Grrrr....colonoscopy...

[horseluvnhonee]

Hi all....

Well...I'm done with everything. Not the best experience...but it's nice having it done where I work because I know everyone and they were so kind to me. Ok...first of all...the prep...OMG!!! I did the movi prep and literally had to choke it down sunday night...it was horrible!!! I drank plenty of clear liquids along with it....I started at 6pm and didn't go for the first time until 11pm. Then I slept til 4am..went twice...then fell asleep again until 7:30 and went multiple times but it was still pretty dark liquid and didn't start turning lighter until it was time to go...so right away I was freaking out that my prep wasn't good enough.

The girls said that since it was starting to turn clear, I would be ok. So...they get me ready, start IV,etc...my nurse was a gal that I worked with for years on the floor...so that was nice.

Finally time for the procedure....a warm blanket and some Versed and I was out. I do remember feeling some pain but they gave me more stuff and I was out again.

So....procedure over and I was wheeled back to my cubicle thing where I met up with hubby. I rested for awhile and then my doctor came in. He said that everything looked good but that couldn't get around the last bend (which I would assume would be the transverse/ascending corner)...he said he could get around the corner just enough to look down at things and everything looked ok. Right away..I'm thinking great...most of my pain is on the lower right side...so praying he didn't miss something. He also informed me that the prep was "sub-optimal"..which I was afraid of. He did take many random biopsys and will get back to me with those. I work pm's tonight so will be able to review the op report and hopefully gather more concrete data..(i have a release signed which is nice...I get to look at my chart whenever). The nurses said that sometimes..especially in women...the corners are just to tight to get around because of other organs,etc...is this true?

So...now I am bumming...(doesn't that sound strange to be bumming about negative results). I was just hoping for some kind of reason for all this joint pain, fevers, weird blood and mucus,etc,etc.

Is there anyway I could have biopsy results come back positive despite him not physically seeing anything?

If the biopsys come back ok...I guess I"m back to square one...i.e lupus, RA or some other unknown. If i do continue to have bowel stuff...I may get a second opinion. Like I said in my other post...I wasn't super convinced that they would find anything since I don't have classic IBD sx....but..I don't think that the amt of mucus and occas. blood is normal either.

Ok...thanks for listening everyone...if anyone has any experience with the biopsy stuff..let me know.

Thanks,
Olivia

 

[Crohn's 35]

Hey Olivia, glad it is over huh. A few of mine my Gi couldnt get past the a certain point, it happens. He could see a biopsy depending if he got it in the right spot. Most infections are in the Ileum. I guess now the waiting game...

thanks for giving us a heads up.

 

[merrywidow]

whenever i have colonscopes i stay awake, that way i can see my insides on the telly and can see for myself if it looks worse than it should. and you can ask questions at the same time.

 

[horseluvnhonee]

As far as being awake for it....yeeeek...no way...not for me....I think "the drugs" are the only way I agreed to even having the thing...LoL . So....basically there is a possibility that something could/would show up on biopsy...even if he didn't see any active disease or suspicous areas? Like you said...I suppose he would have had to magically pick the right spots to biopsy.

Just feeling so down right now. Like I said..not that I want to have Crohn's because from the sounds of it..many of you go thru hell. I just want some kind of confirmation that I'm not crazy! Now I feel like I went thru a "incomplete" scope...for nothing. Not to sound wimpy but I don't think I could go thru the prep again any time soon..lol.

I am noticing today that I'm a little nauseated and my belly is pretty sore....because all of the manipulation I suppose. I'm super, super tired today too....I always have fatigue anyways...and I suppose with the drugs...oh and the fact that my little Cooper is sick with a bad cold and i've been up with him since 5am...ahhhhhh...and I have to work later today...bahhh.

Ok...thanks once again...you all are so great!!!!

 

[imisspopcorn]

I am glad you got through it Olivia. I'm sorry you don't have answers yet.

 

[Italie]

Hi Olivia

I'm so glad to hear you had quite a decent experience with the colonoscopy - it gives me hope!

I have an appointment next week in which I'm almost certainly going to be referred for one. The problem is that my last experience was so harrowing that it has left me somewhat traumatised.

I was supposed to have had sedation but I was certainly wide awake. It was the air that caused the problem - i felt like my abdomen was going to explode!! Everyone, except the surgeon, was very concerned about my pain and he continued on regardless with nurses 'advising' him that it was too much for me. Anyway, at the end of the day, he couldn't find anything then blamed me because 'I couldnt tolerate it'. I assumed that this was just how colonoscopies were but I now see that I just had a bad experience and that this time it might not be so bad (fingers crossed!!!!) My GP says she'll dope me up with valium for it just to be on the safe side! Before that, I had one 13 years ago and dont recall that being quite so bad but my memory is shocking at the best of times nevermind when I'm trying to block out trauma!

My argument is - why, if I have been diagnosed with Crohns, do I have to ever get this done again??? Just so you can say "yep, we got it right, it is Crohns"

Sigh!

Hope you get answers!

 

[Dani]

My God, I shouldnt be on here reading horror stories today. I've got a colonoscopy tomorrow 10 am. Im sitting here with my moviprep now. Im on my first glass have my first litre and its taken me and hour and a half to drink this, so I've still got another 5 glasses left!! Im going to be here all night.