Help

[ak23]

I'm tired of pain. I'm tired of medicine. I'm tired of barely functioning throughout the day. I'm tired of being unreliable when it comes to work and relationships. I'm tired of not being able to eat. I'm tired of getting no answers. I'm tired of doctors unsure of the next step. I'm tired of being a burden. I'm tired of planning my day around pain and Crohn's issues. I'm tired of anxiety. I'm tired of explaining this illness. I'm tired of ER trips. I'm tired of chest pain. I'm tired of jaw pain. I'm tired of every random pain that seems to pop up these days.

I've had Crohn's for 11 years. The first 9 years were relatively easy. The last two (since I had a bowel resection) have been hell. I'm so, so tired of this. I'm only 23 years old and if this is the prime of my life, I'm terrified.

I have a great support system and I'm going to fight this thing, but it's just so hard not to get down sometimes.

 

[Tuff]

I'm sorry you're having such an awful time. Just focus on making yourself comfortable, and getting through this. It gets better. This disease is like a rollercoaster, and sometimes you want to get off. Maybe get a second opinion or a new doctor? Do they know how miserable you're feeling?
:ghug:

 

[ak23]

I just switched to a new doctor and he has been friendly, but I'm not seeing results yet. I started Humira about five months ago and I was really hoping to feel better by now. They know of my anxiety and depression. I know it'll get better at some point, there are always peaks and valleys, but it's just rough right now.

 

[24601]

I hear you. I'm tired of most of that stuff too. For what it's worth you are not alone.

Has your doctor set a date to review your meds and decide whether they are working or if there is something else going on other than active Crohn's? I agree it's really frustrating when there seem to be no answers and given the still limited understanding of this disease that's how things are sometimes. But we can at least get as much information from tests as we can and set targets for each treatment to give it a length of time in which we expect to see progress and if not then we change the treatment . I think having a plan like that can at least mean we don't feel our symptoms are ignored and we are being left to suffer with no hope of things improving.

Hope you start feeling better soon

 

[ak23]

I've tried a ton of meds. I think I'm going to change my diet and see a therapist.