Going to the doctor!!

[Terch]

Hi,

I see my GI guy on Friday for the results of my sbft! I have actually had a good couple of weeks but today had some lousy upper GI symptoms and the rumblies.
Anyone else ever feel like they are about to do a scene out of Alien? Sometimes I wonder exactly what could be going on inside my intestinal track :eek2: I think that something may actually burst through!!!
I have been sticking to this wheat, soy and dairy diet and was pretty sure that was helping me, now I am not sure.

 

[Jeff D.]

I have felt that many times.

Best of luck with the GI.

 

[mikeyarmo]

Terch,

treatment by diet is not usually seen as an overnight success, so be patient. I have often heard that symptoms can often get worse for a while, before showing any improvement. A diet should be tried to be followed for several weeks before considering any effects it has had (beneficial or otherwise). If a diet is too hard to follow, is resulting in too much lost weight or is not nutritionally sound then drop it immeadiately. If not eating food ever again could cure you, it would not help much as you soon would be dead! Following an overly strict diet or not having a well-balanced diet (no matter with what you avoid) can result in other problems with deficiencies, especailly with iron (causing low energy).

Any ways good luck with the results, and remember that no matter what the results, they will help you move forward to becoming a healthier person.

Keep us updated!

 

[xrayzerase]

hope all went well

please update.
(maybe you did elsewhere?) will be reading-lots of new members i see...
definitely want to catch up with everyone
wow-i've only been here a short time but-i really do feel many people here have become sort of like family-and i want to keep up..
anyway-hope all went well.
hope the diet goes ok..
i know for awhile-even still-food is not a happy thing for me--but i try to eat more now--even with the ensure-and getting nutirents-i was losing weight-too much-and so..had to re-adjust-and it is helping.
what mike said is true-it takes time-be patient-keep fighting
there is no other way.
as for me-all i know is that as shitty as i feel a lot of the time-(and my crohn's is mild) -well-i just won't let it rule my life. i force myself to just be as crazy and active as i can--and til then-just..do as much as i can
ok-rambled enough
hope all is well
andrea

 

[skeet]

Fingers and toes crossed for results that lead to some great improvements for you! Good luck!

 

[mikeyarmo]

Also about sudden symptoms:

Stress can sometimes cause symtpoms to appear or to be greater in effect. Is it possible that you were worried about seeing the doctor?

 

[Nancy Lee]

I think Mike could be right here.
Could you please let us know how you made out at the doc's.?

 

[harryjr]

Hope you get good results.
I get rumblies and grumblies from below often. Not to fear. Is natural for a Crohnie.
I see you use ENsure. mmmmmmmmmmmm Try the chocolate mixed with Pepsi. Makes it more palatible.
Keep yer socks up

 

[Karen]

Welcome Aboard ... I am sure that you will have a great time here and you will make plenty of friends too so jump right in and have some fun & do come by the longe sometime and say HELLO !!

 

[bcg]

New to RI and totally miserable

Hello everyone. I just got out of the hospital and am so down with no one to talk to, so I figured I would give this a shot. I have had Crohns for over 35 years and I feel like every time in my life when things start to get better, it strikes again. I just relocated to RI from NJ and spent months researching doctors and hospitals so that when the time came (not if.... as we all know), I would be prepared. I actually interviewed 2 different practices and settled on one which was a huge mistake!

As I was saying, I just had my most recent obstruction/flare up and went to the new hospital for the first time. No one knew me and I had been told that this was "the hospital to go to if needed". Well, who ever told me that must have been hallucinating. They admitted me to the surgical service, due to the fact that I "might" have needed surgery. Every order/medication/question/anything, had to go through the surgery team, who had no clue about my condition, other than the fact that they would very happy to insert an NG tube and do surgery. I had called my new GI before I went to the ER and she asssurred me that they would be in touch. I NEVER SAW MY GI DOCTOR THE ENTIRE TIME! I called her office and she did not even have the decency to call me back. They sent another doc in the practice who made the comment "well, maybe you should consider an ostomy... it might make your life better". How dare he say that! He has no clue what I have been through, how much surgery/medication/humiliation, etc I have been through, and the ostomy was always the last resort. I had one temporarily years ago while I healed from multiple surgeries, but with medication, I have always been able to function. I was livid! They started me on Pentassa (Never been on that one) and the surgeon could not explain to me the side effects, etc because "I am a surgeon", but the GI person never showed up to answer my questions!

As all of you who have had Crohns for a long time, know that you need to have that special doctor who knows you, your case, and can help you out, if not in person, at least by phone and now I have no one and have yet to find another GI doc in a tiny state! (My doc in PA was not very helpful before I moved) I have asked around, I work in the medical field (although I just started a new job and and my second day was in the ER), so that has really added to my stress. I had been on Lexapro and finally got off it, and I do not want to be on any more meds than needed for this stupid disease. I have had therapy in the past, multiple surgeries, numerous doses of medication, have had my bones ruined from Prednisone but thankfully was able to rebuild them, have had my gallbladder out, kidney stones, raynauds, all related to this stupid horrible disease, that no one can figure out the cause or cure for!

I am sorry to ramble, but maybe one of you out there can offer me some suggestions on how to find a new doctor that would be compassionate and helpful without it seeming like I am the bitch, just because I want to have someone on my side to care for me. I do not know how so many of these young doctors can make it through medical school with the bedside manner that they lack and their horrible attitudes.

I have good health insurance, thank god, so that is not an issue. If anyone lives in RI (there is no CCFA chapter here) or in the area and can suggest a doctor, please let me know. I do not even want to start looking again, but if I do not find someone, I will be the one suffer even more.

Thank you all for listening and for hopeful help.
BCG