R
ronyan
Guest
Well, I'm new here. Here's my story. I'm a male, 6'1" and now 21 years old.
In July 2003 I was admitted to a local hospital with pain in my lower right side, mild fever and night sweats. It had started out as a dull sensation a few days earlier but it was a constant burning pain by the time I was admitted. I was in the hospital for 3 or 4 days and during that time they noticed that my white count was mildly elevated, they referred me to a GI in Houston, TX.
The next couple months were very rough and I started losing a lot of weight. I had blood in my stool, diarrhea, weakness, and pain in the same area. I also developed an anal skin tag which was very uncomfortable. I had an upper endoscopy and colonoscopy which found inflammation in my esophagus, stomach and colon. On Sept. 10 2003, at 17, I was diagnosed with Crohn's. Thank God for the relatively quick diagnosis. I was initially put on prednisone 60 mg/day and imuran 125 mg/day. Well this only mildly improved my symptoms and by late October I was in the hospital again (in Houston this time). My weight had gone from 205 to 155 lbs during these few months and I was exhausted on top of everything else. They did an upper GI series to check for narrowing of my small intestine (came back good) and I was given remicade this time and it put me into remission.
During the months that followed I was able to put back on some of the weight I had lost and was up to 170 lbs in about 18 months. 2005 was a good year with minimal symptoms and generally feeling very good. I've only had minor flare-ups in the past couple years while on remicade. I stopped the pred soon after I got out of the hospital.
Well, I switched to humira injections about 8 months ago for convenience. In the last week of June this year I started having trouble with bloating and stomach pains. The doctor put me on entocort 3 mg 3x daily and ordered an upper endoscopy. He did the endoscopy 2 weeks ago and said that it looked decent and I have a follow up appointment this Wednesday. However, even though I'm on humira, imruan and entocort I've been losing weight again. I've lost about 8 lbs in 6 weeks and I'm down to 164 lbs now. I've had a decreased appetite, still having stomach pains and bloating, and generally feeling poorly. I'm just a little concerned about this I guess.
In July 2003 I was admitted to a local hospital with pain in my lower right side, mild fever and night sweats. It had started out as a dull sensation a few days earlier but it was a constant burning pain by the time I was admitted. I was in the hospital for 3 or 4 days and during that time they noticed that my white count was mildly elevated, they referred me to a GI in Houston, TX.
The next couple months were very rough and I started losing a lot of weight. I had blood in my stool, diarrhea, weakness, and pain in the same area. I also developed an anal skin tag which was very uncomfortable. I had an upper endoscopy and colonoscopy which found inflammation in my esophagus, stomach and colon. On Sept. 10 2003, at 17, I was diagnosed with Crohn's. Thank God for the relatively quick diagnosis. I was initially put on prednisone 60 mg/day and imuran 125 mg/day. Well this only mildly improved my symptoms and by late October I was in the hospital again (in Houston this time). My weight had gone from 205 to 155 lbs during these few months and I was exhausted on top of everything else. They did an upper GI series to check for narrowing of my small intestine (came back good) and I was given remicade this time and it put me into remission.
During the months that followed I was able to put back on some of the weight I had lost and was up to 170 lbs in about 18 months. 2005 was a good year with minimal symptoms and generally feeling very good. I've only had minor flare-ups in the past couple years while on remicade. I stopped the pred soon after I got out of the hospital.
Well, I switched to humira injections about 8 months ago for convenience. In the last week of June this year I started having trouble with bloating and stomach pains. The doctor put me on entocort 3 mg 3x daily and ordered an upper endoscopy. He did the endoscopy 2 weeks ago and said that it looked decent and I have a follow up appointment this Wednesday. However, even though I'm on humira, imruan and entocort I've been losing weight again. I've lost about 8 lbs in 6 weeks and I'm down to 164 lbs now. I've had a decreased appetite, still having stomach pains and bloating, and generally feeling poorly. I'm just a little concerned about this I guess.
it's so frustrating they say it's water weight but geese the prednisone isn't helping and it seems like i'm never gonna get off of it. anyway i guess i just wanted to say i'm jealous
