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Crohn's Disease Forum

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Nov 22, 2011
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Hi, I am a 18 year old male and I was diagnosed with crohn's disease on january of this year. Since being diagnosed, I have been on various drugs. I was on prednisone for 2 months and I am currently on Humira (adalimumab) and methotrexate. I have been on many anti-biotics, notably: rifampin, doxycycline hyclate, cephalex, as well as a few anti-inflammatories to treat various infections (swollen and infected ganglions and MRSA). I was also hospitalized a few times and put on morphine, and sent back home with hydropmorphone.

A lot has happened in the past 10 months. I was diagnosed during high school exams, my grades went down by a lot and I thought I'd never get into university. I was depressed, tired and scared. One morning, I decided to pull myself together and enrolled in independent studies to re-take one of my classes. I passed with 95%. This upped my average enough to get me accepted into the program I wanted. Over the summer, I attended an IBD support group but I quit midway through because it was too depressing for me. Here I am, going to school, studying crazy, working a part time job, making sure I do enough sports and eat healthy, as well as take care of my disease (and other infections), and I have to sit and listen to a bunch of people complaining on how life sucks. I get that everyone has different ways of handling various situations, but it's ludicrous to sit there telling yourself that your life is over because you have some disease. I could go on and on about all the negative things that have happened in 10 months, or I can forget about them and move on.

I don't let the pain prevent me from doing the things I love. In fact, doing these activities takes my mind off the pain and allows me to relax. During the winter I go alpine skiing as much as possible and during the summer I go downhill mountain bike and I play paintball. I still hang out with my friends and I study a lot. I do need frequent break because sometimes I am in more pain then others.

Lately, I've been having major pain in my hands. The doctor said that I might have arthritis. Since then, I've tried smoking marijuana a few times and it takes the pain away for a little while. A friend of mine wrote on his Facebook status the other day "no pain no gain", I replied "I could argue that":ytongue:.

Anyways, I'm happy to be here, this forum is really helpful and I enjoy reading and relating to some of the posts. I hope that I'll be able to help others with my own experience and maybe to get help from others. Thank you all for being the people that you are and keep living life to the fullest! :thumright:
 
Hi LuckySeven and welcome! What a great post with such a positive message. You are absolutely right, we shouldn't let having IBD hold us back. Sometimes it is easier said than done, but we have to keep trying to move forward!

So, how are you doing on your current treatment? What are your main symptoms? It sounds like you are doing pretty well in order to be doing all that you do. I hope you continue to do well, so you can continue to do the things you love.
 
I am doing very well on my current treatment of humira and methotrexate. I truly worship them because they are very effective. I do get occasional (about every 3 weeks) flare ups (sometimes bad, others less intense), but I won't complain because its better then being in constant pain. My main symptoms are: very sharp pain in the abdomen, unusual bowel movement, fatigue and I also start feeling light headed and weak. Oddly enough, I get constipated instead of having diarrhea. I don't think being constipated is better because having 3 days of food in your body and not being able to evacuate it causes more pain plus you never know when it'll decide to come out. That's why I always go biking with a roll of toilet paper!! Aside from that, my immune system is down because of the methotrexate and I am prone to infections. Sometimes I need to skip a dose to let my body fight the infection and to let the antibiotics work. MRSA is a very stubborn superbug. I had to get tested negative 3 times, that doesn't mean it's not there anymore, I can still be a carrier. Over all I feel well. I suppose that once you've passed that climax of pain, every other pain you might experience doesn't seem as bad.

What about yourself? What kind of treatment are you undergoing? Hows it working out for you? Thanks for replying btw!
 
You sound like you've got a great attitude towards Crohn's, I agree with you, there's nothing worse than hearing people being negative and thinking it's all over. I'm not going to lie I've cried a lot over crohn's, but I'd never let it get me down to the point where I wasn't living my life - because then it's defeated me! And I would never let that happen.

I'm going on Humira on wednesday :) how are you finding it?

I too am constipated, I think it's a mixture of steroids and strictures. I usually have the opposite but my disease has changed an awful lot in the past year.

Hope you're well and keep positive :)
xxxx
 
If you are currently on prednisone, humira is a god like drug compared to it. I was on prednisone for a few months and I would eat like crazy. My acne came back and I gained some weight. About a month after starting humira, I was back to eating normal and I was feeling much better. Don't expect it to eliminate all your symptoms because you will still get flare ups at some times but not as severe. If someone told me I'd have to stop humira, I think I'd go on a rampage hahaha!!
 
I am doing very well on my current treatment of humira and methotrexate...

Aside from that, my immune system is down because of the methotrexate and I am prone to infections. Sometimes I need to skip a dose to let my body fight the infection and to let the antibiotics work. MRSA is a very stubborn superbug. I had to get tested negative 3 times, that doesn't mean it's not there anymore, I can still be a carrier...

What about yourself? What kind of treatment are you undergoing? Hows it working out for you? Thanks for replying btw!


I am glad you are doing very well! But I am sorry to hear you struggle with infections. I hope you don't have too many issues during the upcoming cold & flu season.

I am in a complicated situation at the moment. My GI has a new theory that I might not have IBD, because biopsies from several tests have been normal. Granted, I am pretty confident I do have Crohns (mucus, blood, pain, urgency, odd bowel habits, mouth issues, etc.). But, regardless, I am currently off all treatment except hyocyamine (I have taken Lialda, Canasa, Rowasa, and Cortisone enemas) as per my GI. I am just waiting to see how things go.
 
Not knowing is scary. I know what it feels like to be taking unnecessary meds. I do hope that you'll find out whats going on soon so that they can put you on the right treatment.
 
Hi Lucky! Welcome to the family. It's always nice to have such a positive happy person join us. I think I would've been frustrated by the pessimism that your support group contained, too. I love being around sunshiny people. We have a great group of people here, so I hope you find comfort in this forum. :hug:

If you're interested in chatting with others on the same treatments as you, visit our Humira sub-forum here http://www.crohnsforum.com/forumdisplay.php?f=59 and our methotrexate sub-forum here http://www.crohnsforum.com/forumdisplay.php?f=88.
 
I'd been on the humira one before but I've never seen the MTX sub-forum. Thanks you very much for the welcome and for the links!
 
Greetings and a most hearty welcome to you :) All your activities are so inspiring! I hope you share some of your adventures in our diet/fitness forum to inspire others.

Out of curiosity, have you had your vitamin D and vitamin B12 levels checked?

Take care!
 
Oh yes! My B12 was very very low after I started the injections. I've been taking Calcium, vitamin B12, vitamin D and folic acid about every two days for over 6 months now. I must have the most expensive pee in my household.
 

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