Flaring 2 months after resection

[LeahLariviere]

So, here's my story. I was diagnosed with Crohn's 1 year ago. Two months ago I had a small bowel resection and figured great, atleast I'll have some relief for a while but 2 nights ago i woke up in excruciating pain. I went to the er last night and had a CT scan done and low and behold I'm having a flare a small ways up from where my surgery was. I am on Prednisone and will be making an appointment to see my GI doctor. What are the chances? Has this happened to anyone else and if so what is the outlook as far as having to have surgery again in the near future.

 

[D Bergy]

I never quit flaring after surgery. I felt much better but my symptoms were still present minus my stricture. They only remove the worst part. The disease really has no reason to stop just because the most damaged parts are removed.

You will have to treat the disease one way or another to try prevent more surgeries. The Prednosone should help in the short run, but it is not a long term treatment.

I went with Low Dose Naltrexone for my long term treatment.

Good Luck

Dan

 

[Mrclayto]

I had a resection in May 08...and was flaring again 5 months later. I haven't had another surgery, but I have had 3 colonoscopies, 3 blood transfusions, and hospitalization since.
I am going to do all that I can to NOT have surgery again, but I found out last week that my anastomois isn't healed AT ALL. (almost a year old!)
I am taking entocort, pentasa, and a pleathera of other once a day stuff...

 

[mRae85]

Out of all the meds I have been on the Entocort worked super well, but that stuff is really expencive when you pay out of pocket. When I was on 3 a day tho, I didnt even know I was sick, but I couldn't keep paying for that stuff If you have good insurance or a script plan of some kind, talk to the Dr about it, it isn't for long term useage but I swear by it. I take 40 mgs of pred and I'm always waking up in pain, so if pain is a big issue for you like it is with me then you'll agree when I say the pred just doesn't cut it. So far I have had 0 surgeries, and I'm gonna try my best to keep it that way....sometimes I wish they would just cut it out, but I know it will come back so *sigh*

 

[LeahLariviere]

I also was on Entecort before my surgery and then was taken off after 5 months. Like you said it's not a long term treatment. So, I started getting horrible pain again. Then my doc put me back on it again but for some reason it didn't help at all the second time around. Then I ended up having the surgery. When I am in pain the only thing that works is motrin and I know it's not good for this disease but when it hurts that much all I care about is getting relief. Good luck on not needing surgery. I wish you the best.