Help!!!my Hair

[TammySue62]

I cant believe this. Its been over 3 months now that my hair is just falling out in gobs.I swear my body must think that it is taken chemo therapy.At this rate It feels and looks that Im going bald. For the life of me I cant (nor the drs.can)figure out why!I no having CD and being on Pred.and stress can make your hair fall out but not this bad. I even asked my dr. to take blood work to see if I was anemic.Thought that I might be lacking iron or b12,But the tests came back fine.

Some of you no that I started taking Humria about 3 months ago could this be the case?
Does anyone have any thoughts,ideas or answers ?
I am really freaking out. My hair is really really really important.
No I dont want to cut it short. I have never had short hair or this problem in my life.

HELPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPPP

 

[vickyoddsocks]

I cant really think of anything im afraid. Ive lost a heck of alot of hair since having crohns, but fortunately i had super thick hair to start with, but i miss my lovely thick hair
I hope you find out a cause or it slows for you.
XXX

 

[My Butt Hurts]

Yup. Hair loss is one of the side effects that can occur when taking Humira. Along with upper respiratory infections, headaches, rash, nausea - and these are just the common ones. Go to Humira.com to get full prescribing info.
I just took my first doses 3 days ago. I love my hair too. Just yesterday I said to my husband that I'd rather have my hair falling out than have uncontrollable diarreah, but I'm not so sure if I'm telling myself the truth.
All I can say is sorry. I know how we love our hair.

 

[Ilysha]

Tammy Sue,

I have a great tip for you. NIOXIN Shampoo and Conditioner. It does wonders to help your hair grow back. Beauty Supply stores in the U.S. carry it, hopefully you can find it in Ontario too, or online. It smells a bit strong and minty, but works great.

When was the last time you were on Pred? I've found that the the hair loss occurs a good 3-6 months after taking the medication, and my hairdresser (yes, hairdresser's know everything!) says that he's heard that from many clients--the hair folicles have a delayed reaction.

Try the Nioxin. I'm sure it will help. You'll start notice results in about 2-3 weeks.

Good luck.
-Ilysha

 

[Ilysha]

Tammy Sue,

I have a great tip for you. NIOXIN Shampoo and Conditioner. It does wonders to help your hair grow back. Beauty Supply stores in the U.S. carry it, hopefully you can find it in Ontario too, or online. It smells a bit strong and minty, but works great.

When was the last time you were on Pred? I've found that the the hair loss occurs a good 3-6 months after taking the medication, and my hairdresser (yes, hairdresser's know everything!) says that he's heard that from many clients--the hair folicles have a delayed reaction to medications.

Try the Nioxin. I'm sure it will help. I've used it through 3 different rounds of prednisone and it's been a life saver each time. You'll start notice results in about 2-3 weeks.

Good luck!!
-Ilysha

 

[katiesue1506]

I stopped losing my hair when I started Humira... I think I was losing it due to Imuran and Pred... but the hair loss lasted a good 3-4 months afterwards.

 

[Digits]

i havent foudn any hairloss, but i have a big issue with GREASYNESS.

ill shower, and then like 6 hours later it looks like i havent showered in a week!

 

[TammySue62]

Tammy Sue,

I have a great tip for you. NIOXIN Shampoo and Conditioner. It does wonders to help your hair grow back. Beauty Supply stores in the U.S. carry it, hopefully you can find it in Ontario too, or online. It smells a bit strong and minty, but works great.

When was the last time you were on Pred? I've found that the the hair loss occurs a good 3-6 months after taking the medication, and my hairdresser (yes, hairdresser's know everything!) says that he's heard that from many clients--the hair folicles have a delayed reaction.

Try the Nioxin. I'm sure it will help. You'll start notice results in about 2-3 weeks.

Good luck.
-Ilysha

Thanks I will try and find some here.
I have never stopped taken pred. Cant get below 2 tabs.All kinds of things start to happen and also the uncontrollable pain.So My Gi said to take 2 a day for years now

 

[TammySue62]

I stopped losing my hair when I started Humira... I think I was losing it due to Imuran and Pred... but the hair loss lasted a good 3-4 months afterwards.

Hi
Its going on 4 months now and still coming out in gobs. I was told not to use creme rinse or conditioner because it has some type of wax in it and it also relaxes your hair.
Also I can only wash and come my hair every 5 days.By then i cant stand it anymore.If I have to go out I put a hat on.

Some one just told me this weekend to try rinsing my hair with half vinegar and water. So I did and will have to wait and see.

THANKS

 

[ruthymg]

Aw Tammy, what a crap thing to have to put up with on top of everything else. I haven't tried the Humira, don't like the sound of it either but as you know I did have the Imuran for ages and that made my hair fall out, not so as there was bald patches or anything it just became thinner. Its ok again now though. I really don't know what to suggest, why not try looking up some kind of herbal remedy, you may have some luck there. Hope you find something soon. x



Ruth

 

[Kev]

Hmmm, here's a thought (yet keep in mind the source) but I'm wondering if what is at play here isn't too little protein.. Like, isn't hair like mostly composed of that (except of course that its' dead)... like fingernails... just sort of an aberrant skin cell. Maybe what some of us need is an 'unbalanced' diet. Like, my hair is way too thick and full... but I'm on a high protein diet thats' off the chart for 'normal' folks. And if your GI tract is compromised, and you aren't absorbing enuff protein anyway... It's not like you can get protein in vitamins.

 

[TammySue62]

Aw Tammy, what a crap thing to have to put up with on top of everything else. I haven't tried the Humira, don't like the sound of it either but as you know I did have the Imuran for ages and that made my hair fall out, not so as there was bald patches or anything it just became thinner. Its ok again now though. I really don't know what to suggest, why not try looking up some kind of herbal remedy, you may have some luck there. Hope you find something soon. x



Ruth

Hey Hi
I had a chat with my pharmacist yesterday.She was looking in her medical book and it said that 22% of people taking Humira will experience hair loss.

Just more great news,guess I am one of the 22% aye

She also told me that she would do some more research and get back to me.
Lets see if she does!!!

 

[TammySue62]

Tammy Sue,

I have a great tip for you. NIOXIN Shampoo and Conditioner. It does wonders to help your hair grow back. Beauty Supply stores in the U.S. carry it, hopefully you can find it in Ontario too, or online. It smells a bit strong and minty, but works great.

When was the last time you were on Pred? I've found that the the hair loss occurs a good 3-6 months after taking the medication, and my hairdresser (yes, hairdresser's knowno now everything!) says that he's heard that from many clients--the hair folicles have a delayed reaction.

Try the Nioxin. I'm sure it will help. You'll start notice results in about 2-3 weeks.

Good luck.
-Ilysha

Hi and thanks
I have been on pred. for yrs. Tried to get off them but my body will not let me. I get really bad muscle and joint pain,worse "D" ,excema breaks out,worse vision,and the list continues.

I definitely no now that my hair loss is due to the Humira!!!

Crohn's has taken more then half of my vision,most of my (FUN) life.I will not let it make me slowly go bald.

So I have decided to stop the Humira injections.Time will tell what happens to me and my body.

 

[Ilysha]

HI Tammy Sue,

Good luck with your decision. Sounds like the right move.

I still would urge you to try Nioxin. It really works wonders!

Best wishes,

Ilysha

 

[Kev]

Welll, after my 2nd bout with this disease (but way before the correct diagnosis) a friend became ill... and died 6 months later from leukemia. During that struggle, she lost all of her hair from chemo... coincidently the same drugs a lot of us take, tho in milder doses (then again, for us it's not a life/death, all or nothing battle). however, the Cancer Society provided her a wig (really expensive one, free) due to her hair loss. Now, I've heard people on here do a lot of talking about 'public bathroom keys', or 'handicapped parking' closer to the public washrooms, or even applying for welfare or social assistance due to the economic impact this has on us.., but I've never heard ANYONE question as to whether ANY charitiable group provides things like 'wigs' for folks who lost or are losing their hair. I wonder if the CCFA, or other organizations, provide this?

Anyone any info? Hey, if it were me, I wouldn't care.. my hair always bugged me.. and I look good bald.. But, I know people who have lost their hair, and it is a big (and REAL) deal to them.. And if there's a possibility that there is help out there, someplace, then here's the place to post that info. And if there isn't, then here's the opportunity for folks like us to try to get the hairball rolling, OK?

 

[drew_wymore]

Welll, after my 2nd bout with this disease (but way before the correct diagnosis) a friend became ill... and died 6 months later from leukemia. During that struggle, she lost all of her hair from chemo... coincidently the same drugs a lot of us take, tho in milder doses (then again, for us it's not a life/death, all or nothing battle). however, the Cancer Society provided her a wig (really expensive one, free) due to her hair loss. Now, I've heard people on here do a lot of talking about 'public bathroom keys', or 'handicapped parking' closer to the public washrooms, or even applying for welfare or social assistance due to the economic impact this has on us.., but I've never heard ANYONE question as to whether ANY charitiable group provides things like 'wigs' for folks who lost or are losing their hair. I wonder if the CCFA, or other organizations, provide this?

Anyone any info? Hey, if it were me, I wouldn't care.. my hair always bugged me.. and I look good bald.. But, I know people who have lost their hair, and it is a big (and REAL) deal to them.. And if there's a possibility that there is help out there, someplace, then here's the place to post that info. And if there isn't, then here's the opportunity for folks like us to try to get the hairball rolling, OK?

Absolutely awesome idea Kev. Now time to start digging on the CCFA site for a contact to find out!

 

[BWS1982]

My girlfriend and I have noticed my hair thinning, not falling out as much (well some maybe) but I'm fairly certain it's my pred and/or some other med I'm on (one of the dozen or so I've been on in the last couple months has to have hair loss as a side).

I can't WAIT to get off this stupid prednisone, it's so sad it's the double edged blade that it is with it's unique effectiveness and horrible sides.

I feel especially bad for any females who lose hair since it's not as "normal" for that to happen, not that it's pleasant for a guy, but....

 

[TammySue62]

My girlfriend and I have noticed my hair thinning, not falling out as much (well some maybe) but I'm fairly certain it's my pred and/or some other med I'm on (one of the dozen or so I've been on in the last couple months has to have hair loss as a side).

I can't WAIT to get off this stupid prednisone, it's so sad it's the double edged blade that it is with it's unique effectiveness and horrible sides.

I feel especially bad for any females who lose hair since it's not as "normal" for that to happen, not that it's pleasant for a guy, but....

You would be one of the few who can totally come off pred. Me myself can not have to stay on 2 tabs daily. Been like that for years. Hats off to yah if you can

 

[TammySue62]

Welll, after my 2nd bout with this disease (but way before the correct diagnosis) a friend became ill... and died 6 months later from leukemia. During that struggle, she lost all of her hair from chemo... coincidently the same drugs a lot of us take, tho in milder doses (then again, for us it's not a life/death, all or nothing battle). however, the Cancer Society provided her a wig (really expensive one, free) due to her hair loss. Now, I've heard people on here do a lot of talking about 'public bathroom keys', or 'handicapped parking' closer to the public washrooms, or even applying for welfare or social assistance due to the economic impact this has on us.., but I've never heard ANYONE question as to whether ANY charitiable group provides things like 'wigs' for folks who lost or are losing their hair. I wonder if the CCFA, or other organizations, provide this?

Anyone any info? Hey, if it were me, I wouldn't care.. my hair always bugged me.. and I look good bald.. But, I know people who have lost their hair, and it is a big (and REAL) deal to them.. And if there's a possibility that there is help out there, someplace, then here's the place to post that info. And if there isn't, then here's the opportunity for folks like us to try to get the hairball rolling, OK?

Yes Kev my hair is a big and major deal for me. I have never ever had short hair.
Not sure if I would like the idea of wearing a wig tho

 

[bruni31]

hair

my hair is falling out easier now to, and i am not on any meds? I have no idea, my gi says it might be from the surgory i had in oct, it is stress that i went throw..

 

[D Bergy]

If it is from stress, it will come back. I have known a couple of people this has happened to and the hair always came back.

D Bergy