- Joined
- Dec 22, 2010
- Messages
- 4
First off I would like to say hello and thanks for having me on this, what appears to be a great online community! I would like to introduce myself, my name is Phillip, I am 22 years young and a Crohns sufferer.
I guess there's no better place to start my story off than at the beginning. I was first diagnosed with Crohns Disease at age six. Very frustrating being told you will never be the same as the other kids. But I never let it stop me, my body did, but my mind set never did. I tried to do MORE than the other kids growing up and kept right up with them. I moved to Phoenix, AZ at age 9 and had 7 great, remission filled years. Which brings me to what I would consider the current. When I was 16 we moved back to Ohio and my problems started again. Constant flares, aches, pains, ectect everything associated with Crohns.
Fast forward to November of 2009. I started having an incredible flare one of the worst I had ever experienced. I went from being a "typical american" (IE 5'11 280 glorious america lovin pounds :lol: ) to a scrawny person (IE 5'11 179lbs). Now this is where things get somewhat interesting, not having any form of health insurance I did the dumbest thing I could have done, I avoided the doctor and tried to let it heal on my own. BAD idea I know. Move to January '10 when I found a doctor that would see me on an emergency basis who got my approved for Cimzia. It worked great for the first couple months until April of '10 when I ran into my first batch of serious health issues.
I went into the hospital with Bi-lateral P.E.s caused by DVT, anemia and low hemoglobin. The put an IVC filter in me to catch any further blood clots seeing as I did have an active colitis attack going. We attacked that with meds and thought I was good, which brings me to my current, not so good state.
This past Thursday I went back into the hospital with MORE P.E.s caused once again by anemia and low hemoglobin. We didn't know why as I had no obvious bleeding. Well Saturday they did a colonoscopy on me and saw my colon lined with oozing ulcers. There was our answer, right infront of my 22 year old eyes. In 16 years of having this disease this is the worst I have ever had it. P.E.s caused by this disease which is finally starting to bring me down.
I did start the long battle back in April of attempting to get Social Security Disability. I have tried to work many part time jobs and my doctors agree that my body just cant handle it.
Now comes the complicated part, medicines! Seeing as I dont have any health insurance, I am at the mercy of the pharmicudical companies. My doctors are recommending Remicade. Which I am going to give a go, they are the experts! haha!
I am sorry if this seems rambly, I am just excited to finally talk to some people who have the same issues as me. Maybe help me get through this a little bit. Thanks everyone!
I guess there's no better place to start my story off than at the beginning. I was first diagnosed with Crohns Disease at age six. Very frustrating being told you will never be the same as the other kids. But I never let it stop me, my body did, but my mind set never did. I tried to do MORE than the other kids growing up and kept right up with them. I moved to Phoenix, AZ at age 9 and had 7 great, remission filled years. Which brings me to what I would consider the current. When I was 16 we moved back to Ohio and my problems started again. Constant flares, aches, pains, ectect everything associated with Crohns.
Fast forward to November of 2009. I started having an incredible flare one of the worst I had ever experienced. I went from being a "typical american" (IE 5'11 280 glorious america lovin pounds :lol: ) to a scrawny person (IE 5'11 179lbs). Now this is where things get somewhat interesting, not having any form of health insurance I did the dumbest thing I could have done, I avoided the doctor and tried to let it heal on my own. BAD idea I know. Move to January '10 when I found a doctor that would see me on an emergency basis who got my approved for Cimzia. It worked great for the first couple months until April of '10 when I ran into my first batch of serious health issues.
I went into the hospital with Bi-lateral P.E.s caused by DVT, anemia and low hemoglobin. The put an IVC filter in me to catch any further blood clots seeing as I did have an active colitis attack going. We attacked that with meds and thought I was good, which brings me to my current, not so good state.
This past Thursday I went back into the hospital with MORE P.E.s caused once again by anemia and low hemoglobin. We didn't know why as I had no obvious bleeding. Well Saturday they did a colonoscopy on me and saw my colon lined with oozing ulcers. There was our answer, right infront of my 22 year old eyes. In 16 years of having this disease this is the worst I have ever had it. P.E.s caused by this disease which is finally starting to bring me down.
I did start the long battle back in April of attempting to get Social Security Disability. I have tried to work many part time jobs and my doctors agree that my body just cant handle it.
Now comes the complicated part, medicines! Seeing as I dont have any health insurance, I am at the mercy of the pharmicudical companies. My doctors are recommending Remicade. Which I am going to give a go, they are the experts! haha!
I am sorry if this seems rambly, I am just excited to finally talk to some people who have the same issues as me. Maybe help me get through this a little bit. Thanks everyone!
