- Joined
- Aug 10, 2010
- Messages
- 98
hello fellow IBD'ers.
well lets see, ill try to keep this as short as i can. my name is chris and im a 25 year old farmer in the beautiful state of michigan. ive had all the symptoms of crohns for as long as i can remember, my mom once told me that even as a baby i was always in the doc's office for vomiting and diarrhea but they just always told her to give me pedia-lite....which apparently never worked. i lived on pepto bismol and immodium up thru my early teenage years, i had seen a couple doctors about my problems during that time and i was always told its just IBS. by the time i was 16 nothing worked and i was losing weight fast and getting very sick and the doctors still just said it was IBS and couldnt do anything for me. then i read an article about marijuana working for diarrhea, appetite stimulation, pain and so on, so i tried it and it was amazing. i was able to eat all i wanted without getting sick and i put all the weight back on and was almost symptom free til i was 19 or 20. then i fell back into the same old thing..diarrhea, nausea, cramps, the whole works. but i just dealt with it for a couple years, but i was slowly getting sicker and sicker and then one day at work i started having heart palpitations. so i went to the ER and my magnesium, b12, d levels were dangerously low...almost had no magnesium in my system at all. once the ER dr's heard about my past symptoms they referred me to a cardiologist and GE. the cardio found i have a prolapsed mitral valve which is no bid deal at all. the GE did a colonoscopy (terrible, painful experience) and upper endoscopy and found nothing in the colon and saw i had acid reflux with eosinophilic esophagitis. he said i was fine and wanted to send me on my way, i had to fight with him to give me something for the acid reflux...so i said screw him and went to a different GE. the new GE did an onslaught of blood tests and 2 capsule endoscopies and was completely stumped for a little over a year. he was ready to send me to the U of M hospital but had some new blood test he wanted to try, its called Prometheus. it showed that i have a "consistent pattern for crohn's disease"...not sure how it works but thats EXACTLY what it said. so he decided to put me on Pentasa...it was 4 times a day but dont remeber how many mg. i was on that for about a week with no change at all, then one morning i woke up with the worst abdominal pain ive ever felt..and im no stranger to abdominal pain at all. i carried on and fought through it for 2 and a half days, we were busy on the farm and didnt wana take the time off work...stupid me never thought it was the Pentasa causing it. on that third day at lunch i could barely walk so i called my mom to take me to the ER, they iv'd some pain meds in me and flushed my system and i was good to go a few hours later. then me GE put me on Prednisolone pack...that worked for about a week and thats when i was diagnosed with crohns. so next he put me on Entocort EC 9mg a day and that has taken away most of the symptoms, i still have cramping, vomiting out of nowhere 1-3 times a month and a few other problems but its getting better. and that pretty much brings us up to today. im still taking dexilant for the acid reflux and im on some vitamins (no heart problems since i started taking the magnesium), and i still cant eat most days unless i smoke some marijuana. i also suffer from joint and back pain which i take ultram during the day for and flexeril at night if i cant sleep, but i only take them when its real bad cuz i'd hate to get addicted to pain meds, the marijuana also works wonders for pain. i recently saw a rheumatologist and a bone scan showed mild inflammation in some areas, he gave me Mobic and that should work but i have to wait til i get off the Entocort before i can start on the Mobic. anyway, i think thats about it. see ya :runaway:
well lets see, ill try to keep this as short as i can. my name is chris and im a 25 year old farmer in the beautiful state of michigan. ive had all the symptoms of crohns for as long as i can remember, my mom once told me that even as a baby i was always in the doc's office for vomiting and diarrhea but they just always told her to give me pedia-lite....which apparently never worked. i lived on pepto bismol and immodium up thru my early teenage years, i had seen a couple doctors about my problems during that time and i was always told its just IBS. by the time i was 16 nothing worked and i was losing weight fast and getting very sick and the doctors still just said it was IBS and couldnt do anything for me. then i read an article about marijuana working for diarrhea, appetite stimulation, pain and so on, so i tried it and it was amazing. i was able to eat all i wanted without getting sick and i put all the weight back on and was almost symptom free til i was 19 or 20. then i fell back into the same old thing..diarrhea, nausea, cramps, the whole works. but i just dealt with it for a couple years, but i was slowly getting sicker and sicker and then one day at work i started having heart palpitations. so i went to the ER and my magnesium, b12, d levels were dangerously low...almost had no magnesium in my system at all. once the ER dr's heard about my past symptoms they referred me to a cardiologist and GE. the cardio found i have a prolapsed mitral valve which is no bid deal at all. the GE did a colonoscopy (terrible, painful experience) and upper endoscopy and found nothing in the colon and saw i had acid reflux with eosinophilic esophagitis. he said i was fine and wanted to send me on my way, i had to fight with him to give me something for the acid reflux...so i said screw him and went to a different GE. the new GE did an onslaught of blood tests and 2 capsule endoscopies and was completely stumped for a little over a year. he was ready to send me to the U of M hospital but had some new blood test he wanted to try, its called Prometheus. it showed that i have a "consistent pattern for crohn's disease"...not sure how it works but thats EXACTLY what it said. so he decided to put me on Pentasa...it was 4 times a day but dont remeber how many mg. i was on that for about a week with no change at all, then one morning i woke up with the worst abdominal pain ive ever felt..and im no stranger to abdominal pain at all. i carried on and fought through it for 2 and a half days, we were busy on the farm and didnt wana take the time off work...stupid me never thought it was the Pentasa causing it. on that third day at lunch i could barely walk so i called my mom to take me to the ER, they iv'd some pain meds in me and flushed my system and i was good to go a few hours later. then me GE put me on Prednisolone pack...that worked for about a week and thats when i was diagnosed with crohns. so next he put me on Entocort EC 9mg a day and that has taken away most of the symptoms, i still have cramping, vomiting out of nowhere 1-3 times a month and a few other problems but its getting better. and that pretty much brings us up to today. im still taking dexilant for the acid reflux and im on some vitamins (no heart problems since i started taking the magnesium), and i still cant eat most days unless i smoke some marijuana. i also suffer from joint and back pain which i take ultram during the day for and flexeril at night if i cant sleep, but i only take them when its real bad cuz i'd hate to get addicted to pain meds, the marijuana also works wonders for pain. i recently saw a rheumatologist and a bone scan showed mild inflammation in some areas, he gave me Mobic and that should work but i have to wait til i get off the Entocort before i can start on the Mobic. anyway, i think thats about it. see ya :runaway:
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