Getting my remi every 6 weeks. next shot Feb 17th

[moogie]

This is the second time I get my shot within 6 weeks period and I just love it.

When I was on 8 weeks shots I always had 3 weeks of hell. 10 days before I started pains and it took another 10 days to feel better.

Now getting them every 6 weeks there is no going down anymroe. I feel great.

I'm getting my shorts 3 days before my birthday so I will be feeling great for the party!!!

Just wnated to share!:biggrin:

 

[scoutfinch]

So great that you've found an effective ongoing treatment! May I ask what dosage you are on (e.g. 5mg/kg, 10mg/kg?)

I might need to go to 6 weeks too. The Remicade kicks in really quickly after each infusion (I feel amazing by the 3rd day), but it fades after only 3 weeks. By the 4th week, it's full on flare mode. So I guess going to 6 weeks isn't really going to make my life fully symptom-free, but suffering 3 weeks is better than suffering 5 weeks.

 

[moogie]

I really do not klnow my dosage. But When I go friday I will ask my nurse.

I'll let you know then.

If I stop the tratement I am full of flares too but mine started coming back on the 7th week.

 

[SarahAnne]

Glad it's working for you Moogie!!

Isn't it fantastic when you have something positive to share? Hope you continue to feel better and better.

 

[moogie]

You have no idea.

Just being able to play with my kids on a regular basis, god just being able to be a parent, doing homework chores and laughing with my kids. It's a miracle.

My youngest daughter was getting depress because her father was always sick. It broke my heart. Now it's back to normal. Groovy baby!"!!!

We need some good news now and again

 

[moogie]

So great that you've found an effective ongoing treatment! May I ask what dosage you are on (e.g. 5mg/kg, 10mg/kg?)

I might need to go to 6 weeks too. The Remicade kicks in really quickly after each infusion (I feel amazing by the 3rd day), but it fades after only 3 weeks. By the 4th week, it's full on flare mode. So I guess going to 6 weeks isn't really going to make my life fully symptom-free, but suffering 3 weeks is better than suffering 5 weeks.

I got my infuision on friday went very well. New nurse there hmmm might want to get my medicine a lot more often

My dosage is 400 mg so my nurse tells me. my weight is 86 kg. so my dosage is 4.65/kg

Hope that helps!