- Joined
- Dec 18, 2008
- Messages
- 37
Hey all -
My name is LittleJon27, and I am new to Crohnsforum.com. I am not, however, new to Crohn's. I look forward to becoming part of this community - as I have dealt with this nasty son of a <bleep> disease more or less on my own for almost 30 years.
I was symptomatic at age 10, and mis-diagnosed until age 15. That was back in 1986. I am sure that many here can empathize with a 4+ year long misery...not knowing what is wrong with you, not knowing why you are a 15 year old in a 10-year old's body because you cannot get any nutrition, and why you are the only kid in Junior High who vomits 4 times a day.
That was then, and things are most definitely better now. I am married (VERY happily) with two great kids, and I am currently on no medication for the Crohn's. I finally had enough steroids, pentasa and Imuran to cause me to investigate other options, including diet and stress reduction. That of course is easier said than done, especially around the holidays, when food and drink of the wrong types are around every turn, and stress can be higher than normal.
I am just now getting over my most recent flare up, and I wanted to share something that I am positive folks here will understand. On Tuesday morning I knew that my belly was 'sour', and due to the day's circumstances I did not take care of myself the way I normally do. By that afternoon I was in a good amount of pain, and by bedtime I was nearly passed out. By morning I was vomiting, and had to call into work.
So here's the thing that was the most upsetting. The pain? Meh - we have Crohn's....I think we might have a different register of pain level than most people. Throwing up? Nah...that actually helped a little :0
What really got to me was the notion that this will NEVER GO AWAY. That I will be sick, and on the verge of a flare up for the rest of my life, and there is nothing I can do about it. In a life that - honestly - has been filled with blessings and happiness in all other ways, this is the one thing that can get me down. I feel helpless to change it.
I tend to be a very glass-half-full kind of guy, and I try my best to keep a good outlook on everything, but I have to tell you that Tuesday night I was pretty down on things because of this rotten Crohn's.
Feeling a bit better now, after almost 48 hours of nothing but warm water and warm chicken broth and a bit of yogurt. Weak, but the pain is back down to a 2-3, which is normal I guess
Anyway - I promise that the next post will be more upbeat - I guess I just wanted to say, 'hi', and let you know that I have been encouraged by the posts I have read here, and I look forward to talking with you all soon.
Thanks so much,
Love
LittleJon
My name is LittleJon27, and I am new to Crohnsforum.com. I am not, however, new to Crohn's. I look forward to becoming part of this community - as I have dealt with this nasty son of a <bleep> disease more or less on my own for almost 30 years.
I was symptomatic at age 10, and mis-diagnosed until age 15. That was back in 1986. I am sure that many here can empathize with a 4+ year long misery...not knowing what is wrong with you, not knowing why you are a 15 year old in a 10-year old's body because you cannot get any nutrition, and why you are the only kid in Junior High who vomits 4 times a day.
That was then, and things are most definitely better now. I am married (VERY happily) with two great kids, and I am currently on no medication for the Crohn's. I finally had enough steroids, pentasa and Imuran to cause me to investigate other options, including diet and stress reduction. That of course is easier said than done, especially around the holidays, when food and drink of the wrong types are around every turn, and stress can be higher than normal.
I am just now getting over my most recent flare up, and I wanted to share something that I am positive folks here will understand. On Tuesday morning I knew that my belly was 'sour', and due to the day's circumstances I did not take care of myself the way I normally do. By that afternoon I was in a good amount of pain, and by bedtime I was nearly passed out. By morning I was vomiting, and had to call into work.
So here's the thing that was the most upsetting. The pain? Meh - we have Crohn's....I think we might have a different register of pain level than most people. Throwing up? Nah...that actually helped a little :0
What really got to me was the notion that this will NEVER GO AWAY. That I will be sick, and on the verge of a flare up for the rest of my life, and there is nothing I can do about it. In a life that - honestly - has been filled with blessings and happiness in all other ways, this is the one thing that can get me down. I feel helpless to change it.
I tend to be a very glass-half-full kind of guy, and I try my best to keep a good outlook on everything, but I have to tell you that Tuesday night I was pretty down on things because of this rotten Crohn's.
Feeling a bit better now, after almost 48 hours of nothing but warm water and warm chicken broth and a bit of yogurt. Weak, but the pain is back down to a 2-3, which is normal I guess
Anyway - I promise that the next post will be more upbeat - I guess I just wanted to say, 'hi', and let you know that I have been encouraged by the posts I have read here, and I look forward to talking with you all soon.
Thanks so much,
Love
LittleJon
