Hello - Nice to join you!

[Tinkerbell]

Hello, I am so glad that I have found this forum.

I was diagnose with Crohn's disease during my A levels, the Doctors thought that the symtoms were IBS, stress related due to exams etc etc etc etc. Being 5ft5 and weighed 8st went down to 7 st in 2 weeks one doctor decided it was time to go to hospital. I was eventually diagnosed with Crohn's disease which was such a relief at the time as I new I would get help.

I have been on steroid treatment on and off during the first 4/5 years of the disease until I had a bone scan and was diagnosed with oesteoporosis. So no more steroids for me!

I have been fortunate not to need an operation, I am currently on Humira (adalimumab) injections which seem to be working, however after 7 years of the disease and 25 years of age I still struggle dealing with the problems this disease brings and I think this forum will help...

 

[rottengut91]

welcome

:welcome: I too joined recently. Lots of great peolple and great advice.
:hang:

 

[Rebecca85]

Hi tinkerbell and welcome to the forum! There are plenty of us young'uns about somewhere (I'm 25 too). Are you struggling with anything in particular?

 

[Domas]

Hello, I am from Dubrovnik,Croatia and I once again hello to everybody in this forum!!!

 

[Nancy Lee]

Hello and welcome to Tinker and Domas!
Hope you both find lots of help here
and make lots of friends who are in the same boat.


Hugs~Nancy

 

[TMos]

Welcome. Domas, I was in Dubrovnik in 1989. Beautiful city. It's a shame what happened to it during the war. I thought it was pretty much destroyed.

 

[Domas]

Thanks. Do come in again, you will enjoy

 

[Amc2861]

Hi, I have not been on in awhile. My daughter has Crohn's and had surgery a year ago August. She has been doing well and is on mercaptopurine, remicade, vitamin b, vitamin d, and folic acid. After surgery she did great and eats pretty normal. My concern is that she has been gaining weight and is now 165 pounds, she was down to almost 65 pounds when she was sick. She is not very active, does love to swim and ride her bike. She is 14 and was diagnosed when she was 12. She does stay away from popcorn, corn and most raw veggies. I worry that symptoms will come back. She was also on prednisone on and off before her surgery.

 

[seaofdreams]

Hey Tinkerbell and welcome
Like Rebecca said, there are quite a few of us on here in our 20's so we can all relate to what you're going through and we're always happy to talk and listen.
I'm glad you're doing well on Humira
There's a Humira club thread that you might find interesting or where you might be able to help others by sharing your experiences: http://www.crohnsforum.com/showthread.php?t=6500&page=15&highlight=humira

 

[Crohn's 35]

Hello, I am from Dubrovnik,Croatia and I once again hello to everybody in this forum!!!

Welcome Domas glad you found your way here, it would be great if you could tell us your story on a your story thread, so everyone can meet and greet you, very friendly place here!

 

[Crohn's 35]

Hello, I am so glad that I have found this forum.

I was diagnose with Crohn's disease during my A levels, the Doctors thought that the symtoms were IBS, stress related due to exams etc etc etc etc. Being 5ft5 and weighed 8st went down to 7 st in 2 weeks one doctor decided it was time to go to hospital. I was eventually diagnosed with Crohn's disease which was such a relief at the time as I new I would get help.

I have been on steroid treatment on and off during the first 4/5 years of the disease until I had a bone scan and was diagnosed with oesteoporosis. So no more steroids for me!

I have been fortunate not to need an operation, I am currently on Humira (adalimumab) injections which seem to be working, however after 7 years of the disease and 25 years of age I still struggle dealing with the problems this disease brings and I think this forum will help...

Welcome :bigwave: glad you are joining us. Stress is a major culprit for this disease and many others. Prednisone works in high doses but best to avoid it long term. I just got off pred and I lost two pounds cause I know how easy it is to gain weight on it. Also the weight is hard on your joints and bones. Taking adequate Calcium and Vitamin D3 helps the bones and the disease.

Glad the Humira is working for you, I tried it for 6 months and then stopped working. Hope you continue to be stable.:ysmile:

 

[DustyKat]

Hi Tinkerbell and :welcome:

It's good to hear the Humira is working for you, YAY! Yep lots of members around your age so you will be a very welcome addition. Stick around and browse through the forums, any questions just fire away..........welcome aboard!

All the best,
Dusty

 

[Dexky]

Welcome Tink!! Hope all continues to go well for you!! See you around!

 

[Tinkerbell]

Thank you for all your comments. I have found the Humira club I have only been a member fo 1 day and I feel better already !

 

[Astra]

Hi Tinkerbell
and welcome

I know all about the IBS dx, was told it for donkey's years!
Frightening stuff Pred, but it works! I don't think I'll consider going on it again after this lot is finished tho, not unless I'm at death's door!
Glad you found us, lots of friends here for you!
lotsa luv
Joan xxx

 

[Crohn's_Doll]

Welcome tinkerbell and domas!! I'm also doing the humira shots once a week. Glad it's working for you.

 

[girlygirl]

Hi Tinkerbell!!! This forum is wonderful! As are the members!