- Joined
- Aug 3, 2009
- Messages
- 35
Hi everyone,
for everyone who's been following my other thread, i thought i should post a new thread as things have taken another weird twist.
so.... after having an emergency gi consultantion due to possible obstruction, my gi consultant asked for an emergency gastro-endoscopy and stigmoidoscopy to be done, im also awaiting an emergency mri scan date.
so the gastro- endoscopy was bearable, not pleasant but bearable. this showed no problems with my stomach, but when it got to my duadenum, it "didn't look right" my nurses words not mine. it was pale and had flat villi. apparantly they believe i have caeliac disease as well as crohns now.
my stigmoid was agony and she only got 20cm up, before i was screaming in agony. it showed ulcers at my tailend, which has never had ulcers there before, but my colon looked ok.
to fill everyone in who doesn't know of me. i was diagnosed with crohns in july. i had crohns in my whole colon, ilieum and illocual valve was strugling.
so now im stumped. they believe my illiem crohns is either inflamed, flaring, or obstructing, no problems at present with my colon.
my duedenum now looks like it has caeliac disease and my bladder problems keep going and coming back(incontinance).
about at my wits end. in alot of pain and look like im at deaths door. they wont give me anymore infliximab and my gi says he wishes to see the mri, before making a plan as to what step next to take. but basically he wants all the facts before presenting the case to a surgeon.
also...... was told yesterday that throughout my entire flare last july, my crp and all other indicator levels never changed or looked like i had inflimation, but colonosscopy and biopsies all showed crohns and severe inflamation.
so they believe im one of the few who dont show anything in their blood work.
this just complicates matters. not make them easier.
lying in bed at the moment. any thoughts appreciated
does anyone else have celiac and crohn's
for everyone who's been following my other thread, i thought i should post a new thread as things have taken another weird twist.
so.... after having an emergency gi consultantion due to possible obstruction, my gi consultant asked for an emergency gastro-endoscopy and stigmoidoscopy to be done, im also awaiting an emergency mri scan date.
so the gastro- endoscopy was bearable, not pleasant but bearable. this showed no problems with my stomach, but when it got to my duadenum, it "didn't look right" my nurses words not mine. it was pale and had flat villi. apparantly they believe i have caeliac disease as well as crohns now.
my stigmoid was agony and she only got 20cm up, before i was screaming in agony. it showed ulcers at my tailend, which has never had ulcers there before, but my colon looked ok.
to fill everyone in who doesn't know of me. i was diagnosed with crohns in july. i had crohns in my whole colon, ilieum and illocual valve was strugling.
so now im stumped. they believe my illiem crohns is either inflamed, flaring, or obstructing, no problems at present with my colon.
my duedenum now looks like it has caeliac disease and my bladder problems keep going and coming back(incontinance).
about at my wits end. in alot of pain and look like im at deaths door. they wont give me anymore infliximab and my gi says he wishes to see the mri, before making a plan as to what step next to take. but basically he wants all the facts before presenting the case to a surgeon.
also...... was told yesterday that throughout my entire flare last july, my crp and all other indicator levels never changed or looked like i had inflimation, but colonosscopy and biopsies all showed crohns and severe inflamation.
so they believe im one of the few who dont show anything in their blood work.
this just complicates matters. not make them easier.
lying in bed at the moment. any thoughts appreciated
does anyone else have celiac and crohn's
