First ever Colonoscopy next Wednesday

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Joined
Feb 29, 2012
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Yeah, as title says. And guess what? -I'm not worried about it turning up Crohns, I'm worried if I got it wrong and it's the worse alternative.

Periodic Constipation/Diarrhea -check
Joint pains in neck, lower spine, hip area/IS-joints, Jaw - check
Symptoms of dehydration - check
Neuropathy symptoms - check
Sores that hardly ever grow in nose, and ulcers - check
Ulcers in mouth and lately one time beneath eyelid(!) - check
Gas - check
Feeling of digestion becoming completely blocked in shorter periods - check
When that releases, lots of sound, gurgling noises - check
When it releases, actually feel motion inside my bowels - check
Feeling of inflamed nerves in stomach/hypersensitivity - check
Just tested low for Vit D - check
Blood in stool and red blood on paper - check
Repeated bouts of hemorrhoids,when hit entire anus feels inflamed - check
A few times felt like bowels has been clammed of with a tool - check
Bloating - check
Feeling of stomach improving on NSAID for 6 weeks, then flaring terribly for months after quitting it - check
Severe fatigue - check
Unexplained huge weighloss at initial flare 16 years ago - check

And even so....if it is Crohns, it is in spite of literally tens and tens of doctors through 16 years all saying it is just anxiety, even though not ever ordering a test.

And I do not have really painful cramps, I have never been constipated to the point of visiting the ER, even though it has felt a lot worse the last year. No blockage, no massive amounts of blood, just a very distinct feeling that something is not right inside...and all these symptoms, but coming and going.

The GP's point of view: Anxiety explains all this, and blood tests have not showed anything (apart from low Vit D, and high trombocytes), and I am "the wrong age and group for colon cancer".

My view: there is no longer a doubt in my mind thta I am suffering from something rheumatic in nature. Perhaps Crohns could explain my problems, and in any case pains and problems are severe enough to justify checking.

Nightmare outcome: He was wrong, and so was I, turns out to be cancer.
Nightmare outcome light: It's Crohns, but they cant locate in in my colon.


So...any ...euhm calming words or anything?

As I said, the examination does not worry me at all, neither does fining out I have Crohns (I might later if I do, but not at all now - it would almost be a relief)

Relevant information : On low dose tricyclic antidepressant for all these 16 years, initially given for anxiety and the weightloss (makes you put on weight as sideeffect). Just recently found out low dosage tricyclics are used for pain management in back pains. Certainly fits with the days I forget to take them.
 
Sounds like a colonoscopy is a good idea. Crohn's or Ulcerative colitis often can go undiagnosed for years - I often wonder why when colonoscopys are such simple ops to do. Any way, all the best, whatever the diagnosis - it can be incredibly frustrating not to have any diagnosis so hopefully they find something minor and immediately fixable!
 
Sounds like a colonoscopy is a good idea. Crohn's or Ulcerative colitis often can go undiagnosed for years - I often wonder why when colonoscopys are such simple ops to do. Any way, all the best, whatever the diagnosis - it can be incredibly frustrating not to have any diagnosis so hopefully they find something minor and immediately fixable!

Well, I'm beyond hoping for minor. My joint pains are too hard (rheumy said I ticked every box for Ankylosing Spondylitis, apart from a positive blood test, and actual bone fusing). Joint pains I can handle easier, I have a high pain treshold. (runs in the family, oddly enough) Stomach problems, those scare me more, so long as I dont know what causes them.

I wouldnt cry over a UC or Crohns diagnosis at all. I realise they are severe diseases with a lot of complications, but knowing....ALWAYS beats not knowing imho. I would cry over the fact it had been ignored for so many years. And then I'd get mad. But thats all getting ahead of myself...lets first see what the colonoscopy turns up (or not).

But as probably so many of you know....the frustration and wear and tear from suffering from inflammation and not getting an answer.....it gets to you, if you want it to or not.
 
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