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Crohn's Disease Forum

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Aug 29, 2009
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Hi there I just joined the forum and I will fill you in on my story.

I live in London and am 36. I was diagnosed at the age of 14. After some steriods I had a small part of my intestines removed and then have used diet to control my chrohns. This has been sucessfull to varying degrees. I am lucky that with the diet I have (I am quite strict) I have not had any bad effects and have been medicine free for the last twenty something years.

2 years ago I went to mexico for 2 weeks and got quite ill, I lost 11lb in the time there and have not put it back on. This year I had an abcess (the first time) and it would not go so I had some antibiotics for 2 weeks to get rid of it (I never have them as they always make me ultra ill), this time I had to have them to get rid of the blasted abcess.

After this I have not been back to normal and 2 weeks ago I had a colonoscopy. This made me ill for about a week and now Im still not 100%.

I have not had medicines for 20 years so am looking forward to see what they have to offer.

anyway thats my long story, sorry to bore you all.
 
thanks allot Shantel, I have acidocopholus (SP) and it did the trick for a while but i have an app with the specialist in a months time so will see what they can do nowadays. I have to try and control it with diet anyway because goign to the toilet 15 times a day till i see the doc is not a nice thing.
 
Hello sashaz,

I too had a freakishly long remission after my operation, until my Crohns reactivated last year. So I know where you're coming from.
 
Welcome! - I went to Mexico years ago and you know, I have never been right since!!!! I got montazuma's (sp?) revenge and I have always wondered, if you believe the bacterial theory ...if that was the beginning of all my problems... Anyway, do they have Remicade in the UK? If you are going 15 times a day you definately need some new drugs to calm things down in addition to the diet..Good luck and keep us posted
 
Welcome! I live just up the road - North London borders - hope you've joined the NACC - they are very helpful.

Get well soon x (I'm a big fan of pentasa at the moment, although the damn things are as big as frizbees and keep getting stuck between my ultra huge tonsils).

Lishyloo.
 

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