Hello everyone

[lindylooloo]

Hi there everyone,

My name is Linda and I am 50 and live in Luton.

I was first diagnosed with Crohn's disease in the Terminal Ileum about 8 years ago.

I think I am quite lucky as the only real symptom I have is PAIN, and sometimes like tonight it is really quite crippling.

I had surgery 3 years ago to sort out a fistula (nasty) and also suffer from terrible facial swelling which normally ends with a trip to A&E for an adrenalin shot and some anti histamine and steroids.

I am not on any medication, but this is my choice, my previous dr wanted me to go through another barium meal and endoscopy, and said following my last barium meal that my intestine showed some 'narrowing'.

Has anyone else started like this and if so ... did it get worse ... did it spread...

The pain tonight is so horrible but i am sure that a few pain killers and a good nights sleep will help.

thanks for listening / reading and hope you are all doing well.

take care

Linda

 

[David]

Hi Linda and welcome

If a previous test showed narrowing of your intestines, you have fistulizing Crohn's disease (severe), and you're not on any medications, then I can just about guarantee that your disease is going to continue to get worse. The pain you're feeling is likely partial obstructions. Think golf ball through a garden hose. As the inflammation and scarring continue to get worse, sooner or later you're going to have a full obstruction and that is very bad news.

You need to have the full extent of your disease properly evaluated and treated. We care about you and frankly, I'm very concerned

Please get the care you need and deserve.

*hugs*

 

[Angrybird]

Hi Linda and welcome to the forum

I can only second what David said and you need to get things checked out and then treated.

Please keep us updated on how you are getting on.

AB
xx