Hair loss?

[Nyxie84]

Has anyone else experienced hair loss? Is this Crohn's related? I am not yet diagnosed. But strong family history, and I am personally certain that I have crohn's.

My hair started thinning towards the end of a really bad flare about 6 months ago. Eventually, I was pulling out huge clumps every time I brushed my hair. Is this just stress from the flare and not having a solid diagnosis? Or from other stressors in my life? Or could this have something to do with my body not absorbing nutrients properly? I have looked online, but answers I get seem to be inconclusive. Some say yes, some say no. Like half the other things tied to this disease, no one seems to know for sure what is what!

I am dealing with it okay. Others say it isn't as thin as I think it is. But I hate it. I have purchased a few really cute wigs on the interwebs, and I just wear those or a hat so no one can really tell. Most people have no idea it isn't real hair. But I was wondering if anyone else has experienced this, or knows anything about it?

 

[Johnnysmom]

My son experienced hair loss but that was a side effect of the meds he was on.

Malnutrition can cause significant hair loss. Are you losing a lot of weight? You could try vitamins or nutritional drinks.

I have heard the shampoos used to stop thinning hair work well. I haven't used them personally.

There are also other auto- immune issues that cause hair loss. Have you talked to your Dr? Are you getting regular blood tests?

 

[alev]

I began losing my hair about 1 1/2 years ago and it progressed to all hair, eyebrows, eyelashes, body hair. I've seen 3 dermatologists who tried various treatments but had no results. They all say its Alopecia, but nobody can say for sure if its due to Remicade or I've developed another autoimmune condition. I'm going to be stopping Remicade so I hope my hair comes back once I stop.

A few years ago I began noticing increased shedding of my hair after having a bad flare. My doctor said it is somewhat common to have shedding while you are healing, so if its just thinning it could be from healing. Also, I've been tested for anemia because thats another cause of hair loss, so you might want to check with your doctor about that.

Good luck!

 

[FrozenGirl]

I get lots of hair loss and breakage. Thank gosh I have naturally thick hair so it is slightly disguised ( though my hair dresser might have thought I was a weirdo when I had a mild freak out when she suggested thinning my hair when it was just starting to happen). I have heard good things about biotin though I haven't tried it. Also not sure exactly why. I was malnourished but not so much anymore so idk if that is why. I am on pred and imuran which could be doing it but It was pre-imuran so I am leaning towards either it being prednisone or malnourishment/ lacking vitamins.

 

[Amanda89]

My hair is breaking off so easily at the moment, but I really badly damaged my hair a couple of years ago so its difficult to tell whether this is because of my crohns or medication.