Hello and my history

[Robcos02330]

Hi all. I'm Rob and I'm 51 and was diagnosed waaaaaaay back in 1980. Since that time I've had 6 abdominal surgeries that consisted of:

Resection
Resection
Total colectomy/partial ileostomy
Revision of the stoma
Another revision with adhesion complications that resulted in external fistula on my abdomen

And finally...last year...

Relocation of the stoma due to stricture resulting in....(drumroll)....MORE adhesions along with three minor strictures and one sever stricture and for icing on the cake....a newly formed peristomal hernia at the previous stoma site.

Whew...everyone catch all that?

Long story short...I'm now out of work and waiting to see a judge so I can hopefully collect SSDI. This will be the first time I've not worked due to my illness but the straw has been broken. Time to take life more slowly.

Anyway, nice to meet you all and I'll be asking advice elsewhere on the board about my latest dilemma....more surgery or not? Four strictures and a hernia are nothing to mess with but.....history says I'll only develop these issues all over again. :boring:

 

[ronroush7]

Welcome to the forum. I am sorry for all you have been through. Looming forward to hearing more from you

 

[fuzzy butterfly]

Hi Rob and welcome.. well that's a fair old ride you've had mate.
Sorry you have had to deal with all that. Glad you have found us here tho. We are a great help n support to each other thro good and bad times,so feel free to vent, ask questions or celebrate good news.
Best wishes Rob

 

[David]

Hi Rob and welcome to the community. Wow, I'm sorry to hear of your struggles. I can't imagine how hard it has been.

I hope you're able to get on disability! I've got to believe it's there for people like you.

I wish you well!