starter Amac
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cmack
Well-known member
Hi Amac,
It is tough to go through all those problems. I used to have a lot of really bad times with surgery and being sick all the time. I hope you hang in there because I believe it will get better, It did for me. I might not be perfect, but at least I'm not in constant agony anymore.
We all have troubles sometimes and I agree this forum is a great place for support. It is healthy to talk about things that concern you. May I suggest that you write down all of the things that you want to say to the doctor, then bring it in to your next appointment as a list? I do this all the time or else I forget too. I find that having a list of topics that I want to discuss really helps.
You keep it up. Keep talking through these things. I appreciate your struggle and I will lend an ear. You are strong, never forget that.
I wish you well, give me a shout any time.
cmack
It is tough to go through all those problems. I used to have a lot of really bad times with surgery and being sick all the time. I hope you hang in there because I believe it will get better, It did for me. I might not be perfect, but at least I'm not in constant agony anymore.
We all have troubles sometimes and I agree this forum is a great place for support. It is healthy to talk about things that concern you. May I suggest that you write down all of the things that you want to say to the doctor, then bring it in to your next appointment as a list? I do this all the time or else I forget too. I find that having a list of topics that I want to discuss really helps.
You keep it up. Keep talking through these things. I appreciate your struggle and I will lend an ear. You are strong, never forget that.
I wish you well, give me a shout any time.
cmack
thanks cmack so appreciate all that you have said and also agree I didn't get the chance to take out my book with all my questions I had wrote down the one question I wanted to ask was what in his medical opinion caused this to all start and why was I still getting this discharge and even quicker now within 9 days I had it back again in don't think living on antibiotics is ideal at all but I more or less got told I'v to wait on the mri wich I do agree with but still can't manage to get my head around the first part I'v a lot on my plate as do most of us I look after my great aunt and manage her careers look after my three kids and the house plus just had returned to work after maternity leave so things are busy but people are actually saying to me they think this caused my I'll health personally I think it brought my I'll health to the surface I'v suffered with a low immune system for many of years but I don't know I'm just worried about the length of time this is all going to take to answer but I've to put my faith into it and push forward everyday for the sake of it thanks so much sending xoxo
cmack
Well-known member
Hi Amac,
How are you doing?
How are you doing?
Hi cmack unfortunately not great thinking of going to the emergency room right upper abdominal pain 4 weeks was my last visit I thought I was winning there for a while how are you ?
cmack
Well-known member
Hi Amac,
Besides a sore back, which is normal for me, I'm fairly good thanks. You should to go to the ER if you feel like you need to. Usually your body tells you when it's time, be sure to listen to it. I would hate for anything to get worse for you. I hope you feel better soon. Keep me updated.
All the very best to you and yours,
cmack
Besides a sore back, which is normal for me, I'm fairly good thanks. You should to go to the ER if you feel like you need to. Usually your body tells you when it's time, be sure to listen to it. I would hate for anything to get worse for you. I hope you feel better soon. Keep me updated.
All the very best to you and yours,
cmack
cmack
Well-known member
Amac,
Keep in touch bud. I care about you.
Keep in touch bud. I care about you.
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Amac, how are you doing? I'm in a similar situation x
thanks cmack 7 and a half hours nightmare chick they think I have gallstones? ?? Everything is so messed up butility they also thought my bowels were badly blocked up and inflammation according to the x rays my best mate came with me to help with my baby is so hate going xx
So so still much the same as nights sleep don't make me feel any better it al ways feel like crap but mri is next week yippee
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I hope your MRI gives you answers. Mine did, but still no Crohn's diagnosis yet and not sure what we do from here
That's terrible my surgeon's reckon it's not Crohn's I honestly have always known something is up long history not always diarrhoea I hope I'm giving you some hope so many things I'm away for a week atm butI know it's not a normal week no week ever is I hope you get some support I will talk to you soon xx
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Thanks. Yes, I've had rectal problems for about 8-9 years now and stomach problems on and off throughout this time. I have multiple complex fistula's that seem to have tracked lots
terrible sending love and support keep in touch xxThanks. Yes, I've had rectal problems for about 8-9 years now and stomach problems on and off throughout this time. I have multiple complex fistula's that seem to have tracked lots
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You too Amac. Keep me posted with how you get on x
I will do look after yourself as much as can be always here don't forget that never feel alone much love xxx
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Thank you Amac means a lot. The same goes for you. I hope you get a solution soon or at least you start feeling a bit better xxx Take care
cmack
Well-known member
All my best to all of you folks. I feel for you.
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Thanks cmack
