- Joined
- Apr 25, 2011
- Messages
- 15
Hi everyone,
This site is a credit to everyone who makes it happen - makes me feel like I am not alone in this minefield of confusion and pain. So thankyou to everyone who takes the time to help others and keep up the good work because I think you get more info from this site than I do from my specialist!
I have been suffering for ages with a painful bum, as mentioned before. The pain is still there but its not keeping me up at night now, but its continuous like a tooth ache in that part, and on the left side, but does move about too.
I am now suffering with pain in middle of pelvic area, hurts to walk far, and is worse before and after bowel movement but doesnt seem to go away. Belly is still in spasm does it own little dance and if I weren't in so much pain I could become a belly dancer.
My crohns when diagnosed was in the terminal illium and at the time it took 2 years to diagnose, only by doing barrium enema. Had sigo last year, and all looked good, but in so much pain while doing it, they suggested mri scan. the time mri came round pain had gone and I thought I was on the mend.
MRI all clear. Pain back with avengence, and to complicate matters I had come off amitriiptyline because it was making no difference to my bladder (suffer with inter. cystitis. This may have been my mistake but I had also been diagnosed with underactive thyroid and was sure the thyroxine and amit weren't mixing well).
Pain has been so bad, belly swollen, no appertite, feeling sick, loosing weight, even my eyes ache (does that make sense!) No blood but am rushing to the loo, but only once a day. I know this must sound like a walk in the park compared to what some of you are all going through but the pain is driving me mad.
This pain has taken over, GI ordered pelvic ultra sounds, stool tests, and bloods, no inflammation found.
Has anyone been diagnosed without inflammation being shown up on tests?
I am sure years ago, my tests were all ok until they did barrium.
Mentioned this to my GI who said they don't do this test anymore and rely on tests like sigo and colonoscopy.
I was sent for tests at another hospital to see if the rectum was working properly, and testing the pudenal nerve. They found muscle damage on one side (probably caused by childbirth) a small prolapse of bowel, and and I don't empty properly. None of which they say can cause me this pain. This did involve another ultra sound.
My GI has mentioned that there are another few tests that can be done, but I am becoming so frustrated. Could not get out of bed on Sunday after having these tests done, I was in so much pain.
Do you think it is worth me pushing for a CT scan? My GI reckons that the MRI is more conclusive, but I had no pain when that test was done. I am beginning to think my crohns has returned with avengence, but just don't seem to be getting anywhere.
To add more confusion into the mix, I am having trouble with my thyroid dose, which I am sure is because I am not absorbing it properly.
I did see a lady physio who said my levator muscle is in complete spasm and this could cause anal pain, and I am waiting to see her for some treatment. I don't think this is the answer.
My GI has asked me to go back on amitrip which I have just done, because other than dizapan there doesn't seem to anything else they can give me - and my gp hates them because they are addictive! Can't win.
I just want to go forearmed to my GI and ask about a scan but I'm not sure what one, because I feel this could be something between my bowel and bladder, which wouldn't be picked up on the ultra sound. I have read on here that things have only been picked by scans where missed before, and I think thats my fear. Having had it in term ill I know thats one of the most difficult parts to see. I feel like I am going back to the dark side if you get my drift!
Taking the amit helps me sleep and I have not been waking with the pain, and what feels like pressure on the bladder (I think from the bowel)
Also can anyone recommend good Gastro Specialist at either Colchester, Ipswich or Bury St Edmunds hospital, as moved and need to find a new one, but I dare not change at the moment as that would just confuse things even further. I am going to do my homework before I change!
Thankyou for taking the time to read this, I feel abit better just writing it all down. Any help or advice will be gratefully received, thank you.
Squidybum x
To
This site is a credit to everyone who makes it happen - makes me feel like I am not alone in this minefield of confusion and pain. So thankyou to everyone who takes the time to help others and keep up the good work because I think you get more info from this site than I do from my specialist!
I have been suffering for ages with a painful bum, as mentioned before. The pain is still there but its not keeping me up at night now, but its continuous like a tooth ache in that part, and on the left side, but does move about too.
I am now suffering with pain in middle of pelvic area, hurts to walk far, and is worse before and after bowel movement but doesnt seem to go away. Belly is still in spasm does it own little dance and if I weren't in so much pain I could become a belly dancer.
My crohns when diagnosed was in the terminal illium and at the time it took 2 years to diagnose, only by doing barrium enema. Had sigo last year, and all looked good, but in so much pain while doing it, they suggested mri scan. the time mri came round pain had gone and I thought I was on the mend.
MRI all clear. Pain back with avengence, and to complicate matters I had come off amitriiptyline because it was making no difference to my bladder (suffer with inter. cystitis. This may have been my mistake but I had also been diagnosed with underactive thyroid and was sure the thyroxine and amit weren't mixing well).
Pain has been so bad, belly swollen, no appertite, feeling sick, loosing weight, even my eyes ache (does that make sense!) No blood but am rushing to the loo, but only once a day. I know this must sound like a walk in the park compared to what some of you are all going through but the pain is driving me mad.
This pain has taken over, GI ordered pelvic ultra sounds, stool tests, and bloods, no inflammation found.
Has anyone been diagnosed without inflammation being shown up on tests?
I am sure years ago, my tests were all ok until they did barrium.
Mentioned this to my GI who said they don't do this test anymore and rely on tests like sigo and colonoscopy.
I was sent for tests at another hospital to see if the rectum was working properly, and testing the pudenal nerve. They found muscle damage on one side (probably caused by childbirth) a small prolapse of bowel, and and I don't empty properly. None of which they say can cause me this pain. This did involve another ultra sound.
My GI has mentioned that there are another few tests that can be done, but I am becoming so frustrated. Could not get out of bed on Sunday after having these tests done, I was in so much pain.
Do you think it is worth me pushing for a CT scan? My GI reckons that the MRI is more conclusive, but I had no pain when that test was done. I am beginning to think my crohns has returned with avengence, but just don't seem to be getting anywhere.
To add more confusion into the mix, I am having trouble with my thyroid dose, which I am sure is because I am not absorbing it properly.
I did see a lady physio who said my levator muscle is in complete spasm and this could cause anal pain, and I am waiting to see her for some treatment. I don't think this is the answer.
My GI has asked me to go back on amitrip which I have just done, because other than dizapan there doesn't seem to anything else they can give me - and my gp hates them because they are addictive! Can't win.
I just want to go forearmed to my GI and ask about a scan but I'm not sure what one, because I feel this could be something between my bowel and bladder, which wouldn't be picked up on the ultra sound. I have read on here that things have only been picked by scans where missed before, and I think thats my fear. Having had it in term ill I know thats one of the most difficult parts to see. I feel like I am going back to the dark side if you get my drift!
Taking the amit helps me sleep and I have not been waking with the pain, and what feels like pressure on the bladder (I think from the bowel)
Also can anyone recommend good Gastro Specialist at either Colchester, Ipswich or Bury St Edmunds hospital, as moved and need to find a new one, but I dare not change at the moment as that would just confuse things even further. I am going to do my homework before I change!
Thankyou for taking the time to read this, I feel abit better just writing it all down. Any help or advice will be gratefully received, thank you.
Squidybum x
To
