Hello

[jasmin.taylor]

hello

Hi there!

I'm Jasmin and I am a 22 year old student, well I'm currently not in school because I'm sick, but I guess I do consider myself a student still.

I attended Dalhousie University in Halifax, Nova Scotia for two years and had to come home to Toronto because of frequent flareups. All that the Doctors would do there would be to just prescribe me Prednisone. I also started Humira, 40mg/weekly before going to Halifax; I've been on it now for three years. Before starting the Humira, I was on Remicade and was given Imuran (which I learnt I am allergic to). I've tried pretty much everything and now my GI and I are discussing adding methotrexate to my weekly Humira dosage. Unfortunately surgery isn't really an option for me as the CD effects too many places in my digestive system. My family and I are getting quite impatient and frustrated that I end up in the hospital every 2-3 months and there isn't really anything to do other than prednisone; which I now refuse to take. The drug is just awful and when tapering down, my symptoms come back so rapidly that I find it isn't even worth it.

It's been difficult living with this for 5, almost six years. I don't blame my friends for losing patience sometimes, as my energy can rapidly change within an hour. I hate having them feel sorry for me and pitying me. I've had one relationship, and he was there for me throughout the diagnoses, but after that I felt uncomfortable with explaining CD to him.

I'm starting to loose faith a bit, I'm scared I will never get better. I just want to be normal, I'm sick and tired of being sick and tired!

JT

 

[xJillx]

Hi Jasmin and welcome! I am sorry that nothing seems to be working for you. I sure hope that adding the methotrexate to the Humira does the trick.

Do you notice food really affects your symptoms? Have you tried any specific diets? Supplements? Probiotics? Maybe a little bit of this and a little bit of that with your new treatment plan could help. I sure hope you start to feel better soon. Hang in there!!

 

[Crohn's 35]

Hi Jasmine, :bigwave: it is very hard to deal with this disease, and being in University is even harder, so sorry all this is happening to you. I found that strange the surgery is not an option and how far apart are the diseased area? The Terminal Ileum is the most common. Maybe you should seek a second opinion, you are far too young to be on all these medications with no surgery option, find that unbelievable, something has to help. Methotrexate works for some but I find the shot is far more absorbable, than pills. Make sure you take folic acid for that. Keep us updated on how you are feeling. Big hugs to you.