Going to a Local Meeting

[kix66]

Thursday (11/16) I'm going to my first support meeting. I've not taken the time to go before, this one is only a few miles from my house so I thought I'd give it a try.
Also, there will be a dietitian speaking so I'm interested to see what she has to say.

Have any of you gone to local meeting (CCFA sponsored or not)? Good or bad results if any?

 

[Jeff D.]

Never went to any but I wished I had. They offer great support. Let us know how you like it. Spread the word about crohnsforum.

 

[ruthymg]

I haven't been to any either and I don't know anyone who has, unfortunately I don't think people feel comfortable going to these types of groups. Its unfortunate that the one in my area is so far away or I would consider going as apart from a couple of sites where I chat to others with IBD, I haven't chatted to anyone in person. Let us know how you go on.



Ruth

 

[mikeyarmo]

I have never been to one either. There is only one anywhere close to me, and that is located about 45 minutes away. I assume they can be rather helpful, and I would encourage you to go in with no anxiety and an open mind. I am sure you can get a lot out of the meeting.

Feel free to let them all know about this website also . Let us know how it goes!

 

[devildee(donna2005)LOL]

ive never been to a support meeting but wish you all the luck in the world hope it works for you (((hugs)))

 

[Cara Fusinato]

Take a few of our flyers to hand out, leading people to this forum. Download from the thread . . . or e-mail me at [email protected] and I can forward you a copy.

 

[kix66]

Local Meeting Update

I was the guest speaker at the meeting!!!

It was fun, unfortunately I didn't learn too much new info but I'm glad I was able to give info to the other ppl there.

It still surprises me when I find ppl that are so uninformed about their illness(s).

I did give out the flyer, thank you Cara!

Not a very big turn out but they said that's typical in the fall/winter months, heck it is Wisconsin after all.

I gave out my e-mail address to the head of the local chapter and we discussed getting an e-mail newsletter/invite to meet at a local coffee shop started. She thought there would be more ppl interested in doing that.

So all in all it went well, the nutritionist was very informed in both CD & UC.

:dog:

 

[ruthymg]

So pleased your meeting went well and well done for being the guest speaker, good to hear it was a positive experience. Keep us posted


Ruth

 

[mikeyarmo]

I am also glad that it was a good experience for you. It seems you were well received and they see you as a potential regular in the future.

Congrats on taking the chance and hopefully it helped give you appreciation for the knowledge you have on this disease (compared to the others).

 

[Nancy Lee]

I belong to our Local Chapter of CCFC, and they are always on the go with fundraisers etc. Walk-a-ton's, Pasta night, Dinners, Music and entertainment...a ton of fun and fundraisers throughout the year.

I do believe the President of our Local Chapter received an award for having the best fundraising chapter in Ontario, if not Canada!

I also would tell other C&UC people to join the Crohn's Society. You receive several newsletters via snail mail throughout the year and are kept in the know on what's on the brink of being tried next, as to medication, surgery etc.

My GI doctor couldn't emphasize enough the importance of joining and gave me the contact phone number of the President of our Chapter. The day after I got out of the hospital the President was at the door to meet me and bring me reading material about Crohn's and a ton of support.

I most certainly will pass this web site on to the members at the next meeting.

Hugs~Nancy

 

[Janet]

I went to a CCFA teens support group at Stanford. I liked it even though I was the only teen (Everyone else was parents). My parents still go but I haven't been since that first meeting a few months ago because I always had work and now I'm at school. I really liked it though and I got a lot of good information.

 

[Skinsfan1229]

I havent goen but I do know thats its always got an ET nurse on hand for those with Ostomies, and Lots of Dr's and Ostomy supply companies appear and give out samples and such. Thats not to say its for people with ostomies, but its not for people with just IBD, some have colon cancer and such.

 

[stephrena]

no support groups in my area, closest place is 3 hours away. why does it seem like its so hard to find other people with crohns in your area? i thought for sure i could find a support group of some sort but i was wrong.

 

[Maggie-Muffin]

I have also gone to a few meetings of a local group here.I liked the atmosphere there very warm and welecoming.I also like to get to talk to someone esle around here who has crohn's face to face.I usually don't get to go much in the winter months because of the road conditions. The local group is about 40mins away from me.
~~~HUGS~~
anda: