Has Anyone Used A Nutritionist?

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CrohnsChicago

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Are there people here who have gotten consultation from a Nutritionist for your IBD (emphasis on Crohn's)?

What was your experience as far as the recommendations and "procedures" (if that is the right word) that they offered? Would you say that guidance from a nutritionist proved to be very helpful for you?

I have never seen a nutritionist before and am wondering what benefit they may be for me.
 
I've seen one for 28 years. Seing as everyones crohns is different, and i've just been reading a thread where some get to stuff themselves with anything, i would have to say that you might be able to sort a food journal yourself. many on here do and i often did. I see mine now for a tube change and various liquid diets.

would be interesting to see what others say. crohns focused ones might be able to offer you help, but i bet they don't have as much contact with crohns suffers as this site will provide you with.

good luck though.
 
I have seen nutritionists.

In my opinion, they aren't very helpful at all (at least the ones I've seen). I almost want to say half the people on the forum knows more than them on food. I went to a nutritionist and completely dumbfounded her with all my questions, and she couldn't answer a lot of them.

They tend to stick to the government guidelines on nutrition, that processed sugar can be beneficial, that dairy is an absolute staple... one even claimed that enzymes aren't harmed when in contact with heat (This is proven that they are damaged).

I doubt they would be able to help you with crohn's, but maybe I just got really unlucky with the two that I've seen.

Gianni

I had a nutritionist given to me in the hospital as well. The doctor told her that I was not to have dairy. As we are going over my meal plan, she sits there thinking for 5 minutes whether yogurt has dairy in it...
 
Ive only seen one and Gianni pretty much summed it up. Keep away from sugar and fatty foods, eat a balanced diet. When I told her what I eat on a regular basis she said it sounded greta and I should keep on doing it (even though I was flaring pretty badly).

I found this forum to be a lot more help
 
That's what I figured.

I just wanted to see if there was something I was missing regarding what they had to offer. Thanks for the advice, you two! :)
 
Personally, diet is really important for me. I didn't try changing what I ate until recently, after almost a decade of not caring. I kinda had no choice though, because none of the meds I was taking were helping at all. My GI doc referred me to a nutritionist who told me to go on a "low residue diet". It has definitely helped a lot! Basically a total turn-around. So, I guess it just depends on the person. :3
 
I did, but not for Crohn's because I had been misdiagnosed with IBS at the time. I saw a dietician on the NHS. I also saw a couple of private nutritionists.

Unfortunately, my experiences were very negative. But bear in mind they were working on the assumption I had a different condition than the one I actually had. I was unimpressed that they didn't work out something was wrong that wasn't IBS though!

The dietician said there was no reason I couldn't eat normal quantities of food without feeling full. This was inaccurate - I later found out I had delayed stomach emptying. The dietician wouldn't accept how hard it was for me to eat normal quantities and gain weight (I was underweight). She said feeling full was just my imagination. :frown: She didn't come up with any of the things that have actually helped me - for example, I later learned, through trial and error, to eat little and often and to eat low fibre. That's what works best for me. Obviously she couldn't have known that automatically - but then if you have to learn by trial and error, what's the use of a dietician?! She didn't even suggest these things as a possibilities to try. She just kept giving me guidelines about official goverment portion sizes and balancing protein/carbs/fats etc. Not helpful!

The private nutritions I disliked because they kept telling me I was allergic to things - when I'm not allergic to anything - and that I had to give up gluten, dairy, eggs, eat only organic, eat no processed food, etc. etc.. I was underweight - I didn't need more restrictions! I did follow their advice throroughly for a long time - I was so desperate for symptom relief I would try anything - and none of it made me feel the slightest bit better. It just made me neurotic about food and made it harder to keep my weight up. When I reported this back to them, they became almost angry and said I couldn't have been doing it properly, then stopped returning my calls. Both nurtritionists had this exact same reaction. I concluded they were quacks. :frown:

Sorry I don't have anything more positive to report - I'm sure my experiences shouldn't reflect on every dietician/nurtritionist, especially if you have one who knows about nutrition within a specific disease. But be aware that they do not necessarily know what's best! Even if they're not quacks, they can only go by general principles, which might not be best if you're not a typical patient. I would still say it's worth trying - just keep thinking about whether what they've said sounds reasonable before implementing it, and keep monitoring your symptoms. And don't be afraid to stop or tell them if you disagree or if something's not working for you. If they're good, they should listen to your views and be willing to adapt to your lifestyle/symptoms/tastes in order to help you with your diet.
 
I am sure there are some good nutritionists that can think outside the box. Try to find one that has had past experiences and success with treating C & UC. I rang about ten nutritionists and only found one who actually specialised in treating people with C & UC but unfortunately she was on maternity leave so I never got to see her. There was also one who had never even heard of Crohns or Ulcerative Colitis and obviously I gave that one a very wide berth. Ultimately though the advice I eventually received though a nutritionist was unhelpful.

The advice I got from the nutritionist was similar to the dietary advice I got from a gastrologist. In hindsight they both gave me useless advice. I didn’t know that at the time but I learnt the hard way through trial and error. I was told I needed a “balanced” diet and to do this I must consume things like red meat, pork, milk and grains / cereals every day. But over time I discovered that these very foods made me sicker and sicker.

Luckily I found a naturopath who didn’t follow the government food pyramid guidelines used by most nutritionists; which she told me were based more on profits than health anyway. With her dietary and supplement advice I got well again and can now maintain remission for long periods. Unless I do something stupid like I did three weeks ago but that is entirely another issue.
 
I am only 16, so my GI doc is pediatric. The practice has a nutritionist that basically works specifically with people with IBD. So, she knew hat she was doing. I guess if you want to go to one, make sure they are familiar with IBD. Maybe ask your GI doc for a recommendation? I personally would probably be in a lot worse shape right now without the advise of a nutritionist. I basically can only eat baby food though, so maybe I am a special case. :p
 
If you are going to see a nutritionist, I would recommend a holistic nutritionist, instead of a registered dietitian (RD). Although I'm sure there are some great ones out there, a lot of RDs follow the government/Big Food dogma of more whole grains, low fat, dairy, etc, which science is slowly debunking. Or they will recommend the low-residue diet, which in my experience, did absolutely nothing. A holistic nutritionist may be able to think outside of the box a little bit more and work with you to really customize a diet that will work.
 
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