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Sep 8, 2010
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Hello, my name is Elle and I have been lurking for a couple of months. On July 9th, what I thought was a stomach flu with really urgent bathroom breaks began. After two weeks, the doctor thought I had eaten some bad fruit and gotten a parasite. By August 2nd the doctor was sure it was UC or Crohns. To be honest, I suspected it before he did, but I never mentioned it to him because I didn't want him to think I was a hypochondriac.

Where I live is a 2 year wait for a gastroenterologist, but having read the posts on this website (notably the one that suggested crying - THANKS), I managed some waterworks and got on a call back list for a random gastroenterologist when a cancellation occurred. I now have an appointment on November 9th, and hope to have a firm diagnosis shortly afterward. I have to say, the whole thing scares me... the pain, the fatigue, the altered diet (I can only fully tolerate lactose-free milk, very ripe bananas, hard boiled or poached eggs and white bread - I do eat other foods, but pay the price).

I have two young girls and am actually happy that I became sick right at the beginning of my husband's vacation because I was so determined to not ruin my daughters' vacation that I didn't allow it to stop me. I know I can do anything now, even though I'm ill, because I've done it during the summer. If I had become ill at any other time, I fear I would have let it control my life.

I have had my two daughters since birth, they are Amber 2 1/2 and Kaylee 1 year old. They are currently foster children, but we are in the final stages to adopting them. They are my life's breath and my universe.

In retrospect, I've had some symptoms of IBD for many years, I suppose if I had a regular doctor it would have been noticed much earlier, but there is a doctor shortage here. No one has a family doctor, we all use walk-in clinics.

I think, what I will miss most, is the ability to have spontaneous relations with my husband. He's very understanding, heck, he's cleaned up more vomit from me in the past months than from our children in their whole lives. But it's very "unstimulating" to have to ask how I'm feeling (meaning am I going to have a bowel accident) before becoming romantic. I find I'm also too nervous during to really enjoy myself either... but I guess that'll fade after time.

I was also an avid veggie eater, I LOVE salads and fresh vegetables. I really miss Greek salads fiercely. I guess I just have to keep reminding myself that life is not about the foods we eat, but about the people we spend it with.

Well, that's me. I hope to both contribute to this wonderful community and find support here.
 
I am sorry you have such a wait for answers. You are blessed to have a husband who understands and will stand by you no matter what the diagnosis - and your children will be all the health and life you need. :) I was just diagnosed and I can say I have definitely realized that this is all about the people around us, like you said. The sacrifices come on so quickly and they will continue to come, but our support system never has to be one of them. I hope we both can find support here. :)

Shannon
 
HI Elle! My goodness alot of Canadians lately. Really shouldn't surprise me as Canada has the highest incidence per capita in the world. Including little kids.

I agree in Canada the shortage of doctors is big, and getting a Gp is a mile long. We should of never changed the OHIP ins, too many people take advantage of little things and that puts a huge strain on the system. Specialist are anywhere from 6 months to 2 years, and I go tomorrow to get another referral as my Gi is heading for retirement. We have an amazing surgeon here but I am sure that will be down the road.

We do have to watch what we eat, I cant eat eggs, bloat like a cow and pain city. Whilst you are in a flare, most people use the Residue diet, the SCD diet or gluten free, or just avoid dairy.

I too have an amazing husband, that is my rock, and a 22 year old daughter headed for med school. So I have support everywhere and here! This community is amazing, so glad you found us! What area are you in?
 
Hi Elle, welcome to the forum. It was me who had posted the suggestion about crying in the other thread. So glad it worked for you! I also love salad but the last time I had a small salad, a few weeks ago, it kicked off a flare. I had about 3 bites of lettuce yesterday and am paying for it a little bit today, but not too bad.

Hang in there, still awhile to go until your appointment but certainly better than 2 years. The good news is, you have plenty of time to write down all the questions that you want to ask when you do go to your appointment. Good luck!
 
Hi Elle
and welcome

really hope you get some answers soon, you've got a lot on your plate at the mo!
It's great that you have such an understanding husband, it's certainly hard to be romantic when you're in pain and fretting about accidents, been there done that!
I like the low residue diet too, it works for me, I don't eat any coloured food when I'm flaring, and I eat salmon everyday (even tho it's pink!! lol) and boiled potatoes.
glad you found us, lots of friends here for you, we'll see you around!
lotsa luv
Joan xxx
 
Hi Elle, welcome!! I agree with Rebecca. Take advantage of the time before your appt and document all your symptoms along with what you eat. It could be the difference in getting a solid answer or not. With such long waits, you better take full advantage of your time with the GI!!! Good luck!!!
 
Welcome Elle, I hope you get some answers when you finally get to the GI. The wait is crazy to get in to them. When I made my appointment I had to wait 6 months to get in. I am glad you got in faster.
Good luck and again welcome
 
Thank you all so much for the warm welcome! I sure do appreciate all the great advice. I will be trying low residue, unfortunately I have found out that apples and all their products nearly kill me with pain... so no applesauce for me! For sure I will document everything, that link was invaluable!!! Thanks so much!

Pen, I live near Montreal - our doctor shortage is extreme here too. I almost hemorrhaged to death (uterine bleeding) a year and a half ago, waiting in the emergency room because there were no on call OB/GYNs. Finally, after the janitor spoke up for me (that's how much blood I was leaving in pools around the waiting room), they let me lay down... it was still another 2 hours of bleeding before they treated me with anything other than an IV drip. It's sick, all of our doctors move to the US after graduating McGill - but it's our own gov's fault. /end rant
 
Oh Elle that must of been a terrifying thing to have happened what a nightmare!!! Too bad about the doctors moving to the US. In the North here they have an incentative to get new doctors to stay in the north AFTER the graduate for 5 years. My daughter is in NOSM and wants to be a doctor, either surgery or ER. She wants to travel but she loves the North. She tried city life (Ottawa) but there is too much stress. She wants to do doctors without borders eventually but she knows the FDA her is better.

I have only had on OBGYN, most want females and females have babies...

Dont worry about rants are welcomed here, I can't believe you can tolerate applesauce, too bad, it helps.

Anything you need or want to know just ask someone is bound to help you out, glad you found us!
 
Hi Elle and :welcome:

I'm glad you found your way here. Wow, I knew there were issues with waiting times but I didn't realise they were that bad in some areas. It's good to hear you were able to get in earlier, great advice Cat!, and I hope you get the answers you need.

I can't add anything to great advice you've already been given except to say welcome aboard and I hope you stick around as we would love to have you here.

Take care, :)
Dusty
 
Hi Elle what great advise the folks have already given. I just came off of a weekend of giving my digestive system a rest. When I do that I eat saltiness crackers, natural applesauce that has no sugar added, bananas, white meat chicken or turkey, boiled potatoes and white bread toast and rice. Oh yea and string cheese. And lots and lots of water.

I am sorry that you have to wait so long for a doctor. That is crazy. I'm not familiar with the Canadian health care system. Is that normal? And someone else said it's hard to get a family physician so you have to use a clinic. Tha sounds kind of scary to me. I hope you get seen much sooner. In the mean time there is lots of support here that's for sure.
 
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