- Joined
- Feb 24, 2011
- Messages
- 40
Here's the short and sweet of it.
This gal was diagnosed with Crohns back in 2006. It was very unexpected tho. At that time I had very little symptoms of diarrhea or tummy pain, etc.
So 2006, I went to see the ear, nose, throat doc because half my lower lip swelled up and didn't go down for months. In addition I had little canker sores appearing and not healing and the inside of my cheeks were getting thicker and kind of rough. A biopsy was taken and after seeing the results I was referred me to a GI doctor which he took some blood work and did a colonscopy and came to the conclusion of crohns.
Initially I was kind of shocked and in disbelief. I didn't do anything about it tho because I wasn't having and signs or symptoms. It was about half a year later when the gut pain and diarrhea started becoming more frequent. I was on an off various medications (prednisone, entercort, flagyl, pentasa )till 2009. I had a major break up then and stopped taking all my meds and neglected my health for some time.
2010 rolls around and gradually signs of my disease are worsening from mild gut pain to severe joint stiffness, nausea, vomiting, fatigue and feeling full. At that point I was back on prednisone and pentasa but it neither was helping. I remember feeling very helpless at that point because even with multiple trips to the ER, they couldn't help me. They would just re-hydrated me, give me some hydrocodone and send me home. I was down to eating once a day if I could stomach it and vomiting daily. I passed out at work and finally had to quit because I was getting too sick to do anything.
I finally landed in the hospital in July '10 after having the most painful experience ever in my life. Shortly after midnight , I endured waves and waves of excruciating gut and referred shoulder pain for 3 hours before waking my mom up and having her call the ambulance. I was admitted at the hospital weighing a pathetic 90lbs w/a partial blockage. After two weeks of nurses, TLC and a miracle drug called Remicade I was out and slowly on the mend.
Note: I hope none of you have to experience that.
It's too awful!
Fast forward to now. Doc, says the inflammation is still moderate to severe but the gut shows sign of slow improvement . The odd thing is, I'm not having and signs or symptoms so it makes me wonder how bad can the inflammation be?
Also, I am concerned the recent barium enema I had showed narrowing in the descending colon which is new; that area was never affected before . . . so yeah. Wondering what we're gonna do about that now. Anywho, just wanted to write down the meat of my history and there ya go.
:yoshijumpjoy:
Sorry for any grammar or spelling issues. It's way past my bedtime. Like 8 hours past.
This gal was diagnosed with Crohns back in 2006. It was very unexpected tho. At that time I had very little symptoms of diarrhea or tummy pain, etc.
So 2006, I went to see the ear, nose, throat doc because half my lower lip swelled up and didn't go down for months. In addition I had little canker sores appearing and not healing and the inside of my cheeks were getting thicker and kind of rough. A biopsy was taken and after seeing the results I was referred me to a GI doctor which he took some blood work and did a colonscopy and came to the conclusion of crohns.
Initially I was kind of shocked and in disbelief. I didn't do anything about it tho because I wasn't having and signs or symptoms. It was about half a year later when the gut pain and diarrhea started becoming more frequent. I was on an off various medications (prednisone, entercort, flagyl, pentasa )till 2009. I had a major break up then and stopped taking all my meds and neglected my health for some time.
2010 rolls around and gradually signs of my disease are worsening from mild gut pain to severe joint stiffness, nausea, vomiting, fatigue and feeling full. At that point I was back on prednisone and pentasa but it neither was helping. I remember feeling very helpless at that point because even with multiple trips to the ER, they couldn't help me. They would just re-hydrated me, give me some hydrocodone and send me home. I was down to eating once a day if I could stomach it and vomiting daily. I passed out at work and finally had to quit because I was getting too sick to do anything.
I finally landed in the hospital in July '10 after having the most painful experience ever in my life. Shortly after midnight , I endured waves and waves of excruciating gut and referred shoulder pain for 3 hours before waking my mom up and having her call the ambulance. I was admitted at the hospital weighing a pathetic 90lbs w/a partial blockage. After two weeks of nurses, TLC and a miracle drug called Remicade I was out and slowly on the mend.
Note: I hope none of you have to experience that.
It's too awful!Fast forward to now. Doc, says the inflammation is still moderate to severe but the gut shows sign of slow improvement . The odd thing is, I'm not having and signs or symptoms so it makes me wonder how bad can the inflammation be?
Also, I am concerned the recent barium enema I had showed narrowing in the descending colon which is new; that area was never affected before . . . so yeah. Wondering what we're gonna do about that now. Anywho, just wanted to write down the meat of my history and there ya go.
:yoshijumpjoy:
Sorry for any grammar or spelling issues. It's way past my bedtime. Like 8 hours past.
