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Joined
Jul 13, 2009
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Only just discovered this forum tonight.

I'm a 24 year old from Scotland who has been living with Chrons since 2002.

I left my academy in 2002 with the intention of studying engineering at a local university, however, during the summer between institutions I became troubled by what felt like a pulled muscle at the top of my leg/buttock. This continued from June to August 2002 and got to the stage where I could start to feel a painful lump and I really started to worry about it being a tumour or something. I finally got up the courage to visit my doctor about my embarrassing problem and I was diagnosed with an abscess and sent home on a weeks worth of anti-biotics. The week was living hell with the abscess swelling up to twice it's size. At this point I should mention my weight as I had averaged around 8-9 stone since I hit 14-15 years old so at 17 my parents thought nothing of my lack of weight and put it down to puberty and growth "spirts." On my return to my doctor a week later I was given a advisory letter and told to report to the local hospital to have the abscess drained. During August of 2002 I had the operation to drain the abscess which had to be dressed by a day nurse visiting the house every morning. Just before I left hospital I was told that the abscess had started from a inflamed area of intestine and that I was suffering from Chron's. I didn't know what it was and nor did my parents but we kept on going and I did feel so much better.

Because of my new found illness my parents didn't want me to go to Uni to study so I decided to go to a local college instead and do engineering at diploma level to see it it really appealed to me - I didn't really know what I wanted to do TBH. I studied through my HND Mechanical and then went onto do my BSc Degree in Mechanical Engineering during this time.

In spring 2004 I remember having the worst night sleep you can imagine - I was feverish, tossing and turning in my sleep and generally feeling ill. A couple of days after this I had the strangest sensation ever - during urination I passed air (as best as I can describe it) and it really freaked me out to the extent I just broke down and cried - what was going on?! I went to see my doctor shortly after this and told him what was happening and he arranged to have me undergo investigation of my urinary tract/bladder with a camera - this freaked me out as a camera being put up your rear is one thing but a camera up your penis is a whole different level. Anyway I went in for the investigation and it was found that my small intestine, colon and bladder had fused together at one small "junction" and a tear had meant that air/gas could escape into my bladder from my intestine. Fantastic I thought as by this stage I was beginning to understand what I was dealing with.

My operation was scheduled for the 10th of November 2004 - two days before my 20th birthday. I was frightened to say the least as the doctors/surgeons told me of the risks to me. I was given an epidural in my spinal column prior to the operation going ahead and also marked out for emergency stoma if any complications were found.

Surgery for ten hours.

I woke up calmly and perfectly comfortable in a high dependency ward. I had a lovely scar, I was getting terrible muscle cramps on my stomach where the incision was made but apart from that I felt fine. My recovery took ten days and I left hospital fit and well. Everything was back to normal - I nearly couldn't remember what that was. Going to the toilet and just being normal - you couldn't have offered me anything in the world for that feeling.

I was started on a 150mg of Azathioprine soon after my op and I've been on it ever since.

I work for a large engineering firm as a project engineer and im living life to the full. I'll always have a scar down my front for the rest of my life but I just think that some people aren't even as lucky as me.

Hope that gives you a brief incite into my circumstances and I look forward to reading up on the information available on this site.

Cheers,
Rob.
 
Hi refunked, I am a newbie too!

Wow you are brave to go through all of that. It's great your Crohn's is stable on the azathioprine.

This is a great site!

Cerys :)
 
I'm of the mentality that what's happened has happened and I just need to get on with things and if it helps someone else know what I've gone through then that's brilliant. The specialist surgeon at the time had said that my case was one of the most complex he had had to deal with involving chrons

Forgot to mention that during my op I had my appendix removed (guess it's like tonsils these days) and the small infected sections. Apart from the scar (10-12" long on my front from stomach to pelvis I've nothing else bothering me.
 
:welcome: Rob. Glad to hear things are vastly improved. I'm with you in your thinking. What's happened happened and you can't change it, so move on and accept it. I agree. Sometimes that's easier to say then do, but good for you.
 

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